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JenBlack

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  • "JenBlack" started this thread

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Reg: May 19th 2009

Location: Bradford

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1

Friday, May 22nd 2009, 10:36am

Endo Pain?

Hi

I was wondering if someone could help me. I have been TTC for over three years with one failed ICSI due to poor egg quality.

When I had my laproscopy they found a small patch of endo on my uterus artery ( i think) and said it was nothing to worry about. Im just wondering if this is whats causing me to have dull pain for five days in middle of my cycle and a week before my period. I have awful headaches and a constant dull ache in my lower stomach - painkillers dont help.

Just wondering if anyone can help - Thanx
Jen

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Friday, May 22nd 2009, 12:03pm

Hi Jen

How long ago did you have your lap? Was it an endo specialist that performed your lap?

There was a year and 6 weeks between my laps and my endo had gone from minimal scattered endo with polycystic ovaries according to the first surgeon, to stage II to III widespread endo with endo on my ovaries according to the endo specialist that performed my second lap.

I have had pain mid cycle and before af for years, it had got much worse between my 2 laps so much so that I hadn't had a pain free day for about a year, painkillers do very little to me too. The most effective painkiller is codeine which I get on prescription, it doesn't get rid of the pain but makes it far more bearable. I take it with paracetamol and nurofen, with my consultant and GP's knowledge and consent, a mixture of painkillers seem to work a bit better for me.

I hope you get some answers and a solution to your pains.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

JenBlack

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Friday, May 22nd 2009, 1:57pm

Aw thanks for your reply. I got the lap done about two years ago now so it could have spread like yours has. It wasnt a endo specialist but a fertlity doctor that performed the lap..........so I dont know what to do now, do I just go back to my normal doctors to get another appointment with an endo specialist?

Do you have any children??

The pain is awful, its getting worse. ARe you pain free now??

xxx :sadface:

JenBlack

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4

Friday, May 22nd 2009, 1:58pm

Sorry I just see you do have children - do you mind me asking hwo long you tried for??

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Friday, May 22nd 2009, 5:16pm

No I haven't got any children yet but I am currently pg and being pg has all but made my endo pains disappear, I haven't felt this good for about 2 years. We tried for just over 4 years, this is my third pg but unfortunately my other 2 pg's ended in m/c. I was due to have a complete resection of the peritoneum in a hope to get rid of my endo, I was also told that assisted conception was the way ahead for us to get pg but fortunately I got pg naturally again.

I think asking your GP about an endo specialist would be a good place to start or ask your fertility consultant if he/she can refer you to one. The only reason I got to see one was because we moved and there are a few endo specialists at my new hospital, after having a chat with her she wasn't convinced by the other surgeons report after my first lap so asked if she could perform another lap.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

Ros

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Monday, May 25th 2009, 6:31pm

Hi Jen, I agree with Polly, the best person to do your lap is an endo specialist, you can often google the names of the doctors available and see what they specialise in, I've done that a few times.
I have a feeling that my endo has spread since my last op as I have alot of pain for the first half of my cycle, I'll be going for another lap in the next year or so if this cycle doesn't work. I've also tried a cocktail of drugs like Polly (under full instruction from my cons) so maybe you could ask your cons about that too .
Best of luck, let us know how you get on x

After 5 years of endo surgery, clomid, 2 x MM/C, 2 x ICSI cycles and 1 PGD cycle,
beautiful twin girls born 8th Feb 2010, we are so grateful

JenBlack

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Thursday, June 4th 2009, 2:14pm

POLLY: Thats fanastic you are pregnant - congratulations!!!! You have definetly giving me inspiration.......

Did you feel pain the month you found out you were pregnant? I will have to go and see my GP and get referred to an endo specialist before we do IVF again. My partner isnt too keen on doing it again so Ill just have to see.........

xx

This post has been edited 1 times, last edit by "JenBlack" (Jun 4th 2009, 2:14pm)


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Thursday, June 4th 2009, 4:36pm

Hi Jen

Yes I had my normal endo pain with this pg too, I had to go to the EPU for a scan at 8 weeks because the pain was very bad and I thought I was losing our baby. I still get odd pains but probably no more than any pg woman would get.

Please let me know how you get on. I really hope that you get your BFP soon.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

Ros

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Thursday, June 4th 2009, 5:23pm

Hi Jen, I have to say that the first time I had a BFP I had no endo pain that month, it was pure bliss. I have heard lots of people say that endo pain goes away in pregnancy, obviously this isn't the same for everyone. Good luck! x

After 5 years of endo surgery, clomid, 2 x MM/C, 2 x ICSI cycles and 1 PGD cycle,
beautiful twin girls born 8th Feb 2010, we are so grateful

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Monday, June 7th 2010, 4:27pm

Sorry to crash your post - is the pain like really really strong ovulation pain - because I get pain starting on about CD10 lasting until CD16 and this is not ovulation pain, this is AGONY - I also get it around my period but moreso mid cycle....
:BFP: ICSI Nov 10 = MMC at 10 week scan Jan 11
:BFP: 28/3/11 - natural Ectopic 8/4/11
:BFN: FET 22/8/11
:BFN: ICSI Jan 12
:BFN: FET Oct 13

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11

Friday, June 18th 2010, 10:53pm

Hello Ladies....

How is everyone.. I have only recently found out that I have Endometriosis.. I've not even had my follow up yet.. Recovering from my first Lap 9 days ago.. Feeling ok but sore & tired.. Used up a load of holiday off work...

I am trying to find out what I can about this condition. I have read there are various levels of Endometriosis & symptons vary from lady to lady...

So just looking for some info really...

Hope you're all well x x x [zx127]



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Saturday, June 19th 2010, 9:26pm

Hi Kerrie

I am sorry to hear of your recent diagnosis.

I looked on the web a lot after my diagnosis until a friend recommended the book Endometriosis for Dummies, it's a really interesting informative book without medical jargon. There is so much to endo that it's hard to know what to say about it, peoples symptoms vary massively as does the effect of it on peoples fertility. I would say having a really knowledgeable consultant or even an endo specialist can make a massive difference in how you and your symptoms are are treated.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

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Wednesday, August 18th 2010, 11:41pm

Thanks Polly

Been a while since i been on here!!! I've been going through a hard time recently..load of time off work & depression also... I am just waiting for my follow up appointment with FS... Monday 23rd Augusy is my D-Day!
I'm counting down the days. I can only hope it goes well. The follow up letter that I got says, diathermy to Endo, freeing of adhesions & partial release of ovaries.. Don't sound good eh!!!

I had a brief chat with doc after Lap, but I was sooo smashed on the Morphine I have no idea what she said. My other half was there but he didn't take in too much (which I was not happy about)...

So I'm just waiting waiting waiting waiting. I feel like I'm at a cross road, Monday may define which path I am on. If you get my drift..

They did say we should be onto our first IVF before xmas. I hope that's true.

Glad to hear all your success stories x x x . .



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Thursday, August 19th 2010, 11:07am

Hi Kerrie

I am sorry you're having such a horrible time. :sadface:

It sounds like they did some work on you and that can make a huge difference even if you still have the pain. 5 months before I got pg with our DD I had diathermy to remove endo from my ovaries, there is still a lot of endo left on my ligaments and peritoneum, I was due to have a complete resection of the peritoneum last year but fortunately got pg before the op. I was also told that assisted conception would be the only option for us, which luckily turned out to be wrong as our DD was conceived naturally.

I really hope your appointment goes well on Monday, please let me know how you get on.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

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Reg: Jun 27th 2009

Location: Liverpool

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15

Sunday, August 22nd 2010, 5:04pm

Hi Kerrie,

Just thought you might like a positive story. I had a lap and dye in January 2009 after years of heavy periods, extreme pain, backache etc. which I just put down to being unlucky (some people suffer, some don't) with not one positive pregnancy test. I was the last one left on the ward and the nurse sat down on the edge of the bed and told me I had Stage IV endo, I was absolutely riddled with it and that my left tube was blocked.
February 2009 saw the consultant who'd performed the L & D, he added to the above that I hadn't been ovulating when I did the bloods, and I had two options, if I wanted children it would have to be IVF, if it was pain relief it would be a hysterectomy, trying to treat the endo would be pointless, it would be 'scratching the surface'.
Jump to June 2009, we started our first cycle of IVF, and got a positive pregnancy test on 31st July 2009.
10th April 2010 our daughter Charlotte was born!
I don't take a single day with her for granted because I know how incredibly fortunate we've been through all of this.

xxxxxxxxxxxx

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Reg: Nov 15th 2009

Location: Folkestone Kent

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Tuesday, August 24th 2010, 11:41pm

Thanks for your post Sylvester ;)

Congratulations on the safe arrival of Charlotte.

I am now waiting for referral letter from clinic!!! Argh!! My follow up was yesterday so sent maybe today???

Got alot ahead I know. I can only hope & prey that it works for us also..

Big hug xxx



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Tuesday, August 24th 2010, 11:46pm

Also Polly Pocket, thank you sweety..

I am told that I have (my RE words) mild to moderate endo & pcod & I don't ovulate.. But all tests up to date so she sent the referral to clinic to start IVF!!!!!

I'm so excited yet terrified at the same time... It's a strange mixture of elation & dread at any more waiting.. But hey an expert at it now (well almost ;) )

Hope you're well xxx



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Tuesday, August 24th 2010, 11:47pm

Pcos not pcod x



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Wednesday, August 25th 2010, 1:58pm

Fingers crossed you hear something soon so you can get the ball rolling! xfingers

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

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20

Wednesday, August 25th 2010, 11:12pm

Thanks. Fingers crossed xxx






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