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6,851

Thursday, February 9th 2017, 8:06am

Hi Rodeogirl,

I am so sorry to read your post why do some doctors not listen to patients and also information they have been given. You must have been agony. It's disappointing to say but I would be putting in a complaint for sure. I am lost for words. Take care and look after yourself xxx

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Reg: Jan 26th 2017

Location: Scotland

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6,852

Sunday, February 12th 2017, 7:29pm

Thanks everyone for welcoming me, and some really useful info on the website! I've got a bit of an idea from previous research and to an extent my degree (I'm a dentist so did a block on the reproductive system - seems strange I know!). I got the questionnaire last weekend and completed it and returned it the same day. How long did people wait for a letter to come with their first appointment date? I know I'll likely have a few months to wait for the appointment but wondered if I'll get the letter soon or not until nearer the date?

Rodeogirl I'm really saddened to read about your experiences, and hope things look up for you soon! Xxx
Trying for number 1 with my amazing husband

Posts: 55

Reg: Aug 13th 2016

Location: Elgin, Scotland

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6,853

Wednesday, February 15th 2017, 1:24pm

OMG I can't believe how you have been treated Rodeogirl! It's really scary to think that we put all of our trust in these Drs and yet some of them don't listen or have the skill to do the work. Sounds like arrogance on the Dr's part thinking they knew better and would go ahead anyway :-( I agree with Hello and think you should put a complaint in. I don't blame you for considering to go elsewhere for a second opinion, and I feel I were you I would. Let us know how you get on xx
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

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Reg: Aug 13th 2016

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6,854

Wednesday, February 15th 2017, 1:26pm

Hi Debbie1234, welcome to the group :) I had a letter telling me I was on the waiting list in Sept I think and then got a letter late Nov/ early Dec with appointment in January x
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

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6,855

Wednesday, February 15th 2017, 2:52pm

Thanks everyone for your kinds messages. Means a lot. We've talked about taking it further but we're also a bit worried in case a complaint is held against us for future treatment and at the moment we want them on our side. In fairness to my Consultant, she phoned Raigmore to arrange for my pre-op assessment tobe done up here to save me travelling back to Aberdeen again so they have slotted me in for this Friday. Fingers crossed that means the hysteroscopy won't be too long away then we can get going again with the FET. I phoned Raigmore to double check that Aberdeen were still doing the op and the Charge Nurse said my Consultant had phoned to explain the situation and to grovel nicely for me to be seen there instead. Hubby took me away last weekend to Paris for 5 days to unwind and forget all about everything for 5 days. I think it did us the world of good to just get some time out and forget about it all! I'm feeling a bit more positive about things now so hopefully that will help.

Hope everyone else is doing ok? Hi Debbie. Fingers crossed you get your appt letter through soon so you can get the ball rolling! It's interesting how you said you did a block on the reproductive system as part of your training. I had an interesting conversation with my dentist a year ago about how the fertility drugs can affect gums etc so they monitored me extra closely for a while after my 1st cycle as I had a wee flare up while taking them. It's amazing how the body works!

xxx
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blowkiss

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6,856

Tuesday, February 21st 2017, 3:59pm

Hi Ladies, I had an interesting call from the clinic this morning to say that my routine thyroid blood test they took a few weeks ago has come back as elevated at 6.17. The top of the range for a normal person who isn't going through fertility treatment is about 4.5-5 at the most but during the 1st trimerster of pregnancy it should be less than 2 so mine is way above for some reason. I had this tested as part of my recurrent mc tests about 2.5 years ago in Raigmore Hospital and was told it was normal so I'm a bit confused as to why it's so high now. So they phoned my GP and I had further bloods taken at lunchtime to look at my T3 and T4 and other things in more detail but the clinic said this morning that it looks like I might have to be put onto thyroxine in the meantime before my next IVF cycle as high levels can cause mc or implantation failure. I'm now wondering if the nurse at the early pregnancy clinic read my previous results wrong and this is what caused my initial 3 mmcs and was never treated? It could also be the reason for my last 2 cycles failing if it's been high for a while. I'm probably clutching at straws and desperate for an answer but I'm almost glad they have found something wrong finally after all this time as perhaps they can do something to help now. I can see me and Mr Google having a hot date tonight so I can do some further research! lol
xxx
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blowkiss

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6,857

Tuesday, February 21st 2017, 8:00pm

Hi Rodeogirl, yes what you say makes sense. I have had an under active thyroid for years and currently take thyroxine. It wasn't until DP and I started trying for a baby that I realised how important a good thyroid function is, seems obvious now but never really thought of it before. The problem with thyroid issues is that although there's a normal range, this doesn't mean it's a good range for you. I am sitting in the normal range at the moment, but sometimes feel I still have symptoms, so I think the dosage could be tweaked soon. Drs with more expertise (endocrinologists) would say that if you are suffering symptoms then your levels are not right for your body, regardless as to whether it's in the normal range...the problem is that GPs and other Drs who are not specialists in the field don't recognise this and are content with a normal range reading. My thyroid levels fluctuate from time to time, although they have been fairly settled for some time now. If you do end up on thyroxine and it's 'Levothyroxine' might I suggest you take this at night, not in the morning as usually told to (of course check with your Dr first) ..there is a study done on this which has shown improved results as it's absorbed by the body better. Since taking it at night, I have seen the best results for years! When I had my appointment at the fertility clinic, as I am already diagnosed as underactive and currently taking thyroxine, the consultant told me that if my cycle is successful I will need to increase my meds by 50mcg a day during pregnancy to ensure I can sustain the pregnancy :) Fingers crossed this might be the answer as it's fairly easy to treat, finding the right dose is the only struggle I found. Xx
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

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6,858

Tuesday, February 21st 2017, 9:44pm

Hi Rodeogirl sent you a private message!
Hello everyone xx

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6,859

Wednesday, February 22nd 2017, 8:37pm

Hi all,

Have not been able to log on for ages - still being told I don't have permission! But used my laptop tonight and no problem. :?:

Rodeogirl - I am really sorry you had such a horrible time at your last appointment. Can't believe they didn't listen to you. I can only imagine how painful and upsetting it was. Very sorry your thyroid is playing up, but, on the positive side, it does give you something to work with.
I am another hypothyroid. I have hashimotos (thyroid antibodies and a slowly dying thyroid gland). I won't go into the trauma of actually getting a diagnosis - GPs and many endos are not exactly helpful. It was Aberdeen that took one look at my blood results and finally pushed for me to go on thyroxine after two years of me spiraling from non-stop fatigue to being signed off for four months. Sadly thyroxine isn't a complete fix for me (my FT3 is in free-fall) so I am heading to a specialist in April.
I did test my levels frequently in my last cycle and noticed the effect the IVF drugs had on my TSH despite the thyroxine. I've since learned that I should increase my dose during IVF, even before pregnancy. I have no idea if my fertility is compromised by this, but I do have a gut feeling that my miscarriage wasn't caused by my old eggs. I use the finger prick tests from Blue Horizon and usually get a full panel. My antibodies would never have been picked up by my GP as they only test for the most common of two types and I have the less common.I won't bore you anymore. There are probably long sections of this thread from three years ago with me moaning about my thyroid/useless GP etc! Like Scoobysnax, I also take my thyroxine at night and feel much better in the morning - taking it in the morning left me like a zombie until about midday. PM me if I can help in any way.

How is everyone else doing? This year is flying by so fast. I have opted for a demotion at work so I can actually concentrate on the parts of my job I love and can maybe, just maybe, have time to cycle again. :o)

Better finish my work for tomorrow. Hope everyone stays safe in the approaching storm.
x
ICSI #1: BFP, heartbeat seen at 7 & 8 weeks, miscarriage at 9 + 6 weeks

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Reg: Aug 13th 2016

Location: Elgin, Scotland

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6,860

Thursday, February 23rd 2017, 2:25pm

Hi Catkins10, can I ask, did your consultant say they wanted to check your thyroid levels during the IVF cycle or did you request this from the GP. I didn't really give any thought to doing this but can see the benefits. The consultant only spoke about my meds for if/when I get pregnant, rather than possibly being affected by the IVF Meds etc.. I felt such a difference switching to night time, like you say, I can get up in the morning now and feel like I have slept where as before it was awful.

Sounds like you have made a good decision in switching jobs
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

Posts: 55

Reg: Aug 13th 2016

Location: Elgin, Scotland

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6,861

Thursday, February 23rd 2017, 2:38pm

Should I phone the clinic?

Hi everyone! Just wondering what your thoughts are- I am supposed to phone the clinic on day 1 of AF and start taking the pills. My AF was due last Tuesday, so far nothing. It doesn't look like it will be starting tomorrow either as I usually spot for a couple of days first. I still use Opks to confirm when my period should be due (have a 16 day luteal phase normally) , and it didn't look like I Ovulated this month, which explains the delayed period. Do you think I should phone the clinic to let them know...I'm not sure if this delay would have much impact on the rest of the cycle as supposed to be on the pill for 3 weeks to fit in with the clinic diary so thinking a delay won't be too problematic?

Hope everyone is fine?

Thanks

X
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

Posts: 135

Reg: Feb 16th 2014

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6,862

Thursday, February 23rd 2017, 5:32pm

Hi Scoobysnax, I'd give the clinic a phone to keep them updated but, like you say, hopefully all will run to schedule anyway as you have three weeks.
Neither the clinic nor my GP tested me during my cycle, though the clinic was good a requesting testing to get my TSH under 2.5. I could feel my levels going off straight away on meds (even norethisterone) and started to panic. My mum is a retired doc with a lot of thyroid knowledge (and also has a thyroid problem). She told me that all hormonal medication affects the thyroid and that 4 hour gap between thyroxine and other hormones is required. So I did tests privately (finger prick kits £70ish) and she monitored my levels as I was a ball of anxiety about the whole thing by that stage. My GP was literally useless - he told me that the minute my IVF cycle was over he would stop prescribing thyroxine as I didn't need it and, that despite feeling human for the first time in years, it would cause my bones to crumble/heart to collapse etc. etc.! All of this I now know to be a lot of rubbish but it didn't help anxiety at the time.
I've read a lot on it since and the interaction between drugs seems common knowledge on IVF thyroid threads. I spent a lot of time looking for an expert and the only person who came up recommended in Scotland was at Dr Gray's (sadly wrong health board for me). I'm heading to London as I want an expert to monitor it for me (or make my GP do it properly this time). I know now that my thyroid struggles most in October/November which coincided with my last cycle so maybe my results weren't solely down to hormones. For the smallest little gland, it is a really big issue for me. Mine went bananas when I turned 40, as did my Granny's. My sister is just passed that age and bingo...Good thing about DE treatment is that I won't pass on that family heirloom.
How long have you been diagnosed?


x
ICSI #1: BFP, heartbeat seen at 7 & 8 weeks, miscarriage at 9 + 6 weeks

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Reg: Aug 13th 2016

Location: Elgin, Scotland

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6,863

Thursday, February 23rd 2017, 8:23pm

Hi Catkins10, thank you so much for all that info! Will definitely phone the clinic tomorrow to update them. Just got out of a very hot bath so hoping that will help kick start my AF. I didn't know that about thyroxine and the 4 hr gap with other meds! Good to know now. I book a blood test every 3 or 4 months with the nurse to check my thyroid levels and just say the GP asked for it...so far I haven't been caught out lol. I'm worried as a few months back my TSH level was around 2.5 but when I got it done at Xmas it was 5. Of course because this is within normal range, my dosage wasn't changed, but I am feeling sluggish again and wonder if it needs to be changed. The fact that the IVF meds plays havoc with thyroid levels has me more concerned now given that to increase chance of pregnancy it should be under 2 :-( Do you remember the name of the specialist at Dr Grays as that's my local hospital so might phone my GP and ask for a referral, what do you think? I was fine until my mid twenties (now 36) and then boom, under active thyroid. I was expecting it eventually as my mum, auntie and sister all have it. I was lucky that I lasted so long without it I guess.

I can't believe that Dr told you they would stop the thyroxine after the cycle as they reckoned you didn't need it!!! Sometimes I wonder what I am letting myself in for. The frustrating thing for me with thyroid issues is the constant battle with Drs regarding my dose, surely I should be the best person to say if it's working well or not, not some lab range! Fortunate for you that your mum is a retired Dr, I bet she has been able to give you so much support and reassurance through all of this x
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

Posts: 135

Reg: Feb 16th 2014

Location: Highland

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6,864

Thursday, February 23rd 2017, 10:27pm

Hi Scoobysnax,

Have you talked to Aberdeen about your high TSH? They told me to aim for between 1 and 2.5, but preferably near 1. TSH is the reason why I am having to delay treatment for so long. It was hovering around 5 last summer and the DE nurse agreed that I should get it under control before cycling again. Still trying! I start to feel it beyond 3 and by 5 I'm sleeping for Scotland. I'll check the name of the doctor for you tomorrow when I get home for the weekend (I work away). But the clinic would push for a dosage increase from your GP if you're still that high.

I got a lot of good advice from the Thyroid UK forum. Basically ended up testing Vit b12, folate, D, ferritin and zinc as they can all be low in hypothroid. And I was low in almost all of them, so another worry for cycling. Iron, vitamin D and calcium have to be taken 4 hours away from thyroxine and all the others can be taken after two hours. Plus the IVF drugs. It's like a military operation.

Thyroid treatment is shocking in this country. I think I actually have PTSD from trying to get diagnosed.

Hope AF comes quickly for you. Will PM the doc's name tomorrow.

x
ICSI #1: BFP, heartbeat seen at 7 & 8 weeks, miscarriage at 9 + 6 weeks

Posts: 55

Reg: Aug 13th 2016

Location: Elgin, Scotland

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6,865

Thursday, February 23rd 2017, 10:37pm

Thanks catkins :) The dr at the fertility clinic said my level was fine, which I was very surprised at to be honest. I knew Vit D is really essential for people with thyroid issues so take a vit D supplement in the morning and then levo thyroxine in the PM. Don't take the others you mentioned separately, but taking a pre natal so hopefully that's enough? I'm going to phone my GP tomorrow and tell her I want to up my dosage, hopefully she will agree. Thanks again x
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

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Reg: Feb 28th 2016

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6,866

Saturday, February 25th 2017, 7:00pm

Hi everyone

Hi hope everyone is doing well and staying positive on their journey

I haven't posted anything in so long! Hope all the newbies are doing well- stay positive and remember there are lots of 1st time IVF and ICSI successes- I have everything crossed for you.

Rodeogirl - your experience sounds awful, I would be tempted to complain but I know what you mean by keeping them on your side. I definitely noticed a shift in their attitude towards me after I complained. I hope you don't have to wait 3 months for the investigation you need and you manage to have your FET soon. The waiting is the worse- you just always want to be moving forward.

I've been on an emotional rollercoaster recently. We finally responded to progynova and managed to get lining up to 7mm for our FET in Nov however it ended in another chemical pregnancy- I was absolutely devastated as this had been our best chance yet and it still failed. In the run up to our FET I had tried to be as healthy as possible- I had a week of intense accupuncture with heat lamp on tum and also started taking turmeric pills as suggested by acupuncturist to promote blood flow and help lining. I also used a hot ginger foot soak to help my circulation and castor oil pack with a hot water bottle on my tum and a little fertility massage. This was all in aid of boosting circulation to help my lining thicken but I think it also managed to unblock my fallopians tubes!!! The month immediately after our failed FET I ovulated late and by some miracle I was staring at a positive pregnancy test in January!!! I was reluctant to share this news as I know what you are all going through and I hope and prey you all get your BFPs soon. I just want you all to have a happy ending - you all deserve your own wee miracle. After 4 long years of trying, 3 miscarriages and 2 failed rounds of IVF I can't believe we're coming up for 14 weeks! It hasn't been the easiest 14 weeks- I've been convinced that I was miscarrying 5 times due to huge bleeds- I had a suspected subchorionic haematoma but turns out I have a low lying placenta which they hope will correct by 20 weeks. Very very scary and I am grateful for every day that brings us closer to our miracle toot.

Thank you so much for all the support you have given me on this forum- when all your friends are having babies it felt like this was the only place I could find support and understanding. It's a difficult journey but this forum makes it that little bit easier when you feel like you have nothing in common with your friends anymore- people don't understand unless they have experienced it themselves.

I hope someone else can maybe benefit from the alternative therapies I mentioned above. I was skeptical but after 4 years of nothing I got desperate and went to town on the alternative therapies and maybe they did the trick. I went to the rose mount clinic in Aberdeen for my accupuncture. I wish you all the best and hope there are lots of BFPs soon xxxxxx love and hugs to you all xxxxx

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6,867

Tuesday, February 28th 2017, 8:00am

Hi all, hope everyone is fine!

Rodeogirl - I can't believe what a time you are having it's getting beyond a joke now, I would feel a big part of me wanting to complain but we do need them on our sides too I do feel sometimes they don't listen or I honestly don't feel like an individual, at my follow up I mentioned my sister has had a successful first round of ivf in Spain and wanted to discuss the treatment she had received my consultant was very interested but when Ilater spoke with a nurse asking why my sister was on prednisolone and baby aspirin she said they don't support that and actually ask girls to stop prednisolone before a cycle, I don't understand why aren't they taking advise or looking into other countries success rates especially when my sisters clinic was the top in Spain, I am about to undergo round 2 and wanted my dose increased at the start as I felt I had loads of follicles just missing the cut off size for egg retrieval wanted to try 225 instead of 150 but protocol came through post and it's 150 I'm going to ring them later as I want changes this time, I also asked if anything can be done to prevent further miscarriages as I've had a fair few now and 2 on my last ivf cycle, she did mention maybe heparin and baby aspirin.

Wee miracles- u fairly got ur wee miracle!! That's an amazing inspirational story just shows u! I'm so happy for you and it's amazing to hear a happy story, hope and pray for a healthy pregnancy, maybe it's def something to look intni have considered acupuncture.

Xx
Seven transfers later..

Baby bambi due December 7th baby2

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6,868

Wednesday, March 1st 2017, 10:46am

Morning ladies

Sorry I've not been back on for a week or so but decided to take a step back from technology, internet etc and have some time out to clear my head. I think it's done me the world of good too or I would have gone crazy googling everything under the sun about thyroid now.

Thanks you all so much for your kind words and the info on thyroid stuff too. That's really good to know and also the tip about taking meds at night before bed too. I'll keep that in mind if they do need to start me on them. I've got a routine appt on Friday for a smear test at my GP Practice so I'm going to ask the nurse if my blood results are back and ask her to check back what my previous levels were at the recurrent mc clinic and years before that. If I have these I can then check and see which direction the current levels are going. I've had accupuncture twice in the last week so she's been doing a little bit with my thyroid too and I'm actually starting to sleep a wee bit better and for some reason I've lost 5lbs in the last week! I've been really good and exercising a lot since before Christmas and not managed to lose any weight which I know is also a sign of a thryroid problem so maybe the accupuncture is helping with sleep and weight too. I also got a letter on Friday to say they have booked me as an inpatient for my surgery on the 13th of March which is great. I'm being admitted on the Sun but that's as we are coing so far. Last time we ended up staying in a hotel as I had to be on the the ward for 8am so I'm pleased they did try and push me through quicker than the 4 months which we were origianlly told. I'm just hoping that whatever they saw on the ultrasound on the inside of my cervix can be removed. They are going to do the scratch at the same time. I'm guessing they will have had my thyroid results back by then and if they need to start me on any meds then they might do this at the same time when I am through. Does anyone know how long they take to kick in and reduce levels? They had originally said they would start my meds for an FET on my next AF after the hysteroscopy and I'll have the hysteroscopy done on CD 23 but then I thought they had to do the scratch between day 10 and 20? I'll be going in with a list of questions at this rate. lol. If thyroid meds take a few weeks to kick in, I hope they reduce my levels enough before the transfer.

Wee Miracles what lovely news for you. I'm so happy you finally got your sticky bean :-) Sorry you went through so much to begin with though. How worrying for you. That's insteresting about the other things your tried this time. I've never hear of the turmeric pills and the ginger foot soak. Where did you get them from? I've used accupuncture in the past and hot water bottles and hot water foot soaks but that's it and they really helped with my thin lining. I've never tried the caster oil packs but have heard they help too. That's amazing how it helped to unblock your tubes too! It just shows what can happen. They say you are very fertile after a pregnancy as your hormone levels are so high and it's almost like your body knows what to do next time. I fell pregnant naturally with my 2nd and 3rd pregnancies in the 1st month of trying after each of my mc's and they said you are best to try ASAP now or within 3 months unlike years ago when they said wait 6 months. Good luck for the rest of your pregnancy and hope this settle down for you. Let us know how you are getting on.

Bambi good luck for this cycle and hope they listen to you with increasing your dose of meds. It's so frustrating when they gave you the same as last time. The one thing we were told about taking asprin from Prof Brosens in Coventry is that you shouldn't take it before a positive test at 7 weeks. If you take it before then, it blocks some receptors in the uterus which help with implantation. I asked him to write this on my treatment plan which I gave to Aberdeen and they said yes we know this and don't prescribe it for that reason. I then said well why did Raigmore prescribe it for me and why did you let me carry on taking it before my last 2 cycles?? I stopped taking it back in Nov. Prednisolone is usally prescribed for high levels of natural killer cells but a lot of clincis are now stopping using it and changing to using some antimalaria drug instead. Could you ask your sister if she had high levels of NKC and that's why she was prescribed both of these maybe? I can totally understand your frustration as this worked for her and you want to try it too.

How is everyone else getting on? Hope you are all ok?

Good luck and massive hugs to you all

xxx
:xxx3:

blowkiss

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6,869

Wednesday, March 1st 2017, 1:10pm

Afternoon rodeogirl, just a quick message, not that she is aware but she has was pregnant once in her teenage years but due to age circumstances terminated it, since then she hasn't fallen pregnant and they went for ivf after a few years of trying and came back unexplained infertility, she says what the ivf consultant gave her was just the normal treatment for a first cycle I am assuming they have researched and may have different findings than nhs, it's weird I just thinks once both me and my sister have unexplained infertility could it be genetic? Or something else? X
Seven transfers later..

Baby bambi due December 7th baby2

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6,870

Wednesday, March 1st 2017, 2:16pm

Hey Bambi I totally agree the clinic abroad seem to be far more up for trying different things and with good success rates too! The NHS seem to stick rigidly to thing that are proben through research, which is a good thing, but there seesm to be no give and take away from the norm with them. That's interesting about your sisters history and also your family history. I've had a friend who also had a termination in their late teens and then had to go through 2 cycles of IVF to fall pregnant again but then her 2nd child was a natural pregnancy. I know of others who needed IVF but then went on to have natural pregnancies too. Its like it wakes the receptors in the uterus up to learn that the fertilized egg should be there to stay. I also know of another 2 sisters like you. The first had 2 IVF cycles abroad before getting pregnancy and the other had a failed cycle the same time as my first. I was actually hiding from her in the clinic corridors when we both had scans as I didn't want anyone to know about my first cycle. The things we do eh! lol. I've never heard if she tried again after the time I saw her. Fingers crossed they find out the cause and can treat it. Would you consider going where your sister went abroad?

xxx
:xxx3:

blowkiss

HHH29

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Reg: Mar 8th 2016

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6,871

Thursday, March 2nd 2017, 3:05pm

Hi everyone,

Been a while since I've been on the forum. I completely understand your position Rodeogirl, but perhaps rather than a complaint you could provide some 'feedback' to the unit manager. I did this after my first cycle and found it really helped - for my own piece of mind as much as anything else. I have just finished my third cycle and in lots of ways it was our best cycle, we had 2 really good quality embryos (9 cell grade 1 and 8 cell grade 2) transferred on 14th Feb and ended up with one top quality blasto to freeze. I didn't have any bleeding during the 2ww so we did a test last weekend a few days before my OTD and were delighted to see a faint positive but on OTD a few days later there was a second line but it was very faint - not a hint of it getting any darker. Today I had some spotting, mostly brown blood (sorry TMI!!) but suspecting now that it may be a chemical pregnancy. To be honest that would make sense as I wasn't able to take any of the immune drugs suggested by the clinic in London so the embryo(s) may likely have tried to implant but were eventually rejected. I won't know for sure until I do another test this weekend but feeling at least slightly hopeful that once I get the immune treatment I may still be able to get pregnant with our take home baby. I'm only 31 so not ready to give up, but there is definitely a limit to how much of this you can go through not only physically and emotionally but also as a couple - we have so much to be grateful for but can't enjoy life as the infertility battle is going on everyday. I'm sure you can all relate.

Hope everyone is managing ok.

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6,872

Wednesday, March 8th 2017, 1:15pm

Hi everyone and welcome back HHH29. How did you get on at the weekend? I was thing if you and hoping it was good news and not a chemical pregnancy.

Well my update is that my hysyeroscopy is cancelled for next Mon. A secretary phoned yesterday to save they have no theatre staff and Dr Mashwari is in hols in April when her next list is so it's now looking like May before I'll be done. I'm now supposed to be top of the list as I've been cancelled. To say I'm totally fed up nowvwoth the clinic is putting it mildly. I just wish we had gone abroad instead now for this private cycle. Had the DE nurse leave a message on my phone this morning to say my thyroid antibodies came back as negative so I dont need thyroxine now and she said my TSH was 2.61 not the higher level I was told before. This is much better but still above 2 so I can't understand why they are not treating it. Do they only treat if you have antibodies? Totally confused as Raigmore guidelines for 1st trimester have a maximum of 1.6 if I was to get pregnant. Does anyone know anything about this? Thanks xxx
:xxx3:

blowkiss

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6,873

Friday, March 10th 2017, 8:20am

Hi Rodeogirl, I haven't been able to login for ages. I am gutttd for you that it's been cancled are you wanting this doctor? Is it in Inverness?
Re your thyroid level so glad antibodies negative. Sometimes I have seen they don't treat unless under 3 but will retest in three months. Sorry who is DE nurse?

Xxx

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6,874

Saturday, March 11th 2017, 9:04am

Hi rodeogirl,

I'm sorry to hear there are more delays for you l, no wonder your so fed up!! I find the whole thing around how they treat thyroid issues confusing too. I got mine checked after we last spoke and have been told by my GP that my TSH is sitting at 0.74 which is really good but they aren't sure why I still have all the symptoms of a sluggish thyroid so I basically have to go back in a few weeks if i still have symptoms. When I asked my GP to confirm what the levels were from the test before she told me it was 2.1 which is not what the other GP told me as that GP told me it was just over 5 which is why I was so worried and wondering why the fertility clinic weren't bothered. It's all very strange and I wonder if a GP has been giving me the wrong figures?? I know that GPs are reluctant to alter dosages if within normal ranges generally and mine would only do it now if the clinic advised or agreed it was OK as they don't want to interfere with the cycle.

My egg collection has been put back to the end of April as I had a delay in my period starting by a week and a half because I didn't ovulate. So now starting the norethisterone in a weeks time for a week then will start the burselin injections. I'm on the ultra short protocol so all should go quickly then xx
Me 36 DP 46. Blocked Fallopian tubes and poor morphology.
1st Cycle- April 2017 :BFP: - Due Jan 18

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6,875

Saturday, March 11th 2017, 2:55pm

Hi all,

HHH29 - I am thinking of you and hoping that you had better news than expected last weekend. Big hugs x

Scoobysnax- just sent you a PM re doc in Elgin. How frustrating that things have been delayed again for you.

Rodeogirl - I am so sorry that you've had yet another upset and I can totally understand your frustration. I have asked myself a lot why I just didn't go for treatment abroad when my TSH was behaving itself over a year ago. I have never heard of a TSH limit from Raigmore, which worries me. I was on thyroxine during cycle 1 and no-one in the EPU said anything about my TSH levels. How did you find out about it? From your point of view, it's good news that there are no antibodies. The guidance I was given is that TSH should be between 1 and 2.5 so you are only just above that, which is also good news. I'm not sure about how much medication would affect you - it could pull you down under 0.5 which isn't good for fertility either. I generally go down 2 points on the scale for every 25 mcg. Under the official NICE guidelines, it was advised that women's TSH should be between 1 and 2.5 if they were aiming for pregnancy. But this was only applied to women with a diagnosis with hypothyroidism (even though it should logically be applied to all women). I had a couple of battles with my old GP trying (and failing) to apply that logic before my first cycle. Last time I looked at the NICE guidelines they had been changed and were now scarily silent on previous recommended levels of TSH (now advising euthyroid levels so okay up to 4.5/5). The AmericanThyroid Association reasearched that the chance of miscarriage really increases at TSH 4.5 and beyond. What I honestly don't know is whether the ability to get pregnant is compromised by TSH levels between 2.5 and 4.5, but it well could be. Most research has been directed at antibodies and a recent paper concluded that thyroxine was beneficial in the case of antibodies and a TSH above 2.5 as it did prevent miscarriage.There is a school of thought that says thyroxine should be started with the discovery of antibodies as it helps slows the eventual destruction of the gland, but this practice is only applied by private doctors. NHS docs are bound by TSH levels and, unless you get a really compassionate one, won't treat below 5 (and more likely 10) with or without antibodies. I'm sorry - I've gone on a thyroid waffle again. But hope this answers your questions. It does look like we might be cycling at a similar time now after all your delays. We can vent and stress together :girl_cray2.gif:

Hope everyone is doing okay. Hi to Bambi85! And Wee Miracles, what lovely news. Wishing you a happy and healthy pregnancy x
ICSI #1: BFP, heartbeat seen at 7 & 8 weeks, miscarriage at 9 + 6 weeks

hay12

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6,876

Sunday, March 12th 2017, 6:48pm

Hi I first posted back early Dec where we started our first round of ivf Icsi. Fortunately we were successfull and confirmed pregnancy at 7 weeks with a singleton. One single embryo transferred. 12 week scan showed identical twins. Currently 16 weeks . Keep positive guys! X

GB87

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6,877

Tuesday, March 14th 2017, 8:06pm

Huge congratulations hay12 ! That's lovely news and gives me hope :)

I'm new to the forum and on day 2 of Norethisterone on our first ICSI cycle. Hoping to start injections a week on Saturday xx

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6,878

Friday, March 17th 2017, 7:40am

Morning all,

Have been trying to get on for a few days and it wouldn't let me!!

I had an acupuncture session in inverness last night was wandering can anyone recommend an acupuncturist in Aberdeen that may be able to do a before and after session on the day of my transfer?

Xx
Seven transfers later..

Baby bambi due December 7th baby2

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6,879

Sunday, March 19th 2017, 4:44pm

Hi everyone I'm new to this had our first consultation 2 weeks ago in Aberdeen thought I would ask a few questions was told waiting list was about 4 months is this about right this is for getting started on meds they said we would get app sent out to go along to a open evening first how long before the ivf starts do u actully receive the date few months or weeks thank u all for ur help x

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6,880

Sunday, March 19th 2017, 4:48pm

Bambi85 there's a guy in Aberdeen at rosemount called Kevin who does accupunture for ivf I'll send the number I've booked app for 2 weeks time think he only work a mon Fri sat 01224 636378

GB87

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6,881

Sunday, March 19th 2017, 11:01pm

Hi Kimbers85, after our initial referral in July we received a letter in Nov confirming our first appointment for ivf just after Christmas , had the info evening in Jan and have now started treatment this past week.
I'm sure at the info evening they said everyone there would be starting in a few weeks time and that egg retrieval bookings were already into April x

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6,882

Monday, March 20th 2017, 4:45pm

Hi GB87 OK thanks so wasnt to long a wait for u I'm really hoping a date comes through soon even if app is July Aug sep just be great to get the start date did u get both dates at same time for info evening and to start treatment how did u find the info evening so is this u started on meds and injections hope all goes well for u xxxx :)

GB87

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6,883

Monday, March 20th 2017, 7:53pm

.

This post has been edited 1 times, last edit by "GB87" (Mar 20th 2017, 7:57pm)


GB87

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Monday, March 20th 2017, 7:55pm

Hiya, yeah we got both dates in the same letter :) The info evening was good and we were able to ask some questions and actually see the injections and how to use them etc. The presentation you are shown at the evening is available on the website too if (like me!) you like to know the ins and outs of everything beforehand. Yip that's us officially on the IVF roller coaster now ! We have everything crossed that things will go ok over the next few weeks
Xxx

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6,885

Monday, March 20th 2017, 8:43pm

OK thanks GB87 good luck with it all yea I'll have a look on website get to know more xxxx

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6,886

Monday, March 20th 2017, 8:53pm

Anyone else on waiting list just now xxx

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6,887

Tuesday, March 21st 2017, 5:02pm

Congratulations Hay12!!! I'm also 16 weeks - so lovely to hear IVF success stories. Our first 2 rounds failed then miraculously got pregnant naturally!!! Hope everything goes well and you have a nice easy pregnancy- all the best

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6,888

Tuesday, March 21st 2017, 5:03pm

Hi Kimbers and bambie, i second that reccommendation for accupuncture in aberdeen- i saw Kevin 4 times in one week during transfers and although the transfer wasn't successful, I think it did wonders for my well being and may even have contributed to helping unblock my fallopian tubes!! I think alternative medicine works wonders!!! I think he will also fit you in on a saturday if you need- he was so accommodating xx

Rodeogirl i bought natures best curcusorb tablets (turmeric extract) online from amazon but take a look at a few websites to get the cheapest. I just boiled fresh ginger then topped it up with hot water to soak my feet. I also used pukka castor oil for my hot castor oil packs and fertility massage- a lot of work each evening but completely worth it!!!


Wishing you all loads of luck wherever you are on your journey

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6,889

Tuesday, March 21st 2017, 6:11pm

Hi weemiracles that's great news how u been feeling any morning sickness I've got first app with Kevin on the 1st looking forward to it xx what was the waiting time like for u when u were on waiting list x

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6,890

Wednesday, March 22nd 2017, 2:56pm

Hi Kimbers

Morning sickness was pretty bad from 10 week through to 16 and now starting to ease off a little- it is a very small price to pay so I'm still smiling through all the nausea and vomiting. Waiting list wasnt too bad- we were first referred in august 2015 after confirmed blocked tubes by laparoscopy and hycosy then we had our open evening at the end of Nov then consultation in December starting our first round of ivf after my cycle in january so i feel like it all happened fairly quickly

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6,891

Wednesday, March 22nd 2017, 4:23pm

Hi weemiracles

That's good its easing of now oh wow that wasn't long at all so about 6 months from start to finish for u well I just got a letter today confirming were on waiting list says we should get started within 4 to 6 months so I'm hoping it's nearer the 4 months mark wonder if will get open evening app before this xxx what meds did u have to take before the procedure and for how long xxxxxxc

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6,892

Wednesday, March 22nd 2017, 10:33pm

Hi everyone,
I have been completely disconnected from here for ages! Congratulations Weemiracles! So glad to hear about your news. We need more like these in here.
Also welcome to all the newbie!
Rodeogirl, I have briefly read what you've been through lately! OMG!! You are the bravest person I know! After all the issues, complications and set backs, you just keep going and nothing stops you! I totally admire you and bow to your strength.
About me, well, there has been a reason I've been away from here. I've had a complete break and from the start of the year I joined a charity program which contains a training and a healthy nutrition plan. Since then I have been eating really healthily and exercising, which I didn't do before. I feel so much better and energised and I secretly hope this will help with getting pregnant too. So, kept really busy and took a complete break out from our IVF journey.
Anyway, time to get back to it! We had our follow up appointment and again, not many answers to be honest, even after having had the Endo scratch before transfer. But we had one thing clear: for this time, we needed something to be different, and they suggested to transfer 2 embryos. We are going to go ahead with this, even with the risks attached to this. We start injections tonight and here we go again...
I honestly don't know how to feel about it anymore. I feel quite numb to the whole thing: we follow through the steps we have to take when it's time and that seems to be it. I really don't know what we'll do once we have finished all of our frozen embryos...
Hugs to all of you. Xx
ICSI 1, Nov 2015: :BFN:
FET 1, March 2016: :BFN:
FET 2, June 2016: : :BFN:
ICSI 2, Nov 2016: :BFN:
FET 3, May 2017, :BFP: IT'S TWINS!!! bab22 bab22

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6,893

Thursday, March 23rd 2017, 1:11pm

Hi kimbers85

I was on the short protocol so norethesterone to time my period for their egg collections, once norethesterone stopped you will have 4 days of bleeding after which you will have your baseline scan to ensure lining thin and to check that there are plenty follicles to recruit in both ovaries. You will then start your stim drugs- I was on gonal F (250iu for first cycle then 150iu for second cycle. After 4 days you will also start cetrorelix which stops you from releasing your eggs from ovaries. After 7 days of stim you will have a note scan to check how your follicles are developing. Scans will then be every 2 days thereafter. Think we made it to scan on day 9 both times before they lowered my dose and instructed me to use trigger shot 36 hours before egg collection. Both times I triggered on a sat and egg collection on the mon. Word of advice for egg collection- stay relaxed, listen to your favourite music before hand or do something that you really enjoy- I was very calm the first time and felt no pain but the second time I got myself in a panic and tensed up and so I really felt it :( relax and stay calm, take deep breaths and think about how wonderful it will be and worth all this hassle when you hold your baby for the first time

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6,894

Thursday, March 23rd 2017, 1:14pm


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6,895

Thursday, March 23rd 2017, 1:15pm


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6,896

Thursday, March 23rd 2017, 1:16pm

3rd


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6,897

Thursday, March 23rd 2017, 6:37pm

Hi weemiracles thank u for all that great to know I've ordered a ivf book to read up try find out more about it all the opening night will hopefully help aswell do u get dates well in advance like our dates we waiting on for opening evening and to start meds or is it just sent out few weeks before xx

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6,898

Thursday, March 23rd 2017, 7:37pm

Hi kimbers85

It's a bit of a whirlwind once u get started.

We got our open evening appointment in the evening and then the next morning we had an an appointment with the consultant who did a scan, check ur weight etc and have a good discussion. They might give u a rough egg collection date and u will have to wait until next period and then on day 21 start norethisterone tablets. It really goes in quick from there, im on my second round and remember how at the start time seemed to take forever but trust me ivf is all about patience and timing. Hope ur appointment comes through soon. My first cycle we had our open evening appointment Feb 8th 2016 and egg collection was mid April if that gives u a rough idea it seems ages but it really isn't.

I bought his and hers guide to ivf which I found really helpful, this time round I'm also taking pregnacare max xx

A wee update, we have had egg collection we got a mighty 16 eggs, which with immature etc we have ended up with 7 fertilised by icsi with my gonal f being increased from 150 (last cycle) to 225 this cycle it has made a huge difference. Although I'm very uncomfortable and have chronic trapped wind (tmi sorry) having acupuncture before and after the transfer which I'm looking forward to, been so scared of ohss but so far I think I'm good!

Xx
Seven transfers later..

Baby bambi due December 7th baby2

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6,899

Thursday, March 23rd 2017, 8:22pm

Hi Bambi85
Thanks for all that yea I think once we get date through and have the open evening it will go quick from there ok think I'll order that book x oh that's great news 16 eggs wow so now u have 7 so what happens next for u x yea I'm defo going to accupunture went a while ago but stopped now going to start with Kevin in Aberdeen as he does it for ifv so got first app next sat when is ur transfer and how much eggs will they use xxx

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6,900

Thursday, March 23rd 2017, 8:34pm

My transfer is this Saturday, I feel I just want one embryo transferred but will have to see quality etc in the day, I am getting my acupuncture with a lady called Kathleen Powderly she is fully trained and does Chinese herbal meds too, and was an ex nurse and midwife, I had a pre assessment with her the other night and we chatted for an ages about all aspects of my life and health I'm looking forward to it.

I had a double embryo transfer last time which ended up in a chemical pregnancy It hard to know what to do for the best I would hate to transfer 2 and 1 of them affect 'the one' that might take so many complications etc it really is hard to kno what to do for the best.

Think sometimes the more you read it can confuse you I found I skimmed over that book and as long as I knew my next step the nurses keep you right and I felt it was less to worry about as know we all prob feel like fertility pros!

Xx
Seven transfers later..

Baby bambi due December 7th baby2

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