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  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

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1

Thursday, August 9th 2012, 6:35pm

Moving from Somerset to The Vale of Glamorgan

Hi
Me and DH are moving from Bath to The Vale and want to continue our treatment. Does any one have any experience of any clinics that take nhs in the vale and any information on accessing a referral. Will our Dr at our new surgery give us a referral even if we've been having treatment else where and will we be able to start in Wales from where we left off in Bath or will we need to start from the beginning again?
[zx098] LANDROVERJADE xfingers

Maria72

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2

Saturday, August 11th 2012, 6:13am

As each pct is different I would check with your new pct and register with a GP ASAP.

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

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3

Saturday, August 11th 2012, 6:10pm

Yeah registering with GP is always first thing, but I was wondering what clinics are around the area what they are like and what choices for clinics we would have.
[zx098] LANDROVERJADE xfingers

Maria72

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4

Sunday, August 12th 2012, 5:50am

You can look on the HFEA website for clinics. As far as the options for funding go you will have to ask your new GP or your new PCT.
The criteria for funding may be different and you may be entitled to more options or less options. Your new GP will know.
These things change very year in May. In the past they changed less frequently, but now with the economic crisis IVF funding is less stable.
I would also ask your old GP to write a letter to your new o e explaining your situation and that you need fertility treatment.

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

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5

Sunday, August 12th 2012, 5:05pm

Thanks for the advice. I've had a look on the website and there seems to be a lot of choice. One of the nearest to where we're moving to specialises in our very problem too which is hopeful. So i'm going to book an appointment at the Dr tomorrow to get things rolling.
[zx098] LANDROVERJADE xfingers

Maria72

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6

Monday, August 13th 2012, 1:27pm

Excellent. I find the HFEA a very good site with lots of info. They even send you a booklet if you want, explain ing your tx options. At least they used to when I started, but that's a long time ago!

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

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7

Monday, August 13th 2012, 2:25pm

I'll have another look on the website. I'm going to ask my hospital if they can give me a copy of my notes too or at least give me a letter too.
[zx098] LANDROVERJADE xfingers

Maria72

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8

Monday, August 13th 2012, 4:55pm

You are entitled to get a copy of your notes. You'll have to fil in a form and (I'm afraid) paid an admin fee, usually £40-50.
Check on your local hospital website or call them directly.

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

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9

Thursday, August 23rd 2012, 7:13pm

Found out today that HEFA info is out of date and has led to a lot of heart ache for me. GP was frankly appalling and has told me that I MUST have new bloods done before any sort of referral. IVF Wales said that all she needed to do was refer us. I also asked for a referral for some counseling but was told that I'd have to come back for another appointment as we'd run out of time. Does anyone know what the waiting time for Princes of Wales in Bridgend is as IVF Wales is min of 6 months. Which means that by the time I've these bloods done it'll be April/May before we get an appointment to even see the consultant for our initial appointment. We only had to wait 2 months in Bath :-( I don't really know what to do I'm starting to think that moving back to wales was a bad idea. It seems to have been so much harder getting anywhere here than in Bath and I'm really struggling to keep my wits about me. This m/c has completely shattered me and when I ask for help I'm just fobbed off. I don't feel as though I can trust anyone now. Does anyone have any experience of either of the NHS clinics in south wales as I don't want to go to one just to find out that I should have gone to the other and have to start this process all over again. 6 months is a long time and every day makes it less and less likely for us to succeed.
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Reg: Aug 9th 2009

Location: Wales

Children: None, M/C Nov 08; M/C May 09; M/C June 10

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10

Friday, August 24th 2012, 6:12pm

Hi, I'm a little further west than you but 6mths is very good for Wales, it's normally way over a year. 6mths is what they call "fast-track" here once you accepted for IVF. Don't know about Princes of Wales I was referred to LWC in Swansea.
I'd suggest asking for a different Dr at your local GP or swapping practice to someone more understanding. I hate to say it but I've had to fight to get the treatment I needed.
TTC 14yrs
Clomid x 6 BFN's
4 BFPs m/c's
2x IVF - poor response
NK CD19+/CD5+
Immune IVF -ve
Immune IVF +ve, m/c
3/16Hashimotos''s and peri-menopausal

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

  • Send private message

11

Saturday, August 25th 2012, 4:19pm

Thanks dieamus, I know it's not really that long but we've already been having treatment for 5 years and were due to start the ball rolling for ivf in Oct in Bath. It's annoying as with all the test we've already had done so have to start all over again grrr. Any way these are the hoops we have to jump.The 6 months was for initial consultation not ivf. What's LWC like I keep seeing adverts for it do they take NHS or are they just private like CRGW?
[zx098] LANDROVERJADE xfingers

Posts: 556

Reg: Aug 9th 2009

Location: Wales

Children: None, M/C Nov 08; M/C May 09; M/C June 10

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12

Thursday, August 30th 2012, 10:55pm

In Swansea they are private in an NHS hospital but with a clause in their "tenancy" there that says they will see xxx number of NHS patients. Although I found them lovely the treatment was to the book with no leeway. As I was finishing my 2nd (unsuccessful) IVF with them there were rumours that the NHS contract with them was finishing and that they would be purely private. I have no idea whether those rumours have manifested into fact or not.

I'd seriously go to your GP (or another one) and say look this how far I am along in the process, I need to start from here... not be put back to the beginning again.... tears if necessary! Use whatever ammunition you need to to get where you need.
TTC 14yrs
Clomid x 6 BFN's
4 BFPs m/c's
2x IVF - poor response
NK CD19+/CD5+
Immune IVF -ve
Immune IVF +ve, m/c
3/16Hashimotos''s and peri-menopausal

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

  • Send private message

13

Sunday, September 9th 2012, 4:56pm

Went back to Drs only to be told that if thats what the GP said that's what I had to do. Other GP wouldn't even look at my notes for referal as another dr was doing it. He was not very helpful and unfortunatly all that visit did was make me feel worse. Discussed counciling to try and sort out the brokenness & any possible treatment for the worsening herstuism and he grudgingly added some more test to the bloods I was having done, as well as telling me that herstuism does get worse at my age (I am 30). It was all given so grudgingly and with the attitude that I shouldn't be wasting his time. This is the country of my birth and I feel as though they would rather me not be here. I am frankly appalled at the attitude of the surgery and once I've got the results from the bloods I'm going to change surgeries the last I was treated like this by a GP was when I was homeless and sleeping rough.

Thanks for the advice though,
[zx098] LANDROVERJADE xfingers

Posts: 556

Reg: Aug 9th 2009

Location: Wales

Children: None, M/C Nov 08; M/C May 09; M/C June 10

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14

Wednesday, September 12th 2012, 9:42pm

Sorry to hear you are having such a rough time. Hope you find a GP that understands your situation soon.
TTC 14yrs
Clomid x 6 BFN's
4 BFPs m/c's
2x IVF - poor response
NK CD19+/CD5+
Immune IVF -ve
Immune IVF +ve, m/c
3/16Hashimotos''s and peri-menopausal

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

  • Send private message

15

Thursday, September 13th 2012, 9:48pm

Thankyou Diaemus

I'm slowly getting my head around things here. I'm going to change drs and we've got an appointment with our old consultant week after next so I'm going to ask him if he can refer us seeing as we've been having treatment for so long may be he can give our situation some more umph!? Hope all is well with you
[zx098] LANDROVERJADE xfingers

Posts: 556

Reg: Aug 9th 2009

Location: Wales

Children: None, M/C Nov 08; M/C May 09; M/C June 10

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16

Thursday, September 27th 2012, 12:19am

That sounds like a plan. Have you had the appt yet? If so I hope it went well. Let me know how it is going.
TTC 14yrs
Clomid x 6 BFN's
4 BFPs m/c's
2x IVF - poor response
NK CD19+/CD5+
Immune IVF -ve
Immune IVF +ve, m/c
3/16Hashimotos''s and peri-menopausal

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

  • Send private message

17

Sunday, September 30th 2012, 4:39pm

Hi Dieamus

The apponitment went ok. There was nothing wrong with my chromosones or dh's. There was nothing wrong with the baby either. Dr said there was no reason why I should have miscarried. I know it's good in a way and I'm trying very hard to stay positive but it still makes me wonder what I did wrong. Did I make my self miscarry? I have to admit that the thought of going all through the re registration process with another doctor makes me feel a bit sick, to the point I just want to lie down and sleep. Still no news about referal to a hospital here. Consultant in Bath basically said that there was absolutly nothing that they could medically. We just have to go away and keep going untill we get a full term pregnancy. Hard but I suppose he's right. He has given me a prescription for progesterone pessaries if I do manage to get pregnat again. I hope they go out of date before I get to use them, as my last lot of po[rogesterone did lol. The last couple of weeks have been ok, but today has been pretty shitty.

How are you doing?
[zx098] LANDROVERJADE xfingers

Posts: 556

Reg: Aug 9th 2009

Location: Wales

Children: None, M/C Nov 08; M/C May 09; M/C June 10

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18

Monday, October 1st 2012, 6:30pm

It is very draining dealing with Drs who aren't helpful, your body is already so drained from dealing with your own emotions that having to deal with other peoples becomes almost impossible at times. Have you had level 1 tests done by your Dr yet? Search the forum someone has put a list up somewhere. There are level 1 and level 2 (chicago) tests. The level 1 tests you can usually get your GP to do, tests for clotting, reumatoid factor to name but a couple. It is wrong for your Dr to say you just have to keep tryng, there is a reason you kep miscarrying and it's not your fault. It really irritates me when Drs are so useless, sub-fertility and miscarriage is still seen as "one of those things" and "bad luck" and it is neither. NICE guidelines say that 3 consecutive m/cs should have a female referred for investigations unless they are over 35 in which case it should be 2 consecutive m/cs.
TTC 14yrs
Clomid x 6 BFN's
4 BFPs m/c's
2x IVF - poor response
NK CD19+/CD5+
Immune IVF -ve
Immune IVF +ve, m/c
3/16Hashimotos''s and peri-menopausal

  • "Landroverjade" started this thread

Posts: 33

Reg: Dec 20th 2011

Location: Bath, Somerset

Children: Finally one the way!! Due January 2014 - m/c 98, 08,11 & 12

  • Send private message

19

Thursday, October 4th 2012, 8:03pm

HI
I thought they'd done all they could. I'll check out the Level 2 blood test. We'll see. Bath can't see us now as we're meant to be being refered to IVF Wales. We'll see how it goes. It's probably a good thing just chilling out for a bit. I've got it better than a lot of ladies so I can't really complain too much. We're waiting to hear back from Foresight about metal toxicity levels so we'll see what that shows up.

Thanks for the advice and sympathetic ear
[zx098] LANDROVERJADE xfingers




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