FertilityZone

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xxx

Hi Elizabeth,

I can't offer you much help I'm afraid as I don't know much about the antiphospholipid stuff.

With regards to your thyroid can you give the units as well as sometimes US labs use different units to UK ones.
I'm guessing its mIU/l which is what US labs ususally use.
Normal TSH levels can actually be anything up to about 4 mIU/L but anything over 2 could indicate the early sign of a problem.
Thyroid disease is a really hard one to diagnose. Basically the primary thing tested is your T4 level which is the amount of thyroid hormone you produce. I can't see that figure in your results but I'm guessing it's been done somewhere. If it's low if MAY indicate an underactive thyroid but the problem is that some people have low T4 levels due to other illness and some thyroids will be producing less T4 than they need so be underactive but still be within the reference rangs.
So the next test is TSH, which is the hormone that tells the thyroid gland to produce the T4 hormone. In most cases where the thyroid is underactive the TSH will be increased, because the body recognises that T4 levels are low and chucks out more TSH to try to produce more T4. If however the thyroid is damaged it can't respond.
So classic hypothyroidism is low T4 and high TSH.
Anti thyroid antibodies are often elevated in hypothyroidism as a lot of thyroid disease is autoimmune in nature and caused when the body attacks the thyroid gland.

So my reading would be that with slightly elevated anti thyroid antibodies and sl elevated TSH there may well be a borderline thyroid problem but that would need to be read in context of your T4 levels and clinical signs. If your doctors think the thyroid is a problem they will prescribe thyroxine but looking at your screen there appear to be a few other things a bit out of kilter so they may feel that the thyroid is just one to watch for now. The problem with giving thyroxine on the off chance is that it can then cause over active thyroid and that can cause fertility issues too.

Sadly the rest of it I don't know much about. I know some about NK and cytokines but those appear to be normal for you. The rest I can't help with I'm afraid.

Hope your doctor can give you some answers and help you have a little one.

xx

Hi Liza lou

Your Tsh is fine to be honst Tsh level should be between 0.27 -4.20 mU/L and your TSH is 2.07 so this normal hun I have a high thryoid - My TSH is slightley elevated at 4.21 - My FT4 is within normal range 12.0 - 22.0 and mine is 16.6 - however my FT3 is HIGH at 7.2 and the norm being 3.9 - 6.8 pmol- so your Tsh is fine hun.

Your antiphospholipids can be treated with prednsilone steriods AND a blood thinner called fragmin/heprin

I understand what you mean about the possibility with you taking steriods inregards to your nk cell test BUT the thing is the test says NORMAL so the steriods are doing somthing hey and this is what you want - you want them gone hun

I have a immune disorder NK cells on cd19+cd5+ as well as a slightely raised TSH and high FT3 - i had intralipids infusion 2 weeks ago 1 before ttc and offically in the 2ww - 1dpo on steriods and asprin - IF i get bfp i have another intralipids infusion and i will start thyroxine 20mg for the thyroid

Feel free to follow my diary the link is in my sig below

Good luck hun XX

hi hon

I am new to all this and having Chicago tests in a week so will watch this thread with interest. Has anyone mentioned intralipds to you? they are an alternative to IvIG x

Hiya hun the tsh tests i had done where done at the chicago lab where dr beer sent his off to so am sure your TSH is just fine hun
As for your T cells i totally understand what you mean about the price of ivig - maybe intralipids could fix this problem - £288 a go inc nurse to give you the infusion at home from health care.

Intralipids is being used more than ivig now 1. because it does the same job 2. Because its so cheap and theres no complications like side effects as its just soya milk and egg yolkes its a protein fusion. My nk cells where tested with ivig in the lab to see if ivig killed them but there never killed them all and only had a small percentage of killing them - so intralipids should work better.

You could ask about intralipids hun for your T cells insted of having ivig

Keep us updated hun.

XX

hun!

Liza if I were you I would consider doping Intralipids instead of IVIG, can you get your doctor to prescribe them for you? x

Like Tinks, when my tests were performed, IVIG didn't help but intralipids did. I would ask the question.... who knows? I haven't actually had treatment yet, and I only have high NK to my knowledge, so can't really help with all your test results. I hope things work out for you.

i'll be popping back to hear good news!