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lilygirl

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Saturday, March 14th 2009, 9:04pm

East Anglia new funding contract

hi all

for those in east anglia, this was in sat 14th march 2009 EDP, page 17


King's Lynn team takes over fertility services


13 March 2009 17:12

Fertility treatment across most of Norfolk will be run by a team from the Queen Elizabeth Hospital in King's Lynn from next month.

Until now the service for central Norfolk has been run by Bart's hospital in London at an outreach clinic on Princes Street in Norwich, while the QEH and James Paget University Hospital in Gorleston have each run the service in their catchment areas.

From April 1 the QEH will be taking over the Norwich clinic and will be offering fertility services in both King's Lynn and Norwich. The JPH will carry on providing the Yarmouth and Waveney service - although because patients can choose where they are treated, Yarmouth patients can choose to go to Norwich, or vice versa.

The new contract is for level two services, which cover hospital treatment such as tests on fallopian tubes and for polycystic ovaries, and some surgery like laparascopy and endometriosis treatment. Specialised level three treatment, including IVF, will still be done in London. People who need it be referred there from the level two service in Norfolk. Around 400 people a year will be treated by the QEH teams and an estimated 200 of those will be referred on to London. GPs will continue to do first-stage or level one treatment, such as tests for ovulation and tests on sperm.

Hamed Al-Taher, lead clinician for fertility services at the QEH, said: “The difference people will notice is a shorter journey, individualised treatment and direct nurse contact. Hormonal tests and tube tests will be done in one go to reach a diagnosis quicker and then start treatment directly. They will have a direct telephone to our specialist nurse if they have any queries.”

Helen Izaat, contracts manager for NHS Norfolk said: “For the last 13 years NHS Norfolk has had a contract with Barts and the London NHS Trust, which has been very successful with over 1,000 live births. However it has always been the intention to return level two services to a provider within Norfolk.

“Following a successful tendering exercise by NHS Norfolk, the contract has been jointly awarded to the James Paget Hospital and the Queen Elizabeth Hospital. These two trusts will be accepting referrals from Monday for services to start from April.”


lily xx

This post has been edited 1 times, last edit by "lilygirl" (Mar 14th 2009, 9:04pm)


Mavis

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Saturday, March 14th 2009, 9:44pm

Thanks so much for adding this info Lily - very helpful!

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Saturday, March 14th 2009, 10:21pm

Thank you Lily

:bawl: :bawl: Kings Lynn!!! What a NIGHTMARE!!!

Norfolk PCT told me that the hospital taking over the contracts had insisted there should be a clinic in Norwich. :sadface:





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Saturday, March 14th 2009, 10:23pm

Whoops!!!! Just read it again - there will still be a clinic in Norwich!!! :happy:





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Saturday, March 14th 2009, 10:26pm

Very useful Lilygirl, thank you

I have copied your info into the clinic chat section of the forum


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Sunday, March 15th 2009, 7:05am

what about Ipswich in Suffolk? I'll find out next week. if they won't tell me over the phone I'll go in person to the PCT, ut's only 5 mins away from work... :snigger: they'll have to tell me then, won't they? Or maybe they'll call the police... :snigger:

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Sunday, March 15th 2009, 10:27pm

Quoted

Originally posted by Maria72
what about Ipswich in Suffolk? I'll find out next week. if they won't tell me over the phone I'll go in person to the PCT, ut's only 5 mins away from work... :snigger: they'll have to tell me then, won't they? Or maybe they'll call the police... :snigger:


i'm thinking Ipswich isnt doing it. you're gonna have to go to norwich, kings lynn or gorleston.
you need to double check though esp who got what clinic. i know only 6 clinics were getting bourn so i assume (probably a mistake to do that) that some ger ISIS too.
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Tuesday, March 17th 2009, 2:34pm

:hello:
hello lovely ladies, I am in Suffolk and could go to James Paget NHS but at the mo paying private to go to Bourn, as it nearer etc etc.....i know the nurse said to me last week that they have put a tender into Suffolk, how and when could i find out if i could go to Bourn instead of James Paget? if they are succesfull i mean in tendering....
Does that all makes sense?!?!hahahahahaha
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Tuesday, March 17th 2009, 3:39pm

The way I found out what was going on in Norfolk, was phoning Norfolk PCT directly and asking to speak to the relevant person.

That way, I got information that neither my clinic or GP had been told!!! :rolleyes:





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Tuesday, March 17th 2009, 3:43pm

?(
Thanks Calypso, being thick, what is PCT?!?! xx
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Thursday, March 26th 2009, 6:11pm

PCT= Primary Care Trust

Still no Suffolk news.... :rant:

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Friday, March 27th 2009, 3:47pm

:bawl:
Come on Suffolk news!!!
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Friday, March 27th 2009, 3:51pm

Just found this on PCT web, is this anything?!?!?!

We have revised the selection process to ensure that we comply with best practice and the very latest guidance on EU procurement rules. The implications of this are that we will be unable to implement the new policy and new contracts until the 1st May 2009. We apologise for this unforeseen delay in the process and would like to emphasise that we will ensure no-one will be disadvantaged by this delay. If you have any queries or concerns, please contact us on 01707 369763 or email us at subfertility.enquiries@eoescg.nhs.uk
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Friday, March 27th 2009, 5:19pm

Hi betty boop,
I have called the PCT several times and last time they told me they won't be able to implement the new rules till May cos they cancelled a meeting in early March. You can find out after the 20th of April-I'll keep FZ posted.

If you want to ring and pest as well:
Christine Foster Suffolk PCT
01473770068 or emailr her (she doesn't reply though but she rings back) on christine.foster@suffolkpct.nhs.uk

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Monday, March 30th 2009, 11:07am

:happy:
Thanks for that sweetie, i will email her after the 20th APril, but if you can keep us posted and if i see anything also!! xxx
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Monday, March 30th 2009, 7:12pm

No worries. i think the more we hassle the better..... :innocent:

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Wednesday, April 8th 2009, 8:54pm

Hi All

I'm registered with Barts and the Princes St Clinic in Norwich. Although Kings Lynn and James Paget look to have the contract for the diagnostic stages and will be taking over princes st, this still leaves people like myself needing hi-tech levels such as IVF in limbo and losing out altogether as we will now have to go direct to Barts for all treatment including scans and bloods which were previously done at Norwich. How they worked out that this is a better option I do not know?
I have been on to Christine Foster to and have had a brief reply and as yet I am still awaiting a more detailed response (if I get one). I am now starting IVF and as of May 1st need to go to Barts for everything. Anyone else having this problem?

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Tuesday, April 14th 2009, 1:27pm

:happy:
Hi Geordie, I don't have any exp of the above, but my area is to go to James Pagent, and if im honest, im going private at Bourn, its quite a way for me, and with scans etc etc its way to much hassle...its such a shame that we all can't find somewhere closer.....Looks like we are starting IVF around the same time sweetie xx
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garfield

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Sunday, April 19th 2009, 6:44pm

hi all
i'm registered with barts and the norwich clinic, we didn't find out there was anything going on until april 7 when we had our last appointment. i'm in the same boat as you now about to start ivf beginning of may, won't find out where i have to go to have my scans until tomorrow, hope its not barts that will cost a fortune!!

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Monday, April 20th 2009, 6:47pm

Still no news from Suffolk! :rant: I'll let you know ASAP.
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Monday, April 20th 2009, 8:10pm

I had my appt at Norwich clinic today. I've started down regging and I've got to go to Barts for my scans! NIGHTMARE!!!! It means a whole day off work for each scan!!! Still haven't told work yet. Don't know how I'm gonna get round it!!!





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Jan 08 Fibroid removed. May 08 IUI - BFN :sadface:
Nov 08 IVF 7 eggs (just one fertilised :sadface: - BFN
May 09 ICSI 1 - 7 eggs (two fertilised) BFN :sadface:
Aug 09 Another fibroid removed
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Monday, April 20th 2009, 9:04pm

You might have to tell them about the tx... Or you could say thay you require a tx that you can only have there as it's not available everywhere.
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Monday, April 20th 2009, 9:08pm

They know about the TX. They just don't know I'm gonna have to keep going to London all the time! X(





Life is not about waiting for the storm to pass, but about learning how to dance in the rain



Jan 08 Fibroid removed. May 08 IUI - BFN :sadface:
Nov 08 IVF 7 eggs (just one fertilised :sadface: - BFN
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Monday, April 20th 2009, 9:15pm

Are you going to tell them?

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Wednesday, April 22nd 2009, 7:25pm

hello
on my quest to find out more about my treatment start date with norwich clinic i was told that they were suppose to be closing at the end of next week? anybody else heard this?

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Wednesday, April 22nd 2009, 9:22pm

I thought this week, but nobody has rang me back... :mood:

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Thursday, April 23rd 2009, 8:33pm

it took me four days to get through ,four messages and nobody had rang be back !!! i spoke to jane today and she told me they are closing next thursday and have passed all medical notes to barts. she told me i'd have to ring barts myself and sort this out. im suppose to start injecting in 13 days and barts won't answer the phone!!!

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Thursday, April 23rd 2009, 8:52pm

Snap! My injections are supposed to start on Sunday but no-one at St Barts will answer the phone so I have no idea whats happening or whether I should go ahead.
Norwich have been great and helped as much as poss, but they have been treated really badly themselves and don't seem to be kept in the loop anymore.
I'm psyched up ready to go- please don't cancel my treatment, pleeeeaaaasseee...

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Friday, April 24th 2009, 5:23pm

Well I haven't heard a thing! :comp: At least you Norfolk ladies know where to go, I don't!

I'll stick with Isis..... humph

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Friday, April 24th 2009, 7:05pm

Gee Wizzz I am worried now, I am in the middle of D/R and due my baseline scan at Norwich on wednesday 29/04. I hope my appointment is still valid. I haven't got my stimm drugs yet either as I was due to pick them up on Wed? Better give norwich a call first thing Monday.

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Saturday, April 25th 2009, 9:55am

There we go:

Go to:

http://www.escg.nhs.uk/default.asp?id=12…y=ivf#highlight


Then click on
link at the bottom of the page under further info

Then also read the document and the PDF file under associated documents

Why on Earth did they pick Oxford and Leicester?? They're not exacly close are they?

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Saturday, April 25th 2009, 10:23am

ps- This way the waiting list for Bourn is gonna be miles long :sadface:

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Saturday, April 25th 2009, 11:22am

hello
when i spoke to jane at norwich she said that they weren't doing anymore scans after the 30th so i think you might be ok. good kuck trying to through. im still waiting for somebody to ring me back from norwich, and barts still won't answer the phone!!!

garfield

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Sunday, April 26th 2009, 7:16am

Hi Nicola,

have you started? If not maybe you wanna go to your GP.

But that's what I mean, we (east anglia ladies) are only gonna use Bourn and the London clinics. Can you imagine the waiting time? What about the level of care? Now it's probably not worth going to Bourn for a private tx.

They don't eve answer the phone and return calls!! :rant:

I think it's good we can have 2 tx. Also it seems that if you have a private tx it won't affect your other nhs goes, as long as you don't have more that 5 in total.

BUT I think we are also worse off cos they closing down lots of smaller local centres and people will have to travel more. I mean who's gonna go to Oxford for tx?? It's about 3 hours away from Ipswich... X(

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Monday, April 27th 2009, 3:04pm

?(
Hi ladies how confusing is all this! for my tiny brain anyway!!! i am private with Bourn Hall, i could go to James Paget, but chose not to (NHS) but i cant actually see that on the list with the link! so maybe that isnt an option anymore, I think i'll write to my NHS specialist and see what she says, after getting treated so lovely at Bourn i don't want to go elsewhere, hence saving so hard X(
Thanks for keeping me/us up to date xxx
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This post has been edited 1 times, last edit by "Bettyboop" (Apr 27th 2009, 3:05pm)


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Monday, April 27th 2009, 5:37pm

Hi Betty,
I got told I can choose which one I go to. I'll find out more from my GP later on tonight. Bourn is good. Just too far for me. I'm just worries that they'll get too busy with this new contract. Good luck.
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Monday, April 27th 2009, 6:42pm

Hi everyone, im due to start ivf soon been attending James Paget Hospital for loads of tests and we finally have our referal, set to go back to hospital on the 12th so im sure il find out the next step then! Iv been told that we can choose aswell so im hoping Bourne Hall is on our list iv heard its really good and staff are really nice. Has any been to Bourne yet? :D

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Monday, April 27th 2009, 7:15pm

Hi
I go to Bourn Hall, Its a lovely place, Iv found the staff so friendly and supportive.
LYNSEY xx

After x3 ICSI X2 FETs resulting in :BFN:s Apart from the last one being a faint :BFP: (only lasted a day or two) I was turned down as an egg donor so we called it a day with TX
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39

Monday, April 27th 2009, 7:26pm

Hi Ladies
Did somebody on here email me last week about Barts/Princes Street?
I've deleted it by mistake!

If it was you, can you PM on FZ?

Ta!

xx





Life is not about waiting for the storm to pass, but about learning how to dance in the rain



Jan 08 Fibroid removed. May 08 IUI - BFN :sadface:
Nov 08 IVF 7 eggs (just one fertilised :sadface: - BFN
May 09 ICSI 1 - 7 eggs (two fertilised) BFN :sadface:
Aug 09 Another fibroid removed
Nov 09 ICSI 2 - 1 mature egg (it fertilised) BFN :sadface:

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40

Tuesday, April 28th 2009, 1:18pm

:happy: :happy:
Hi Siobhan, i attend Bourn, i cant fault it, the people are lovely as is the place, i must admit, although it is costing us quite a bit, i wouldnt want to go anywhere else, i did write to my NHS specialist yesterday asking rather than James Paget, (location is not ideal) could i now go to Bourn?!? i know a friend who went to James Paget and then some of the treatment was done at Bourn NHS....
good luck everyone xxx
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Tuesday, April 28th 2009, 7:04pm

Hi,
I had my first IVF at Bourn and yes, it is lovely.
Yesterday I went to the GP who has referred me with the new rules to Bourn. See what the waiting list is like. If it's quicker than Isis then I'll do Bourn.
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Wednesday, April 29th 2009, 7:56am

http://news.bbc.co.uk/1/hi/england/8022626.stm

A bit misleading as it says 6 attempts. It is 3 fresh cycles, 6 ET in total, at least that's what the PCT told me.

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Wednesday, April 29th 2009, 7:58am

ps: this is the official link:

http://www.escg.nhs.uk/default.asp?id=121

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Wednesday, April 29th 2009, 11:24am

Well, I've been trying to contact Bourn hall all morning. The lady at reception said they have been inndated with calls. The patient liason officer is always engaged. It's a nightmare! X(

garfield

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Wednesday, April 29th 2009, 7:32pm

hi
as i haven't been able to get through to london i phoned my gp today , didn't know what else to do. told him whats happening and he has faxed my info to barts gave my number and hope they ring me. i have 7 days till i start injections, im so fed up now, think i've given up hope of starting this month. so much for not getting stressed while doing IVF!!!

garfield

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46

Thursday, April 30th 2009, 9:07am

Hi Garfield,

Don't give up just yet. I started my downregs on Sunday while i the same position as you. I finally,finally managed to speak to barts yesterday who have now booked in my scans in London.
V stressful but all systems go now. I'm keeping my fingers crossed for you too.

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Thursday, April 30th 2009, 5:47pm

I'm sorry Garfield. i would say, keep trying if you can.
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48

Wednesday, May 6th 2009, 7:26pm

Well now that the Norwich clinic closed last week, I attended Barts today for my first follie scan. It was horrific!!!!!!!!! The scan which I had been told only last week was booked for today was not and we therefore had to wait two and a half hours to be seen. It was in utter chaos. There were that many people there we initially had to stand!

:bawl: :bawl: :bawl: Please bring back the clinic at Norwich :bawl: :bawl: :bawl:

I miss the quiet, sedate waiting room, the friendly and attentive scans and the quick and friendly appointments with the nurses. Boo Hoo. I have to do it all over again on Friday. I am knackered!

The only plus side I suppose is the staff at Barts were friendly and helpful enough once we were seen too and they got back to me really quickly with changes to stmm dosages. Its just so trashing!!! Good luck to the rest of you poor souls from East Anglia who now have to do the same!!!

IUI-Mar07 / IVF-Jul07 / FET-Jan08 / IVF-May09 - ALL BFN
IVF-Jun10 - :BFP:



Calypso

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Posts: 5,464

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49

Wednesday, May 6th 2009, 7:50pm

Oh Geordie! What a pain being made to wait all that time! X(

I had my first scan there yesterday actually, and all the reception staff were peed off because there seemed to be lots of us turning up from Norwich and nobody had told them! There was some allusion to the fact that Liz was habitually giving Norwich patients appointments, but not telling the staff at Barts!

I was lucky in that I didn't have to wait too long (although I had a pretty disastrous scan). I also thought it was good that I actually got to speak to a Doctor and ask him to explain decisions around my treatment rather than asking the Nurses to guess what the Doctors were thinking.

It was a knackering day, and I did miss the friendliness of Norwich, but in a way, I felt as though I was right in the midst of all the science that was going to treat me (if that makes sense).

We'll plod on!!! Good luck!!!
xxx





Life is not about waiting for the storm to pass, but about learning how to dance in the rain



Jan 08 Fibroid removed. May 08 IUI - BFN :sadface:
Nov 08 IVF 7 eggs (just one fertilised :sadface: - BFN
May 09 ICSI 1 - 7 eggs (two fertilised) BFN :sadface:
Aug 09 Another fibroid removed
Nov 09 ICSI 2 - 1 mature egg (it fertilised) BFN :sadface:

My journey is now over

Posts: 328

Reg: May 12th 2007

Location: Norwich

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Thursday, May 7th 2009, 10:33am

Hi Calypso

Had to laugh as it was Liz that had booked mine. Hopefully it will get more organised now they have a hand on the situation. The poor Nurses were as stressed as I was.

I agree with being in the midst of it all too. Thats the first time I've seen a Dr since I was first referred many moons ago so it is better in the long run but if this cycle doesn't work for me I definately couldn't continue with Barts, I know they get results but its like going to a cattle market.

Sorry to hear about the scan. Hope you're okay!

IUI-Mar07 / IVF-Jul07 / FET-Jan08 / IVF-May09 - ALL BFN
IVF-Jun10 - :BFP:






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