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  • "jenny73" started this thread

Posts: 262

Reg: Apr 27th 2012

Location: Lancashire

Children: One beautiful boy. Centre of our world.

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Thursday, July 3rd 2014, 9:15pm

Intralipids and soy allergy

Hi

I was due to have Intralipids on my forthcoming cycle, but I've been found to be slightly allergic to soy (one of the proteins they check for was raised). My consultant now won't prescribe, which of course I totally understand, but I am very disappointed.

I just wonder if anyone has any experience of soy allergy and Intralipids and if they found a way round it at all??? Having quickly googled it, it looks like there are further tests that can be done to ascertain the actual risk of having Intralipids, but not sure if this is a common thing to have done and even if these tests are done, if anyone would be recommended to go ahead with an IV infusion of something that could provoke an allergic reaction.

For info: I also have other allergies - some nuts and some fruits.

Hoping someone out there might have some experience? thank you.

Jenny
One beautiful boy born in 2010 but multiple attempts for a sibling very sadly had to stop.

Posts: 1,193

Reg: May 30th 2010

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Saturday, July 5th 2014, 12:58pm

Hi Jenny,

I am so sorry you are having this added worry. Sorry no actual experience here just my thoughts.

I was wondering if you could go back to your allergy specialist as they might know more than the fertilty people. My other idea would be if there is an alternative to intralipids without soy. You might have found this anyway but here is a thread from another forum: Allergic to eggs and soya so cannot do intralipids 1 (sorry not sure if it's allowed or not to link other forums, but this came up when I googled intralipid soy free alternative)

How about your little boy? You did not use intralipids back than, did you? Was he an amazing piece of luck? (I am sure he is,anyway)

Much love,
Rianon

  • "jenny73" started this thread

Posts: 262

Reg: Apr 27th 2012

Location: Lancashire

Children: One beautiful boy. Centre of our world.

Thanks: 25 / 0

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3

Sunday, July 6th 2014, 9:46pm

Hi Rianon

how kind of you to reply and find that information for me. Thank you.

I don't have any apparent issues with NK cells - my Chicago tests came back normal - but Intralipids were suggested anyway as I have had two miscarriages since having my little boy and several IVF failures as well. This is also my last try so I wanted to give it everything I could. I didn't have any Intralipids or even steroids with my son, but given what has happened to me since maybe he was even more of a miracle than he already felt.

My Consultant was clear he wouldn't take any risk with the Intralipids and I have to be sensible - as much as I want another baby, I am a mum already and am very conscious that there are already risks involved with all of this treatment so don't want to take any more. I just have to hope that this cycle will be different and that with my NK cells being normal, this probably wouldn't make any difference anyway....

Where are you with your plans? If I remember rightly, you would like to try for number three?

P.s I am also doing PGS this time - aren't your children the result of PGD?

Thanks again, Love Jenny xxx
One beautiful boy born in 2010 but multiple attempts for a sibling very sadly had to stop.

Posts: 1,193

Reg: May 30th 2010

Thanks: 107 / 11

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4

Tuesday, July 8th 2014, 12:38am

Your consultant sounds like a lovely & sensible person, must be great to have him. I am sorry they never figured out the cause of miscarriages but sometimes it's just not possible.

Yes we are a PGD success story and PGS is very similar to that although I am not too sure about it personally. It might be able to pick the best embryos but what if there are none left? It also puts some additional strain on the embryos. Do you tend to have many embryos growing to day-5?

Wishing you all the luck in the world, the longing for a sibling can be so powerful. I do hope that until your next baby's arrival you manage to enjoy having one, and doing proper big boy things with him which would not be possible with a little one around (like playing board games or clever building games from little bits).

xx Rianon

  • "jenny73" started this thread

Posts: 262

Reg: Apr 27th 2012

Location: Lancashire

Children: One beautiful boy. Centre of our world.

Thanks: 25 / 0

  • Send private message

5

Thursday, July 10th 2014, 7:31pm

Hi Rianon

yes, I have faith in my Consultant to do the best for me and that is indeed a very good thing. Horrible when that is not the case.

I also have my reservations about PGS but feel that this has to be the next step for us. I obviously don't know whether we will end up doing it though - will depend on numbers. I have had good response in past but we will have to see.

As for my lovely lad, I adore him and do try and focus on all the things that we do together - a lot of outdoor adventures - that we wouldn't be able to do with a younger sibling in tow. And I have spent a long time imagining life just as three, so I hope I will be ok if things don't work out the way we would like. Just be so amazing to get to do it all again....

Appreciate your support. xxx
One beautiful boy born in 2010 but multiple attempts for a sibling very sadly had to stop.




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