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Waiting8

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Reg: Jun 4th 2018

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Monday, June 4th 2018, 3:01pm

New and need help

hello
I’ve been looking at these forums for a while now. And this is my first time posting on anything ever. I am after a bit of advice or support as I am unsure exactly where I’m at in my journey and where I can go from here, especially in Northern Ireland as a lot of help or advice concerns England or America.

I have been trying to convince for just over a year. I have PCOS and since a year ago I have had only 3 periods. They are always 110+ cycles which is really hard. I went to my doctors recently to explain we had hit over the year mar of trying and what to do next. She said she would refer me to fertility specialist to see what will happen next and this was back in April. I know the appointment times are a long wait but I just wanted some advice really on what’s next? I have had no contact or follow up.. have I definitely been referred? Should I have heard anything? Even contact details or info anything?
I am hoping that after tests etc I will be able to get clomid as myself and local doctor think I am not ovulating. I am waiting to go and get bloods taken on cd2-5 but aaa here I am on day 113 and waiting for AF to show so I can get these completed.

I am HOPING for clomid. I am overweight/ BMI of about 36/ will this impact? Willthis mean I won’t get help? I exercise frequently I just can’t lose weight easily with my PCOS. Any help/ advice/ support would be really welcome.

Thanks x

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Monday, June 4th 2018, 4:28pm

Hi, when I first went to the doctor to say we had been trying for a year it took quite a while before I heard anything. I think it was around 6-8 weeks before I got a letter saying to call to make an appointment. I went to the dr in Feb and I think my first appointment was may time so it does take a while to get things moving.
Once you do get an appointment your partner will also get a separate appointment for a semen sample, even if you think it's to do with your PCOS rather than a male factor. They should then discuss the results of that with you at your first appointment and ask you about your periods etc.
After that it really differs depending on your situation. My husband has a blockage meaning that our only option was to go straight to IVF/ICSI and a biopsy for hubby to extract sperm. So I don't know how things work with clomid/IUI etc.
I'm not sure how it works for clomid/IUI rtf with regards being over weight but I know that you must be under a bmi of 35 to start IVF treatment. I know losing weight is extremely hard with PCOS (I have it myself) but I would suggest trying to lose weight to at least get down below 35 if you can while you are waiting. I recommend slimming world as losing weight is all about the food you eat rather than exercise. I lost almost 4 stone on slimming world without exercise, though I've put a bit back on despite still going but I think it's to do with my PCOS and coming off the pill.
Good luck with everything x
ICSI #1 - April/May 2018
4 eggs - 2 x day3 embryos - :BFN: ;(
ICSI #2 - Sept/Oct 2018
5 eggs - 2 x day5 early blasts - :BFN: ;(

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Monday, June 4th 2018, 6:07pm

Hi Waiting,

Sorry to hear you are having a difficult time.
I would ring the Rfc to check they received your referral. As far as I know the waiting time target for a new patient is12 weeks, but of course sometimes they don’t meet the target. You want to make sure they definitely received your referral, so there is no harm in ringing and checking and the expected waiting time.
If you look up the RFC- the appointments helpline number is on there.

Good luck

Waiting8

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Monday, June 4th 2018, 6:19pm

Thank you both this is really helpful and a great start! Partners appointment through his doctors is next Friday then in the meantime I will ring up to see if rfc got my referral from my docs just to make sure. It’s one of those things there is already so much waiting that the prospect of being held by any error is enough to cause major meltdowns which on CD112 when you have had 4 friend and family pregnancy announcements in the last week is too huge 8| :whistling:

Jo31

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Monday, June 4th 2018, 8:13pm

When I went to the gp, they referred me to the fertility doctor at my local hospital, which was Craigavon. I went in January to gp and wasn’t seen in Craigavon until June 28th. My husband went to gp in Jan and he was sent for tests in Craigavon too, his first test showed bad results but they made him do another test before referring him to RFC.
So from going to gp in Jan, it was August 31st we had our first apt at RFC and then our review apt on Dec 7th so sign on to ICSI list.
Sorry, but the waiting just gets worse at each stage.

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Tuesday, June 5th 2018, 2:22pm

hi

sorry my comments have posted twice

This post has been edited 1 times, last edit by "Princess1" (Jun 5th 2018, 2:23pm)


Waiting8

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Tuesday, June 5th 2018, 7:49pm

Hi Jo, craigavon would actually be my most local hospital as well so I reckon they may send me here too.

While it’s frustrating to know there is more waiting ahead I’m glad to hear from you al as I know what to be prepared for then and can get myself ready for a longer wait than I maybe even expected! Do they do all tests and everything in craigavon at your first appointment or is it more of an initial chat?


Hi princess.

Jo31

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Tuesday, June 5th 2018, 11:21pm

Everyone is different I think, at my only apt in Craigavon I had a blood test to test my AMH levels and then a chat, he checked through my husbands results online and basically said it was male factors and said he would refer us to RFC. You are maybe different, you should ring your gp to see where you have been referred, then you can ring wherever that is and they’ll give you a timeframe.

Waiting8

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Monday, October 8th 2018, 3:52pm

Hi all

Just an update of where I am at the minute.

Back on the forums as after all testing in August and an internal scan. We have had hubbys results which all seem normal. I have been downgraded to a ‘phonecall’ which is due to be happening this Wednesday (has already been cancelled once). I believe it is a phonecall to discuss results which I am guessing are still reflective of the PCOS based on my brief chat with nurse after examination however.. I had to take a letter to my GP saying I would be discharged due to my BMI which was 36 and needed to be 35. I have worked hard on this and am currently 35.4 ... as I am only having a phonecall as they won’t be giving me treatment, it will be hard to prove I am now at a BMI where I could r cover treatment. Rather than going back to the start. I don’t know how this will work.

Like I said previously, my last cycle ended up being 165 days and I know then clearly there isn’t default ovulation and am hoping for Clomid.

Just so scared of being told no and put back to the start again.

This is only the start of the journey and I am so anxious about this phonecall on Wednesday which is why I guess I’m back to just needing to hear of other people who might have been in a similar situation and simply had a phonecall with a consultant.

Can you get prescription of Clomid or metformin over the phone?

Nervous/worried and anxious.... waiting x

Jo31

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Tuesday, October 9th 2018, 9:29am

Sorry waiting8, I don’t know anything about it, best just write down all the questions you have and when they phone have it ready so you don’t forget what you need to know.

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Tuesday, October 9th 2018, 9:58am

Sorry waiting8, I don't have any experience of this either. It sounds horrible, I'm sorry you are going through this. I think Jo31's suggestion of writing down all your questions etc is a great idea as you tend to forget things when your under pressure. Definitely let them know about your bmi. Sorry I can't be of more help. Good luck with the phone call xxx
ICSI #1 - April/May 2018
4 eggs - 2 x day3 embryos - :BFN: ;(
ICSI #2 - Sept/Oct 2018
5 eggs - 2 x day5 early blasts - :BFN: ;(




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