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  • "BeckyP" started this thread

Posts: 145

Reg: Jan 30th 2007

Location: St Helens

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1

Tuesday, May 29th 2007, 12:54pm

Waiting lists

Hiya all!

Hope you all had a lovely bank holiday weekend.

I'm just posting to ask what waiting lists you've experienced for your IVF/ICSI treatments on the NHS.

Also ... if you've been told to lose weight before treatment - have you had to do this BEFORE being put on the list or WHILE on the list?

Thanks for reading.
Becky x



Me: 36 PCOS & Anovulation & very overweight.
DF: 37 Azoospermia / CBAVD / Carrier of CF gene
TTC baby #1 for 5 years
ICSI our only hope.

Posts: 2,016

Reg: Oct 7th 2005

Location: staffordshire/shropshire border

Children: my fur baby shawnee and my beautiful daughter C born Dec 2010

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2

Tuesday, May 29th 2007, 1:00pm

hi becky

we couldnt even get on a nhs waiting list as our pct isnt currently funding fertility treatment.

we waited for 2 years to see if they would change their minds about it before eventually going private for this treatment - no funding until at least 2008 possibly longer and i would imagine quite a long waiting list when they do start funding treatments again.

sorry this isnt much help to you
TTC for 7 years (MFI and Immune problems)
6 ICSI's so far all BFN
Cycle with Immune treatment in Nottingham - :BFP:


Ellie's PG Diary


  • "BeckyP" started this thread

Posts: 145

Reg: Jan 30th 2007

Location: St Helens

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3

Tuesday, May 29th 2007, 1:02pm

How can they justify NOT funding fertility treatment?
That's awful.



Me: 36 PCOS & Anovulation & very overweight.
DF: 37 Azoospermia / CBAVD / Carrier of CF gene
TTC baby #1 for 5 years
ICSI our only hope.

kski

Ace

Posts: 959

Reg: Mar 26th 2006

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4

Tuesday, May 29th 2007, 1:35pm

hi
the waiting lists vary with the PCTs so in some areas there are long waits in others - 6 months - and in some - no treatment at all


Re weightloss - there have been a few threads posted - Try the search button on the menu and FAQs - also I am sure someone will be able to post an answer.

Best of luck

k
DAD to twins

Posts: 814

Reg: Mar 6th 2006

Location: Essex

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5

Tuesday, May 29th 2007, 2:20pm

It was 5months for me. I got reffered in Nov 06 and then I got my letter for my appointment in January and started treatment end of March.
Melanie
1st IUI cylce 10 March 06 BFN
2nd IUI cycle 19th June 06 BFN
3rd IUI cycle 6th Sep 06 BFN
4th IVF 31st March at St Barts :BFP:

Daisy born @ 35wks 20/12/07 12.16am 4lb 13.5 oz
Nuala born @ 35wks 20/12/07 12.18am 5lb 10oz


Nin

Newbie

Posts: 20

Reg: May 9th 2007

Location: Bradford

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6

Tuesday, May 29th 2007, 2:29pm

Hi BeckyP!!!

As others have said it depends on where you live, we were told we would have to wait approx 3 years! but we couldnt get on the list without a fight because my DH has already fathered a child... Hope your PCT is better than Calderdale... goodluck!
Nin
----------------------------------
TTC: 2 Years
DH: Married nearly 2 years together for 6
1st attempt IVF: 8th May, EC: 6th June - ET: 8th June - bfn

  • "BeckyP" started this thread

Posts: 145

Reg: Jan 30th 2007

Location: St Helens

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7

Tuesday, May 29th 2007, 2:44pm

Thanks for your replies.

I'm in Liverpool - being seen at The Women's hospital ... anyone else going there?

XX



Me: 36 PCOS & Anovulation & very overweight.
DF: 37 Azoospermia / CBAVD / Carrier of CF gene
TTC baby #1 for 5 years
ICSI our only hope.

Posts: 814

Reg: Mar 6th 2006

Location: Essex

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8

Tuesday, May 29th 2007, 2:56pm

I would send a message to Paul Entwistle I think he works there?
Melanie
1st IUI cylce 10 March 06 BFN
2nd IUI cycle 19th June 06 BFN
3rd IUI cycle 6th Sep 06 BFN
4th IVF 31st March at St Barts :BFP:

Daisy born @ 35wks 20/12/07 12.16am 4lb 13.5 oz
Nuala born @ 35wks 20/12/07 12.18am 5lb 10oz


Posts: 493

Reg: May 20th 2007

Location: London

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9

Tuesday, May 29th 2007, 6:57pm

Hi

Im on the NHS list and have been told funding will be available in March 2011!!
I'll be 39 then so we are having to go private in the meantime.
Its not fair is it...

Posts: 107

Reg: Mar 5th 2007

Location: south staffs

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10

Friday, June 1st 2007, 10:05am

RE: Waiting lists

Hi Becky
We had our first NHS consultation yeterday and he told us that it is usually difficult to get funding for patients in our area however the PCT have just agreed anyone in our area (south Staffs) will get one cycle funded before the end of the next April.
So we are now on the list. GP oroginally told us to look in to going private as waiting list is over 2 ½years.
So we will wait and see.
Good luck

Party Queenjilly

Me 34, DH 38
ICSI - 07 BFN
ICSi 2 - BFP
2 boys born 8/6/09 gorgeous


<a href="http://lilypie.com/"><img src="http://lb1f.lilypie.com/zg8Rp1.png" width="400" height="80" border="0" alt="Lilypie First Birthday tickers" /></a>

Posts: 438

Reg: Oct 26th 2006

Location: Liverpool

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11

Friday, June 1st 2007, 2:41pm

Hi Becky

Its 3 year wait at Liverpool WH and there is a weight limit and various other hoops. Ask the PCT for a copy of the rules. The big one for me (apart form wieght which is on another thread!) is that once you have paid for 2 treatments yourself you are ineligibile for NHS treatment. Now tell me how that is fair??????




Me 37 DH 35
PCOS since 1991
TTC 4.5 years
1st IVF Sept 06 - BFN
FET Mar 07 - BFN
2nd IVF Aug 07 on the NHS! Yippeeeeee - EC 3rd September 19 eggs - 2 fertlised - :BFP: Its a girl !

Baby Iona born April 2008 - 5 weeks early - The light of my life

Tweeti

Newbie

Posts: 69

Reg: Apr 8th 2007

Location: West Yorkshire

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12

Saturday, June 2nd 2007, 6:01pm

When we first started talking lists earlier this year, we were told a date of April 2011.....

We have decided to pay for our treatment, as they kept saying that the chance of success depends on many factors, one of which is your age, and I wasn't comfortable waiting that long!

We will be paying again for our second go....

But as far as I can gather, heaven forbid if it doesn't work, when we eventually get to 2011 regardless of the number of times we've done it we will still get a go on the NHS....I'm just hoping and praying that we don't need it, cos this second time it's going to work!

Wishing you all the luck.... :goodluck:
Tweeti

Married DH - 2yrs... happydance & [zx068]
1st ICSI - Started April 2007 [Sfunded] :BFN: :tear:
2nd ICSI - October 2007 [Sfunded]


clap BABY GIRLS ARRIVED 8th JULY THANK GOD :pray:

Posts: 389

Reg: Dec 4th 2007

Location: BY the seaside

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13

Tuesday, December 4th 2007, 8:28pm

St Barts

I was wondering how long you had to wait to have treatment at st Barts as just trying to deceide which NHS hospital to have our free IVF treatment? :smile:



babydust

OMG : WE HAVE A LITTLE GIRL AND A LITTLE BOY "YIPEEEE" XXX

  • "1xbaby pls" is no longer a member of FZ

Posts: 2,647

Reg: Apr 4th 2006

Location: Wales

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14

Wednesday, December 5th 2007, 9:41am

It took us 2 years for a list to start in wales but once it did we were seen and sorted in 12months, at the time i had treatment you had to be in Correct BMI before treatment but you would be on waiting list - however if your BMI wasnt correct they would postpone your treatment. x Good luck x
1st go ICSI - @ royal shewsbury and Telford NHS funded
25 eggs collected 27/3/06
15 fertilized - 8 grade A - 2 transfered 30th/3
test date - Thursday 13th April, BFP :D :D :D
:baby: ITS TWINS :baby:
M.L & J.F - Born 9/11/06 6w prem (6lb 5oz & 4lb 10oz)

Posts: 389

Reg: Dec 4th 2007

Location: BY the seaside

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15

Wednesday, December 5th 2007, 3:38pm

Thats great congrats! on the twins. thanks for the info.

:happy:

Cheers

Hayley



babydust

OMG : WE HAVE A LITTLE GIRL AND A LITTLE BOY "YIPEEEE" XXX

  • "1xbaby pls" is no longer a member of FZ

Posts: 2,647

Reg: Apr 4th 2006

Location: Wales

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16

Wednesday, December 5th 2007, 4:32pm

I also wrote (more like houned) loads of letters to the local PCT, local MP to take to parliment to explain that there reason for no list.....

FERTILITY TREATMENT IS NOT CONSIDERED A LIFE SAVING NESSITY IN NHS TREATMENT, PROVIDING QUALITY OF LIFE IS, B ***' S,

I kindly explained were my quality of life was at waiting and wanting a baby - i was close to a breakdown at my dr;s but she was flippin excellent, wrote to everyone on my behalf, to voice her disgust at the way Fertility patients were being treated in N wales and that it was surely contrevining our Human rights to take away our chance to become parents when other PCT's offered treatment. and if we lived elsewere we would be prime candidates for succesful treatment and hey ho we proved her right.

So get moaning ha ha i dont mean in the bed room x x x
1st go ICSI - @ royal shewsbury and Telford NHS funded
25 eggs collected 27/3/06
15 fertilized - 8 grade A - 2 transfered 30th/3
test date - Thursday 13th April, BFP :D :D :D
:baby: ITS TWINS :baby:
M.L & J.F - Born 9/11/06 6w prem (6lb 5oz & 4lb 10oz)

This post has been edited 1 times, last edit by "1xbaby pls" (Dec 5th 2007, 4:35pm)


Posts: 389

Reg: Dec 4th 2007

Location: BY the seaside

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17

Wednesday, December 5th 2007, 7:31pm

Well I think I have already made progess treatment on nhs by march 2008!!

thats not bad going.

Thanks for your advice

Hayley x



babydust

OMG : WE HAVE A LITTLE GIRL AND A LITTLE BOY "YIPEEEE" XXX

kar1

MEMBER

  • "kar1" is no longer a member of FZ

Posts: 12,830

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18

Wednesday, December 5th 2007, 8:07pm

i waited 25months for appointment to start iui and started that soon after, once i needed ivf it was an 18 month wait which the clinic got down to 10months, and then were stopped doing any nhs treatment as they had exceded there yearly limit!!!!!
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

Posts: 389

Reg: Dec 4th 2007

Location: BY the seaside

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19

Wednesday, December 5th 2007, 10:29pm

Thats sounds like a terrible experience.!!
I found out from my primary care trust that if you are entitiled to an nhs treatment it is patient choice for you to decide which nhs hospital you have your treatment in anywhere in the country!!. she told me to decide.
giving you the choice to look at results, waiting times etc!!

Good luck for feb, which hospital are you having it in?

:rolleyes:

Hayley



babydust

OMG : WE HAVE A LITTLE GIRL AND A LITTLE BOY "YIPEEEE" XXX




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