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  • "melanie1975" started this thread

Posts: 35

Reg: Mar 22nd 2010

Location: Essex

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1

Monday, March 22nd 2010, 3:28pm

IVF timeline

Hiya



Im new to this website but have just completed my first IVF treatment and unfortunately miscarried last week at the end of my two week wait. Then have just found out today that due to the fact that the East of england NHS trust have now changed their contract, so we now have to wait 6 months for our next course of IVF rather than three.

Right now i'm so angry and upset!! I've emailed the NHS already today to say I refuse to wait another 6 months for my next treatment but does anyone have any ideas of what we can do? We cannot afford to go private and im 35 next month so i feel like my time is running out and the NHS is holding me to ransom.



Many thanks



Mel

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Monday, March 22nd 2010, 4:33pm

Oh Mel, I am so sorry to hear about your loss and also the 6 month wait. I remember another lady on here had the same problem in having to wait 6 months. I would think one thing you can do is arrange a follow-up appt with your consultant and argue your case to them. It's worth a go! Good luck
xxx

2 ectopic pregnancies - 2005 & 2009
beautiful daughter born Sept 2010 thanks to IVF
IVF#3 April/May 2012 - BFN
IVF#4 in Oct/Nov 2012



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  • "melanie1975" started this thread

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Reg: Mar 22nd 2010

Location: Essex

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3

Tuesday, March 23rd 2010, 2:46pm

I''m just waiting for my follow up appointment to come through so i'll definately speak to my consultant. I'll do whatever I need to do not to wait 6 months. Thank you.
xx
Mel

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Tuesday, March 23rd 2010, 4:50pm

Mel are you sure?

  • "melanie1975" started this thread

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Tuesday, March 23rd 2010, 9:23pm

yes im sure. i completed my IVF with barts in london,and my husband emailed them on monday and they confirmed that theres now a 6 month wait until we can try again, it was 3 months but has changed recently. im not sure when exactly.

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Thursday, April 15th 2010, 7:23pm

IT IS DEFO ONLY 3 MONTHS INBETWEEN CYCLES HUN!!!!,YOU NEED TO GET ON THEIR CASE!!!

KEEP US POSTED WITH WHAT THEY SAY :goodluck:

:heart: MISTYKINS


MY DIARY

TTC SINCE JULY 2008
ME 34 ( couple of immune issues Inc low progestrone)
DP 40 LOW [zx151] COUNT
2 x ICSI 2010/2011 = BFN's :bawl:
Icsi no.3 with immune meds nov 2011 = BFN! :bawl:
Round no.4 FET March 2012


  • "melanie1975" started this thread

Posts: 35

Reg: Mar 22nd 2010

Location: Essex

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7

Friday, April 30th 2010, 8:03pm

Hiya,

I've just recieved feedback and the waiting time for the East of England primary care trust (Essex) is definitely 6 months. We've been told that if we feel we have enough of a case to bring our waiting time down to 3 months then to see our GP and arrange for them to take our case on. We are in the process of doing this now.

Mel
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Friday, April 30th 2010, 8:30pm

Good luck with help from your GP.
And without sounding rude, try to bring your age in as a factor as much as possible. When I had my appts and consultations at Bourn, I was told I could start a little earlier, could have 2 embies put back and have extra drug help due to being over 35.
Are you having another cycle with Barts?
Me 38, DH 39
TTC for 8 years +
1st IVF & FET= No Transfer
4 x BFN

"Some days you're the dog........Most days you're the tree"

  • "melanie1975" started this thread

Posts: 35

Reg: Mar 22nd 2010

Location: Essex

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9

Saturday, May 1st 2010, 11:13am

Billie, thank you for your reply, and for the good luck with our GP. I will update on here how we get on. I have mentioned my age (i've just tured 35) the various doctors we've seen over the course of the last year and a half but it doesnt seem to matter to them. I never thought that i'd be unable to have a child, let alone struggling at 35 to have a child. The response we had when we wrote to our PCT was that 'priority' is given to women aged 38 and over, and they added that if we felt we had a case then to see our GP and get them to support our case and forward the details on to our PCT, they will then consider bringing the 6months down to 3months. Its all so time consuming and whilst we've rushed ourselves over and over again to get things sorted, the NHS seems to take forever to respond.
Yes we are currently under Barts, and have two more cycles to go. Hopefully one of them will be sucessful, whenever it may be.

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Saturday, May 1st 2010, 4:04pm

The wait on the NHS has definate got longer as the yrs have gone on.
I see by your post, they are now saying priority to people over 38? So what about all this so called evidence that 'in general' fertility starts to decline after 35? I know this doesnt mean that when you reach 35yrs and a day old your fertility has declined instantly but you know what i mean i'm sure.....
Anyways, i would mention this 'evidence' and part of your reasons.
(Sorry just getting myself a little worked up over it all. They seem to give with one hand and snatch back with the other).

What other factors are you going to say to help your case? I think you'll probably need a few reasons before they will consider anything tbh.
Me 38, DH 39
TTC for 8 years +
1st IVF & FET= No Transfer
4 x BFN

"Some days you're the dog........Most days you're the tree"

  • "melanie1975" started this thread

Posts: 35

Reg: Mar 22nd 2010

Location: Essex

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11

Saturday, May 1st 2010, 6:42pm

I dont blame you for getting worked up, apart from my wedding day, i've never felt so stressed about things as I have with trying to get IVF sorted via the NHS.

When we originally were referred by our GP we were given a choice of hosp, the one we chose was Darent Valley as there was a short waiting list to see a specialist there to see what exactly was wrong. well it turned out that we shouldnt have been referred to that hosp as it was out of our care trust. Then the rules changed within the UK and we were caught between the old rules and the new rules, so there was a whole big mix up which eventually delayed us being referred to Barts by nearly 4 months. So in all by the time we finally started our first IVF cycle in February this year, we had been waiting on the NHS for 16months.
It was a whole big stuff up bascially and i would not wish what we went through last year on anyone! We did complain to the Medical ombussman and eventually our GP 'apologise' in January this year for the 'stress they caused us' admitting things could have been dealt with 'differently'. I wasn't happy with them because it took over 9 months to admit they were at fault., but then what I was expecting from them I don't honestly know.
I will basically add the above reasons for our case, and also mention our ages (my husband is 37 and has a very low count). I dont know if it will work but all we can do is try our best.
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Saturday, May 1st 2010, 8:54pm

Well I really do wish you loads of luck with this then. If they've already admitted a certain responsibility to it all then they should 'compensate' for time wasted.

I really do know what you mean about the waiting, but for me, its been bad since this 'so called' improvement to the east of england guidelines.
My last tx was in Dec 08 and I was supposed to start again around March/April 09 but the new ruling came in and it was delay after delay.
I've been TTC since 2002 and having tx and investigations since 2004 so i know how bloody frustrating it all is.

Hopefully you will get your turn and you will get you bfp too. xxxxx
Me 38, DH 39
TTC for 8 years +
1st IVF & FET= No Transfer
4 x BFN

"Some days you're the dog........Most days you're the tree"

  • "melanie1975" started this thread

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Reg: Mar 22nd 2010

Location: Essex

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13

Friday, June 18th 2010, 11:01pm

Well my latest update is that my GP did refer my husband and I for an appeal on getting our 2nd course of IVF in three months rather than the 6 (which is has been officially confirmed for the East of England PCT) and to date our appeal letter was sent to the wrong NHS trust (herts when we live in Essex!!) so Herts sent our letter on to the correct NHS trust however it then got lost in the post!! This was 4 weeks ago. Luckily we were given a copy of the letter and faxed it through to the correct office, who then agreed, because of all the problems we have had with the NHS over the course of the last 18months, that we had a case of an appeal and said we would hear within two weeks. Crunch time is the end of this week! Im so fed up with waiting.
Seems if you want something, you have to fight for it but after 18 months of problem after problem we seem to be running out of fight...
x
Mel

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Saturday, June 19th 2010, 12:43am

No hun, dont give up the fight. Stand and be counted and let them see how they've messed it up.
I hope you get a result and you start ASAP.
I'll be looking out for your update when you hear anything. xxxx
Me 38, DH 39
TTC for 8 years +
1st IVF & FET= No Transfer
4 x BFN

"Some days you're the dog........Most days you're the tree"

Posts: 2,472

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15

Saturday, June 19th 2010, 6:06pm

How can they say 3 months in some areas and 6 months in others?? there is no consistancy with any of this process!!!!


MY DIARY

TTC SINCE JULY 2008
ME 34 ( couple of immune issues Inc low progestrone)
DP 40 LOW [zx151] COUNT
2 x ICSI 2010/2011 = BFN's :bawl:
Icsi no.3 with immune meds nov 2011 = BFN! :bawl:
Round no.4 FET March 2012


Billie

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Sunday, June 20th 2010, 3:40pm

How can they say 1 cycle in some areas and 3 in another AND 6 months in some areas with 3 in others??

Yes it is too inconsistent but thats why we all have to fight for it to be equal across the country.

I think you'll find that eventually, all NHS waits will be 6 months between cycles.
Me 38, DH 39
TTC for 8 years +
1st IVF & FET= No Transfer
4 x BFN

"Some days you're the dog........Most days you're the tree"

Posts: 2,472

Reg: Nov 26th 2009

Location: manchester/Doncaster for 12-18m

Children: none as yet! HOPING 2012 WILL BE OUR YEAR

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17

Tuesday, June 22nd 2010, 7:48pm

Think you're probably right there billie!!.So unfair,but we have to keep fighting :box:

:heart: Mistykins


MY DIARY

TTC SINCE JULY 2008
ME 34 ( couple of immune issues Inc low progestrone)
DP 40 LOW [zx151] COUNT
2 x ICSI 2010/2011 = BFN's :bawl:
Icsi no.3 with immune meds nov 2011 = BFN! :bawl:
Round no.4 FET March 2012


  • "melanie1975" started this thread

Posts: 35

Reg: Mar 22nd 2010

Location: Essex

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18

Saturday, June 26th 2010, 10:05am

Billie, thanks for the support, we will carry on fighting but sometimes it seems endless.. but we finally have an update, albeit not much.
The NHS have written to our GP to request further info (I believe with reagards to all the mess ups we had last year) so once they get the further info from our GP it'll be added to our appeal letter and helps us fight our corner more i hope. So i have to chase our GP re the further info and make sure they return it so it gets to the NHS appeals unit by the 12th July when they next meet. So hopefully we may find out soon after that. Bit of a pain cos this unit have had our letter for 2 1/2 weeks and no one thought to do this sooner... oh well i dont know what i expected.. but least its something.

Mistykins, the woman i spoke to yesterday did mention to us about moving to another clinic, but to be honest by the time we are referred etc, and the 2nd nearest clinic to us would be Addenbrooks in Cambridge, we might as well have held out for the 2nd lot of treatment at Barts.

xx
Mel

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19

Saturday, June 26th 2010, 8:32pm

Hey hun,yep i think you have done the right thing there.

Good luck with everything xfingers

blowkiss Mistykins


MY DIARY

TTC SINCE JULY 2008
ME 34 ( couple of immune issues Inc low progestrone)
DP 40 LOW [zx151] COUNT
2 x ICSI 2010/2011 = BFN's :bawl:
Icsi no.3 with immune meds nov 2011 = BFN! :bawl:
Round no.4 FET March 2012


  • "melanie1975" started this thread

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Reg: Mar 22nd 2010

Location: Essex

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20

Monday, June 28th 2010, 8:21pm

Thanks Mistykins, feels like we shouldve have to chase each step but seems that you get nowhere if you dont. Hopefully we should hear something soon.

hope you get some good news soon. Fingers x

x
Mel

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Children: none as yet! HOPING 2012 WILL BE OUR YEAR

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21

Wednesday, June 30th 2010, 4:30pm

Thanks hun :xxx3:

Hope you herar some news soon and good luck with it :pray: you get your :BFP:

blowkiss Mistykins


MY DIARY

TTC SINCE JULY 2008
ME 34 ( couple of immune issues Inc low progestrone)
DP 40 LOW [zx151] COUNT
2 x ICSI 2010/2011 = BFN's :bawl:
Icsi no.3 with immune meds nov 2011 = BFN! :bawl:
Round no.4 FET March 2012


  • "melanie1975" started this thread

Posts: 35

Reg: Mar 22nd 2010

Location: Essex

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22

Tuesday, July 13th 2010, 9:16pm

well the latest is we found out today our appeal has been denied on the basis that the 'senior consultant' didnt feel that us waiting 16months for our first IVF due to the various 'admin cock ups' were enough to put to a panel. So all our effort has been wasted yet again. I beginning to feel that the NHS has it in for us. We waited 10 weeks just to hear todays news, and I wouldnt have minded if it had got to a panel and they denied it, least we wouldve felt our case was listened to. So now I guess we wait and start our second IVF in September. Thats if nothing else goes wrong!!

x x
Mel

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Billie

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23

Wednesday, July 14th 2010, 8:40am

Well.........what a total crock!!
Their cock up and they wont take responsibility?? Mmmmmm am I surprised? Not a bit.
I still think it was worth trying though hun as sometimes, just sometimes there are prople with slightly different attitudes to it all.

I know how frustrating the wait is though. Its now been 20 months since my last cycle, 14 of which were on the NHS timeline. (Last 6 months delay due to medical investigations). So I know how slow they are.

So you have predicted dates for september?
Good luck hun, with starting when they said and getting your BFP. Hopefully you'll not have to go through this anymore.
Me 38, DH 39
TTC for 8 years +
1st IVF & FET= No Transfer
4 x BFN

"Some days you're the dog........Most days you're the tree"

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