You are not logged in.


Unread posts

Dear visitor, welcome to FertilityZone . If this is your first visit here, please read the Help. It explains in detail how this page works. To use all features of this page, you should consider registering. Please use the registration form, to register here or read more information about the registration process. If you are already registered, please login here.

kar1

MEMBER

  • "kar1" is no longer a member of FZ
  • "kar1" started this thread

Posts: 12,830

  • Send private message

51

Thursday, October 16th 2008, 5:50pm

the worst email i got from her

was when i asked if results were ready and all i got was

NOT YET
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

    United Kingdom

Posts: 15,284

Reg: Sep 24th 2006

Location: Up to my armpits in ironing

Children: Three gorgeous daughters!

Thanks: 100 / 90

  • Send private message

52

Thursday, October 16th 2008, 5:58pm

Are you going to complain about the way you've been treated? This is like the icing on the cake, what a shite way to treat any patient.

Are you going to phone up to see whats going on?

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

kar1

MEMBER

  • "kar1" is no longer a member of FZ
  • "kar1" started this thread

Posts: 12,830

  • Send private message

53

Thursday, October 16th 2008, 6:01pm

i am considering putting in a complaint if i get no call tonight

nah im not gona bother calling, what is the point

phone ringing
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

    United Kingdom

Posts: 15,284

Reg: Sep 24th 2006

Location: Up to my armpits in ironing

Children: Three gorgeous daughters!

Thanks: 100 / 90

  • Send private message

54

Thursday, October 16th 2008, 6:07pm

It really annoys me that you're being put through this, how very dare they!! If they haven't got time to give you the full hour call you were promised then the very least they can do it phone you to rearrange a suitable time.

I really hope you do get a call soon.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

kar1

MEMBER

  • "kar1" is no longer a member of FZ
  • "kar1" started this thread

Posts: 12,830

  • Send private message

55

Thursday, October 16th 2008, 6:37pm

im deffo not going for full immune tests



just had my telephone consultation and i feel happy with her advice



here is my questions and answers



1. what does a level of 6.2 tell you?



that i have raised nk cells but not too bad

2. Did you test for the 16+/- marker? am i right it think the 16+ is killing power?what does this tell you



she tested for cd 56 nk cells which were 6.2, the 16+marker is killing power and that value is 0.6.

3. What makes nk cells high?



they don't really know

4. Could this be the reason for recurrent implantation failure?



yes she thinks this is the reason

5.Would you prescribe anything other than steriods? humria/IVIg?



no , she can't do this even if i wanted it and then went on to say how because there is no proof at the moment she would advise against it, there is a dr in america that is doing a trial and the results are out at the start on next year and if IVIg is shown to work she will advise me to remortgage the house and go for it until then she feels it would be a waste. i agree with her on this.



she said the problem with lots of immune treatment is they are never sure which one worked.

6.what presentage would the steriods lower the nk cells by?



they will lower my levels to a safe value

7.would 0.75mg of dexamethsone been too little to have an impact on the nk cells



she said she was pleased knowing that i had only taken this dose as she thought i had a high dose, 0.75 wouldn't lower my nk cells

8.what is the different between dexamethsone and prednisone?



dexamethsone crossed the placenta and prednisone doesn't so less risk ( i always thought it was the other way round)

9. when would i start the steriods, at stimms, ec or et, bear in mind i will be having blastocyst transfer?



at tranfers, she doesn't wana stop any of the stickness of the lining which can happen with over use of steriods, she wants my hopefull good blast stick before the drugs kick in

10.Should i start taking fish oils?



yes this could be good

11.Can i have a copy of your analyse?



yes she will write with all details and will be in touch when the ivig study is done or when any other recurrant implantation proof is available, implantation is harder to solve than recurrent miscarriage

12. Do you do any other immune test?



not at the moment, this biospy is one good test rather than lots looking at the same thing. most cd56 cells in the blood system are cd56+16+ in the uterus most are cd56 16- its the +16 in the uterus that are the problem

13, would you advise any?



no
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

JENSQUI

Megastar

Posts: 7,427

Reg: Feb 26th 2007

Location: Edinburgh

Children: one very special daughter

  • Send private message

56

Thursday, October 16th 2008, 6:57pm

that all sounds great Kara and I think if I listen really carefully I can hear a sigh of relief coming all the way from Wales after today's worrying. Does it make you feel more positive about your next cycle after hearing all of this?

xx


me 38, DP 44, ttc since 2005
BFP May 07 - HB seen @ 8 wks but CRL only 7 weeks, m/c @ 9 wks
BFP Jan 08 -m/c @ 11 wks (D&C)
BFP Jun 08 - early loss
BFP Dec 08 - HB & CRL ok @ 8 wks, but sac too small, m/c @ 9 wks
BFP Apr 09 - Martha born 9th Jan 2010
BFP Feb 12 - Eliza born 13th Oct 2012

kar1

MEMBER

  • "kar1" is no longer a member of FZ
  • "kar1" started this thread

Posts: 12,830

  • Send private message

57

Thursday, October 16th 2008, 7:00pm

it makes me feel very postive about the next ivf

bring it on i say
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

bubble

Megastar

    United Kingdom

Posts: 12,910

  • Send private message

58

Thursday, October 16th 2008, 7:01pm

Quoted

Originally posted by kar1
it makes me feel very postive about the next ivf

bring it on i say


You go girl! I'm glad it brought you answers and hope for the future.

x

ttc since July 06. 8 cycles of clomid. BFP on cycle 5 (Dec 07) ended in m/c at 9.5 weeks. Second BFP on cycle 8 (May 08)




KT75

Newbie

Posts: 48

Reg: Sep 6th 2008

Location: Scotland

Children: Not yet.

  • Send private message

59

Thursday, October 16th 2008, 9:02pm

I'm so glad you have answers and a clear way forward. You must be filled with hope. When do you start IVF again? Is DH happy too?

Do you happen to know what her opinion is on whether NK cells in the blood are a good marker of NK cells in the uterus?

Posts: 666

Reg: May 28th 2008

Location: Falkirk, Scotland

Children: one stepson ..& one miraculous wee boy!!!!!!!

  • Send private message

60

Thursday, October 16th 2008, 9:02pm

Yay!!!!!! That all sounds so promising! I'm so pleased!!
Every best wish for your next round of IVF :happy:
Vxxxxxxx!


10 Losses:
Aug07@11wks
Oct07 Dec07 Mar08 & Apr08 - biochemical pregs
June08 @7wks (baby aspirin)
July08 & Aug08 - biochemical pregs
Oct08 @6wks (cyclogest)
Feb09 @6wks (cyclogest & baby aspirin)


...trying Traditional Chinese Medicine & accupuncture just now!



My Diary



    United Kingdom

Posts: 15,284

Reg: Sep 24th 2006

Location: Up to my armpits in ironing

Children: Three gorgeous daughters!

Thanks: 100 / 90

  • Send private message

61

Thursday, October 16th 2008, 9:11pm

I'm glad she phoned back and you got good honest answers.

Here's to the future :wine: may all your dreams come true soon.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

kar1

MEMBER

  • "kar1" is no longer a member of FZ
  • "kar1" started this thread

Posts: 12,830

  • Send private message

62

Thursday, October 16th 2008, 9:13pm

dh is happy but i think he feels im getting my hopes up lol well yeah i am

she did say something about nk cells in the blood but she feels looking in the uterus is the right place
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

Maria72

MODERATOR

    Italy

Posts: 13,752

What's Up?
ohffs

Thanks: 105 / 45

  • Send private message

63

Thursday, October 16th 2008, 9:32pm

I think it's all btter when they have an idea of what's happening. Now that they know they can improve your chanches. thumbup




FERTILITYZONE



MEDHURST – PROUD HOSTS OF FERTILITYZONE