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  • "Lou2011" started this thread

Posts: 133

Reg: Mar 31st 2011

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Monday, December 10th 2012, 1:26pm

Advice needed on baby not meeting development milestones, very worried mummy xx

Hi All,

I'm getting myself worked up about my little girl who is 13 months old (adjusted age 11.5 months) and was hoping to hear from anyone who has been in a similar situation ...

My doctor has referred my daughter to the paediatrician for a development check because she isn't rolling, isn't bearing weight on her legs and is making no attempts to get mobile. She can sit unsupported but often slouches (although she can sit straight backed sometimes). I have been looking on the internet and cerebral palsy comes up quite a lot. My daughter has several of the risk factors associated with cerebral palsy: she's a twin, born premature, low birth weight, breech delivery, low apgar score (although after 10 minutes this was fine) and wasn't breathing when she was born and had to be resucitated. Although cerebral palsy has never been mentionned by a health professional, I am worried sick that she will be diagnosed with it.

Has anybody had to take their child to the paediatrician due to slow development? Is there anything in particular that I should ask for? Should I mention my fears of cerebral palsy or will they think I'm just an over-anxious mum?!

xxx
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Monday, December 10th 2012, 2:04pm

Hi hun,

Didn't want to read and run. Big hugs to you - this is a very worrying time and of course you have every right to be worried. i have no experience of your situation (but lots of experience with CP kids) and what i suggest you do is make a big fat list of questions to ask as if you are anything like me, i usually forget to ask important questions when I see the docs.
Let us know how you get on xxx





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Monday, December 10th 2012, 3:16pm

I'm sorry I don't have any experience of this either, but didn't want to read and run. Understandably you must be worried sick, but I would say that it is very positive that they are looking into things efficiently and fingers crossed, perhaps your LO is just a slow developer, rather than having a diagnosed condition. Whatever, the professionals will do what is best for her and that is most important.

Like Daisy says, prepare a list of questions, no matter how big or small and take with you, not leaving until you have got through them. Be honest about your concerns about cerebral palsy too, they won't think you are an over anxious mum and it will make you feel better to air your concerns.

I would be wanting to ask what sort of testing they are going to do, what they are concerned about, if they have anything in mind that they think is specifically wrong, what the future holds and what treatments/support she/you will be offered.

Will be thinking of you, do let us know how you get on. Xxx



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Monday, December 10th 2012, 8:52pm

I also didn't want to read and run, big hugs to you but do as the others have suggested make a list of questions, and don't be afraid to ask about CP, you have every right to ask, health professionals are used to their patients googling everything, you won't be labelled over-anxious, you're just being a good mum.
Thinking of you and your LO x
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Tuesday, December 11th 2012, 2:21pm

My little boy has CP - why don't you PM me.
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Wednesday, December 19th 2012, 11:58pm

yep my son doesnt roll can sit etc all the things you listed above he does have neuro issues , you can pm me too , i should mention my little guy was born the same breach c section with great apagar but unfortunately post open heart surgery was like paralized he has come a long way ;) so it may look scary when doctors say slow developement etc but i have seen what amazing things kids can do
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