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Posts: 15,284

Reg: Sep 24th 2006

Location: Up to my armpits in ironing

Children: Three gorgeous daughters!

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51

Wednesday, March 25th 2009, 6:31pm

Welcome to FZ Emmylou

This thread may help you with your question, Initial IVF Consultation???

Also why not pop along to the newbie section HERE and introduce yourself, I am sure you'll get a lovely warm welcome. :smile:

Good luck with your appointment hun.

xxx


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

emmylou

Newbie

Posts: 5

Reg: Mar 24th 2009

Location: Manchester

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52

Thursday, March 26th 2009, 7:42pm

Many thanks 4 the reply Polly - Threads were a great help cheers hun xx :happy:

Jilly01

Newbie

Posts: 1

Reg: Mar 26th 2009

Location: North Lancashire

Children: Not Yet!

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53

Thursday, March 26th 2009, 8:36pm

Im New!!!

Hi

Im new to all this. Went for my first app at St Marys today.
Feeling drained and on information overload!!!

emmylou

Newbie

Posts: 5

Reg: Mar 24th 2009

Location: Manchester

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54

Friday, March 27th 2009, 7:28pm

RE: Im New!!!

Hi Jilly,

Congrats on the first appt sorry 2 hear left u feelin so drained :sadface:was it hard going ? i too am goin 4 my 1st appt altho gotta wait till May. If ya dont mind me askin hun wat did it entail ? xx

Posts: 19

Reg: Apr 2nd 2009

Location: manchester

Children: 1 DD born 2001 (previous relationship)

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55

Monday, April 6th 2009, 5:35pm

My doc refered me to st marys last week, got my letter to phone and make the appointment on friday, phoned today and got my first appointment on the 30th april at st marys so feeling very :smile:

Posts: 19

Reg: Apr 2nd 2009

Location: manchester

Children: 1 DD born 2001 (previous relationship)

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56

Thursday, April 16th 2009, 11:56am

Has any one been seen by this con Dr E Edi-osagie? at St Marys

Hoping77

MEMBER

Posts: 1,498

Reg: Apr 14th 2009

Children: A son and daughter - our family is complete :)

What's Up?
Absolutely love being a mum of 2 but OMG it is hard work and very tiring! Wouldn't change it for the world though :)

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57

Friday, April 17th 2009, 2:23pm

RE: St Marys

Hi Lisawoods

I just wanted to clarify, after seeing your post, can you go on the waiting list for St Mary's as an NHS patient but also pay privately for treatment at MFS whilst waiting for your turn at St Mary's? This is what we want to do.

x
An almost 4 year old son and a 21 month old daughter :)

Posts: 374

Reg: Apr 13th 2009

Location: lancashire

Children: 2 Ectopic Angels

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58

Sunday, May 3rd 2009, 10:33am

Hello

I just wanted to add a few points of advise for all of you ladies getting/recieving TX at St Mary's

When you ring for treatment you may not be accepted for TX in that month as they are so overloaded with patients (is this a good thing?)

You may have to ring them back if advised that they will call you, but they don't seem to ring you back and your sat there worrying!! (be pro-active)

When you start DR and ring when you start your AF (whilst DR-if on long protocal) you will then be told to come in for a blood test on day 4 of your cycle to determine if you have successfully DR (make sure when you call to book in a blood test you get the nurses name etc as my notes were not updated when I called and ths has caused a delay of a week to start stimms)

:innocent: So build an extra few days into you plans as it looks like your DR for 3 weeks not two as advised in the booklet. AF arrival dependant, it could be earlier if your AF starts on time.

AF could be late by up to a week when DR (they don't tell you this)

Also you could get another delay after your DR blood test if they are overbooked for starting stimms (was told this after my blood test today)
I think that they don't give you enough information at the initail consulation of what to expect, timings etc (do they not hink we have to work also!!) and you are left to find out every little step yourself which makes you a little stressed not knowing what is going on. Stress is the last thing you need!!

The nurses appear very overworked and un-organsied which is a worry and the patient is obvoiuosly working to the clinics clock, not the patients body clock and the fact that we don't want to be taking these drugs for any longer that we have to, so we can achieve a pregnancy, that's what they should bear in mind we are human not numbers, that's what it feels like there.

I'm sorry this is not a postive post, but it's how I have been treated (notes misplaced/tests going missing/stimms starting late/not calling you back etc)

So just keep n top of those nurses and keep a diary of all your dates etc

Lot Of Love

xx

Me 36 DF 34
2 ectopic pregnancy, tubes removed. :tears:
ICSI 2009 BFN, :tears:
FET 2010 BFN, :tears:
ICSI May 2011 heavy bleeding before OTD :tears:

sarajane

Newbie

Posts: 9

Reg: Jul 12th 2008

Location: manchester

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59

Monday, May 4th 2009, 7:54pm

Hello

Hi ladies

Hope you dont mind me joining you, Im due to start treatment at St Mary's anytime soon. I had my end of waiting list appointment on March 26th, my period started not long after but they told me that blood tests results had not arrived back, so to call next month.

It arrived today! So Im calling them in the morning. My experience so far hasnt been to great with them as there was a mix up last year with which waiting list we were on.... had us listed as living in Salford when we live in Sale, which has meant we have waited a year longer.

I was hoping someone else was at a simmilar stage to me and we could share experiences?? We had a private, unsucessful try in Sept last year, so hoping that this time will be a success!

Sara x :smile:
Sara

Posts: 303

Reg: Dec 21st 2008

Location: Manchester

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60

Saturday, May 16th 2009, 12:10pm

Hi sarajane - did you start your treatment - really hope so.

Hi curlyclair - Where are you up to with your treatment? i'm right there with you in regards being treated extremely badly at st.mary's. I have rang them this month for the 5th month - trying to start treatment and have once again been refused as they are too busy!!! To say I am fed up is an understatement. We are now giving up with st.mary's as i really can't keep putting myself through this each month - getting my hopes up to just be flattened again. Can't believe they are getting away with the way they are treating people at the moment and how badly they are running things - like you said, tests going missing, files going missing .........
The anoying thing is that no one is being held accountable, and no one is appologising - they just think this is acceptable. Whats the point in getting rid of the waiting list then being put off month after month - i would rather the waiting list came back then at least you were prepared for a wait rather than keep getting hopes up.

Again, sorry this is rather a negative post but lots of other ladies are going through the same thing and it really is not good enough.

sarajane

Newbie

Posts: 9

Reg: Jul 12th 2008

Location: manchester

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61

Saturday, May 16th 2009, 12:43pm

Hello Wolls

No such luck! I was informed that they were too busy and to call back next month. I think what is most frustrating is that we have waited on the 'old list' for two years so being told that there isnt a list now doesnt help us at all. My GP was helpful last time I visited him, he sits on the primary care trust and told me that there cant be such a thing as 'no waiting list'..... I hadnt realised that people were waiting up to 5 months? What is the point of running it in this way??

If it was anything else Id be up for making a complaint and wanting to kick up a fuss. As the subject is such an emotional on anyway I dont feel I have the energy or fight! I want to reserve that for the treatment, if it ever happens.

Have you spoken to anyone at the hospital who has been able to explain why things are run now in this way?

I do hope that your turn is soon, all the upset and trauma cant help at all.

Let me know how you get on, if I get knocked back again next month Ill contact my GP and see if he can shed any light on the situation.

Take Care. Sara x
Sara

Posts: 303

Reg: Dec 21st 2008

Location: Manchester

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62

Saturday, May 16th 2009, 7:48pm

Hi sara,

Sorry you too have been refused this month - it's really bad isn't it. I have calmed down a bit today. I have spent the day writing complaint letters to anyone I can - my MP, the PCT ....... I know it will not do me any good and will get me nowhere, but it has made me feel better complaining to someone! :P
Anyway, hope you get accepted next month - I'm not even giving them satisfaction of knocking me back again - I think we are going to start saving so that we can go private - we have already had an initial consultation at CARE Manchester last month, after we got refused by St.Mary's, but simply can't afford the treatment at the moment.
Keep in touch, and good luck. x

Posts: 374

Reg: Apr 13th 2009

Location: lancashire

Children: 2 Ectopic Angels

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63

Tuesday, May 19th 2009, 8:02pm

Hi Wolls

I am having ET tomorrow at St Mary's, EC went smoothly and the nurses on ward SM10 are brilliant and lovely

I must say I would advise you to ask lots and lots of questions at every stage as the IVF nurses are not that forhcoming with info, they just assume that you know everything.

Also make sure you write down the instructions for the trigger shot (pregnal) we nearly messed it up as its very fiddly.

I would also add if your going in for a scan get there early otherwise your waiting hours

Good Luck All

Me 36 DF 34
2 ectopic pregnancy, tubes removed. :tears:
ICSI 2009 BFN, :tears:
FET 2010 BFN, :tears:
ICSI May 2011 heavy bleeding before OTD :tears:

Posts: 435

Reg: Mar 17th 2008

Location: Manchester

Children: Twins!

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64

Wednesday, May 20th 2009, 12:01am

I'm back at St Mary's for a second round and yes, the bureaucracy there is hard to deal with sometimes, but most of the nurses there are lovely and battle through despite it being extremely tough for them.

I've had to wait over a year for my second cycle because of the removal of the "waiting list" and introduction of new protocols and new tests and then getting knocked back because they were full, so I totally understand how frustrated you must feel, but please keep positive - things will work out!

It's hard not to become quite self-centred when you're caught up in the IVF process, but I've learned that the only one you stress out is yourself.

Agree with previous poster about being persistent though, the nurses have to be economical with their time, but they will always try to help if you ask them to.

:)
* Emma * :smile:
TTC 8 yrs PCOS - Clomidx10 - IVFx3
Nov 2009 Last try: Short protocol ICSI - wonderful BFP!!! -
TWINS!!
: D

Posts: 9

Reg: May 16th 2009

Location: Manchester

Children: not yet

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65

Saturday, May 23rd 2009, 5:56pm

plz help regarding DI at st mary hospital

hi my name is roze,26,married asian women,lives in manchester,got my 1st appt in st mary hospital n talked to yasmin sajjad about my case,trying 4 a baby 4 the last 6 years,no success due to male factor,she gave us next appt in august but told me they dont have any sperm donors specially asian for DI/ivf,i dont no what 2 do now,plz help regarding private sperm donor bank under hfea in manchester or anywhere in uk where i can buy sperms,moreover plz tell how many free cycles of ivf they offer?n 4 prescription how many i have to pay per cycle?the councellor told me yesterday i have to pay 4 the medicines n if the doctor offer DI there will be 5 free cycles,n if its IVF with donor sperm then it will be only 1 cycle?i n a bit confuse,plz tell howlong is the waiting list there coz all my test are already done n normal,tubes,smear n scan r done n normal aswell,thanks,gud luck 2 all the ladies n plz reply asap with every information u have regarding donor sperm banks,DI/IVF at st mary ,its waiting list n any aother hospital which is offering 3 cycles,thanks again,byeeeeeeeeee.

Posts: 374

Reg: Apr 13th 2009

Location: lancashire

Children: 2 Ectopic Angels

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66

Thursday, May 28th 2009, 6:22pm

Hey ladies

Hope you have been accepted for treatment, well ET went fine, now on the dreaded 2WW well with St Mary's its 17 days past ET aarrgghh, also had to have SET due to the new laws about muliple births.

I have 4 snow babies on ice and just hope that this cycle works as 4 is quite a low number to freeze, I asked for 2 embies to be put back but they were quite firm about it as I'm 34 and they won't put 2 pack under 35.

Also ask loads of questions about everything they just don't explain things.

My embie was at 4 cells in the morning of ET but consultant didn't tell me how many cells when we had the transfer a few hours later.

Ask questions is my advice.

Me 36 DF 34
2 ectopic pregnancy, tubes removed. :tears:
ICSI 2009 BFN, :tears:
FET 2010 BFN, :tears:
ICSI May 2011 heavy bleeding before OTD :tears:

Posts: 303

Reg: Dec 21st 2008

Location: Manchester

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67

Saturday, June 6th 2009, 12:22pm

Hi ladies,

Sara - how are you honey - are you going to ring st.mary's this month to request treatment? Fingers crossed you get in.

Emma & curlyclair - good luck for your test dates. Hope you both get wonderful results.

I've now got my notes from st.mary's so have been back in touch with the private clinic to arrange treatment. Family are going to lend us money for now, but things look hopefull with the PCT for funding as they agree that things have not been acceptable with st.mary's - so fingers crossed.

Good luck everyone.
W x

sarajane

Newbie

Posts: 9

Reg: Jul 12th 2008

Location: manchester

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68

Wednesday, June 17th 2009, 11:23am

Hello everyone

I was knocked back again the second time.......... no surprises!

Have called the hospital this morning as any day now will be third request and I have just stopped crying!

They have told me this morning that they are now shut!!! Because of all the building works they have no theatre so whilst I can be scanned and have bloods done there they cant treat me.

They are going to send patients that have requested treatment three or four times to local private hospitals. All they could say to me was to come to the hospital when my period arrives for bloods and a scan then they will contact me, hopefully with a date when I can go to another hospital. It is like likely to be the month after or the month after that ( 5/6th request for treatment)

I asked why hadn't I been told about the hospital closing and they said that they didnt know...... They expect their section of the hospital to be completed by September maybe October.

Wolls, I didnt know how significant this may be to you as you mentioned going to Care in the mean time. Looks as if now you may get referred there anyway??

Ill post again next week once I have been for scan/bloods I may have a bit more info then.

What a test.....

Love to you all

Sara x
Sara

Posts: 137

Reg: Nov 18th 2008

Location: Derbyshire

Children: Manchester

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69

Sunday, July 19th 2009, 12:03pm

Hi

:hi:

Its been a long time since I have been on-line. I decided to take a break from it as things had really got on top of me!
We have had 2 treatments privately without success as you can see. We are know 1 year down the road with St Marys and finally feel that we may be getting somewhere!!! We have male factor fertility. My DH has no sperm at all so we need donor. I have had so many tests and feel like I have been poked and prodded that I no longer feel like I have an dignity left! The good news is that there is nothing wrong with me so waiting now to here what the specialist says.
We have had problems with consultants though has anyone else? We have seen 4 different specialists and this makes me a little nervous. I am also concerned that someone had written about the unit being closed now till October is that the case?

I am sorry this is such a long post but its been a while since I have let it all out!

Thanks
COOPS

1st DIUI Feb 09 :BFN:
2nd DIUI 9th March 09 :BFN:
3rd DIUI (Clomid 50mg) October 09 :BFN:
4th DIUI (Clomid 50mg) December 09 :BFN:
Transferred to Jessops for IVF. 1st appointment 10th May :hairout

2nd appointment 6th July :hairout
3rd appointment 26th October xfingers xfingers

Posts: 670

Reg: Feb 25th 2009

Location: Lancashire

Children: Trying very hard

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70

Tuesday, July 28th 2009, 3:40pm

advice on waiting times at St Marys Manc

Hello

We have been advised by St Marys that my DH's TESE will be in september,though I rang them today and they still couldnt give us a date! I am just wondering if anybody else has had this procedure or something similar and how long you had to wait? and whether or not you in fact had it when the hospital said you would? also i am wondering how long after that will we be able to start ICSI/IVF?

Thanks...any advice very much appreciated x

5 cycles (3 xICSI, 2 x FET) All BFN
3 x cycles (2 x ICSI, 1 x FET) with basic immunes-All BFN
First appointment with Dr Gorgy-2nd April 2013-discussed another cycle using LIT and Humira. More tests done...awaiting results.

    United Kingdom

Posts: 951

Reg: May 13th 2009

Location: Manchester

Children: One gorgeous little boy called Daniel

Thanks: 1 / 0

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71

Tuesday, July 28th 2009, 10:58pm

RE: Hi

I have just been accepted for treatment this month at St Mary's. This is my first try. They are not doing the treatment at St Mary's at the moment due to the building work so are referring patients to local private hospitals which are MFS & Care in Manchester.
I rang last weekend to request treatment and they called me in for a blood test and scan on Tuesday. They explained then that I would be going on the short treatment protocol and would get back to me if I had been accepted. They called me on Saturday to confirm they had accepted me and I am going to Care & that Care would contact me before my next period.
Hopefully I will be starting treatment around 12/08/09!
Hope this helps anyone who is slightly behind me in the process as I have been worried about what was going to happen on the change over during the building works.
So far I have no complaints with how St Mary's have been functioning, one or two blips with my notes but all in all they've dealt with me very quickly and the nurses are lovely. :smile:

Posts: 20

Reg: Jul 27th 2009

Location: North Lancashire

Children: Care

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72

Tuesday, July 28th 2009, 11:26pm

OMG.....This is terrible news!!!

Im waiting for my next period and then I have been told to phone st mary's.
I had no idea that they were closing the dept for building works. Im now assuming that as this will be my first try that | wont get accepted this time round.
Im devastated. My periods are so irregular, its been 4 month since my last one!
I know I have one on the way (really sore boobs) and I was getting all excited as i thought that finally I would be able to start!
I will make the call when my period arrives but I suppose that I better get myself prepared for bad news.
I will let you know what happen x x

Posts: 670

Reg: Feb 25th 2009

Location: Lancashire

Children: Trying very hard

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73

Thursday, July 30th 2009, 2:13pm

Hello Ladies

Dont think I've spoken to any of you before as I mainly chat on the Male Factor thread. Just to fill you in:

Me: 25-no known problems
DH: 25-NOA (3x SA- 2 of them showed 0 sperm and the last one (done privately I might add) showed 1 sperm) TESE hopefully in September.


I was on the phone to St Marys yesterday trying to find out a date for my DH's TESE. At the last appointment they said it was likely to be in september. Anyway when I rang they said they still dont have a date for us and that they were closed for refurbishemnts. I am shocked after reading your posts, which say that they will not be re-opeing until sep/oct as she made out it was just for a couple of weeks! (probably just to get me off the phone)!!!

I am glad I have found a thread regarding st marys as I have a couple of questions if anyone could answer them for me?

1) If any of you are in the same situation i.e SSR for DH's....how long after them agreeing to the op and filling in pre op forms etc was the actaul operation done?

2) How long after the SSR will we have to wait for ICSI?

Thanks...hope your all doing ok

xxxGemmaxxx

5 cycles (3 xICSI, 2 x FET) All BFN
3 x cycles (2 x ICSI, 1 x FET) with basic immunes-All BFN
First appointment with Dr Gorgy-2nd April 2013-discussed another cycle using LIT and Humira. More tests done...awaiting results.

chatterbox

Megastar

Posts: 8,584

Reg: Nov 30th 2007

Children: Two heaven sent miracles!

Thanks: 36 / 16

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74

Thursday, July 30th 2009, 3:25pm

Hi ladies

I'm not sure where I'm going to end up as I have a private consultation with the Alexandra clinic in Manc. I'm not sure where the consultant Mr Nardo works out of whether its CARE, St Mary's, Liverpool or somewhere else. I suppose all will be revealed when I meet him.

From what you're all saying I'm just praying its not the St Mary's unit!!

blowkiss

Me 40 DH 35 TTC 10yr
peritoneal mesothelioma, cystectomy 97 & 00
peritonectomy, lost both tubes & most of left ovary Aug 07


Dec 07 BFP b/ov m/c 9.6wk
July 08 BFN
Dec 08 BFP b/ov m/c 9.6wk

July 09 BFN
Nov 09 BFP 2 x sacs 1 b/o 1 no hrtbt m/c 9.2wk
May10 BFP at 8+4 m/mc @10wk scan ERPC

Found: High NK cells, DQ Alpha match, LAD neg & PAI-1 pos...

NOV 2010 - Immune IVF at CARE Manchester
:BFP: [zx076] :girl: born 25/8/11

OCT 2012 - Immune IVF at CARE Manchester
:BFP: [zx076] :boy: born 24/6/13

    United Kingdom

Posts: 951

Reg: May 13th 2009

Location: Manchester

Children: One gorgeous little boy called Daniel

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75

Thursday, July 30th 2009, 7:11pm

Hi Gemma & Chatterbox

Gemma,

I don't know much about the treatment you are undertaking, sorry. My husband & I have 'unexplained infertility' so although there's nothing wrong with either of us, there's nothing to fix either...so frustrating. Is there no chance you too can get referred to Care or MFS to get your treatment done on the NHS whilst they are having the building work done? Perhaps worth asking..... I hope your treatment comes soon and goes well x

Chatterbox,

Don't be put off by St Mary's. They've had to have the building works because the main hospital has closed and moved to a new facility but the IVF unit is staying where it is but needs its own entrance building apparently. So far despite the building work I have no complaints because the staff have been lovely & I'm being referred to Care but on the NHS and as its a private facility their success rates are higher than St Mary's anyway so I'm taking it as a golden opportunity. Again I hope your treatment goes well too x

lisa69

Newbie

Posts: 7

Reg: Jul 28th 2009

Location: macclesfield

Children: st marys

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76

Saturday, August 1st 2009, 12:15am

Hi everyone this is my first time on here. Im currently under St Mary's and cant fault them at all. I started going there in 2006, after lots of tests they found i had pcos. I was under the care of Dr Nardo (amazing guy) he told me to lose weight as i was so over weight. Im only 5ft 4 and at the time my weight was 16st!!! Over the years of ttc i suffered 5 miscarrages which he put down to my pcos and weight.

Now i have losed 5 st and feel fab, i was re-referred by my GP about 3 weeks ago and 2 weeks ago recieved the IVF proforma. I filled this in and returned same day as wanted to get things moving asap. On wed this week i recieved a letter asking me to go in for scan and bloods, i had to ring asap as my cycle is very long and on have periods once every 7/8 weeks. I called them on Wed afternoon and they said come in tomorrow(thursday) as u can imagine i was in total shock how fast things were moving. All went well yesterday scan showed i had a cyst on rght ovary 3cm which was such a improvment as 2 years ago i had 6 large cysts and lots of small ones. So was very happy with finding out i now only have the one. They now said i have to wait 2/3 weeks for bloods to come back then i will recieve a appointment through to go back for ivf consultation to talk through everything and sign consent forms.

Can anyone shed some light on what happens at this appointment and what the next steps are, and how long b4 i'll be starting traetment?????

As im sure your all aware the waiting process is so horrible and the weeks drag!! ?(

    United Kingdom

Posts: 951

Reg: May 13th 2009

Location: Manchester

Children: One gorgeous little boy called Daniel

Thanks: 1 / 0

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77

Saturday, August 1st 2009, 1:06pm

Hi Lisa

I only starting posting on here last week although I've been reading the threads for months now. I went for my first IVF consultation on 16th June and saw a very nice lady consultant called Dr Fitzgerald. At this consultation she went through the whole IVF process and got my husband and I to sign all the relevant consent forms and sent us for blood tests. My hubby had already had to go in for SA test before our appointment. She said on my next period I should have a 'day 2 blood test and scan' and then my next period after that I could ring up to request treatment although there was no guarantee I would get treatment that month if they were too busy. She did explain though that things had calmed down a lot so the chances of being accepted the first month you ask are now quite good.

My next period arrived a week or so after the June consultation so I went in for my day 2 blood test and scan. (Note: you don't get any phone calls to let you know the results of the blood tests unless there is a problem so in my case, no news is good news). Then when I started my period in July I rang up to request treatment. This was on a Saturday. They took my details and said they would call me back & they did on Monday. They told me to go in on Tuesday morning for a blood test and scan which I did. At this time the nurse explained that due to my results from previous blood tests, I was going on the short treatment cycle which means the drug treatment is started on day 2 of your period. Because I was already on day 4 this meant if I was accepted for treatment I would start from day 2 of my next period which is due around 11th August. They called me back on the following Saturday to confirm I had been accepted for treatment & that the private clinic, Care would call me before then to arrange for me to go in for training on using the drugs etc. (They are using the private clinics for the actual treatment due to the building works you will have seen us mention).

I haven't had a call from Care yet but have had a registration form from them to complete so I know they have started the ball rolling. I'm expecting them to call me next week with a view to my IVF cycle starting the week after.

Whether I start treatment or not in August will all dependent on whether my ovaries are ok to proceed so there are no guarantees in any given month you will go ahead. When I had my first scan in June, they scanned my ovaries and said I had 11 folicles present between both ovaries, it didn't mean anything to me then, however when I went in July, my scan showed I only had 5 follicles present between both ovaries. At this point the nurse explained the number of follicles present relates to whether you can start treatment as they want you to have minimum of 8 before they start treatment. This was a bit of a shock as had I of wanted treatment that cycle I wouldn't have been able to. The nurse explained the number of follicles can change from month to month so I just have to hope that when my next period comes & they do the scan I have more than 8...stressful this IVF business isn't it!!

Basically if I do go ahead with treatment in August it will be two months from my first consultation to starting treatment & so far everything has gone quite smoothly so I suppose if you encounter any problems it might be a month or so longer. Hope I've not overloaded you with information but thought it best to put it all out there :smile:

lisa69

Newbie

Posts: 7

Reg: Jul 28th 2009

Location: macclesfield

Children: st marys

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78

Sunday, August 2nd 2009, 8:45pm

Hi Lynne,

Thank you so much for all ur advice it's really helped. Was just wondering if all this is the same for women who only have a period once every 2/3 months because if thats the case i'm in for a very long wait??? :sadface:

chatterbox

Megastar

Posts: 8,584

Reg: Nov 30th 2007

Children: Two heaven sent miracles!

Thanks: 36 / 16

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79

Monday, August 3rd 2009, 10:43am

Lisa - Iniital appts are usually full of form filling and results of bloods. They should discuss the protocol they are going to prescribe based on your blood results.

I'm glad you think Mr Nardo is great as I have an appt with him on 24th August, but as yet I'm not sure whether he will be sending me to Manchester or Liverpool for my scans and treatment (assuming we get to that point). Liverpool I've used 4 times now, so I know the clinic well, it will be quite a change if it all gets moved to Manchester.

Lynne I'm a bit shocked about your news from CARE. I can't believe they had reservations about starting you with less than 8 follies - as a low responder I wouldn't get off the starting blocks in that case!! :8o:

Hope everyone well today! :d

xxx

Me 40 DH 35 TTC 10yr
peritoneal mesothelioma, cystectomy 97 & 00
peritonectomy, lost both tubes & most of left ovary Aug 07


Dec 07 BFP b/ov m/c 9.6wk
July 08 BFN
Dec 08 BFP b/ov m/c 9.6wk

July 09 BFN
Nov 09 BFP 2 x sacs 1 b/o 1 no hrtbt m/c 9.2wk
May10 BFP at 8+4 m/mc @10wk scan ERPC

Found: High NK cells, DQ Alpha match, LAD neg & PAI-1 pos...

NOV 2010 - Immune IVF at CARE Manchester
:BFP: [zx076] :girl: born 25/8/11

OCT 2012 - Immune IVF at CARE Manchester
:BFP: [zx076] :boy: born 24/6/13

lisa69

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80

Monday, August 3rd 2009, 6:35pm

Thanks everyone for ur advice, i just hate the waiting i just want to get going soon.

Good luck to all. :smile:

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81

Tuesday, August 4th 2009, 8:53pm

Hi Chatterbox

Sorry if I confused you, it was St Mary's that did my last scan and said that about the number of follicles.

I've done a bit more digging since and have ended up even more confused now though because it seems that its only normal to have lots of follicles once you start stimulating and yet that was just my ordinary cycle....either that or I've misread things....not sure what to think now?

I've been put on the short protocol but haven't yet been told why although according to what I've found surfing the net it seems they use this for people who've already responded poorly to long protocol or who have a low ovarian reserve (as I've not had any treatment yet it would suggest I fall into the latter catergory??)

I've been in touch with Care today who have called me in this Friday for injection instruction and then hopefully I should start next week, I hope I will find out more then...suddenly its all moving so fast!

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Reg: Feb 25th 2009

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82

Wednesday, August 5th 2009, 12:15pm

BMI

Hi

I was just wondering if anybody knows whether St Marys require you to have a certain BMI before you can start treatment?

5 cycles (3 xICSI, 2 x FET) All BFN
3 x cycles (2 x ICSI, 1 x FET) with basic immunes-All BFN
First appointment with Dr Gorgy-2nd April 2013-discussed another cycle using LIT and Humira. More tests done...awaiting results.

lisa69

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83

Wednesday, August 5th 2009, 10:13pm

Hi Gemma,

Your Bmi has to be below 30 at st mary's hun. Hope this helps you.

They are very strict, they refused to treat me until it was below mine was 37 i have now got it down to 28.

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84

Thursday, August 6th 2009, 9:20am

Hi Lisa

Thanks for telling me that! the clinic have never told me anything like that so if i hadnt have found out we would have got to treatment and been refused !!! they should tell you this straight away so you have time to sort it out! diet it is then...though im not too far off it being 30.

xxx

5 cycles (3 xICSI, 2 x FET) All BFN
3 x cycles (2 x ICSI, 1 x FET) with basic immunes-All BFN
First appointment with Dr Gorgy-2nd April 2013-discussed another cycle using LIT and Humira. More tests done...awaiting results.

Posts: 2

Reg: Jul 10th 2009

Location: Manchester

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85

Monday, August 10th 2009, 3:15pm

St Marys Manchester - Private outsourcing??

Hi

Just wondering if anyone knows more about what is happening with St Marys. I was hoping to get treatment this month but have been told they outsourcing to other clinics while they are refitted etc. Anyone else going through this? Does anyone have any idea how long I may have to wait to hear from another clinic or which clinics it is they are using?

Thank you!! xx

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86

Saturday, August 15th 2009, 5:11pm

St Marys Manchester anyone??

Hi

I'm so frustrated. Is anyone else at St Marys Manchester having IVF that can reassure me?

This is my first cycle of IVF, was told to call between 9-11 on 1st day of period to see if they can accept us. It just rings and rings and rings and rings - no answer! We've tried all day. Is this because its a saturday and if so will it be the same tomorrow and is it likely i wont get through until Monday? I'm just so frustrated. Why dont they have an answerphone?

Its the first day ofmy period so my patience isn't great at the best of times but this has just wound me up no end!!! :bawl:

2 ectopic pregnancies - 2005 & 2009
beautiful daughter born Sept 2010 thanks to IVF
IVF#3 April/May 2012 - BFN
IVF#4 in Oct/Nov 2012



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Mavis

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87

Saturday, August 15th 2009, 5:39pm

I'm sorry Lalazip X(
Try the number tomorrow anyway.
If no joy, when you finally get through to someone on Monday, ask about what number you should ring when you need to get hold of someone out of hours and at weekends.

Hopefully not being able to contact them on day 1 is not a problem, calling them on day 3 should be ok (but if that is the case, they should have told you that!)

I hope you get to start very soon,
M
x

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88

Sunday, August 16th 2009, 8:11pm

Thanks Mavis. We tried again today and it still rand and rang - no answer or no answerphone. So I'll be calling them again tomorrow - I hope we get through and that they accept us. Just want to get started on it now.

2 ectopic pregnancies - 2005 & 2009
beautiful daughter born Sept 2010 thanks to IVF
IVF#3 April/May 2012 - BFN
IVF#4 in Oct/Nov 2012



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Eeyore

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89

Sunday, August 16th 2009, 8:20pm

Hiya Lala!

Maybe ask in this thread? One of the girls there may be able to help?

St Mary's Hospital, Manchester

x


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Palegirl

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Reg: Apr 21st 2009

Location: Manchester

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90

Sunday, August 16th 2009, 8:25pm

For the last 3 months I had been phoning St Mary's to request treatment, but this month I received a phonecall from Care, one hospital that St Mary's is using to outsource its current treatments. I have had one appointment and they were wonderful, the nurse totally put me at ease.

Currently I am 5 days into our treatment, hopefully you won't be far off too.
FET - 26th January 2010 = BFP !!!!!! 31st March 2010 11 week scan showed baby had died.

lisa69

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Reg: Jul 28th 2009

Location: macclesfield

Children: st marys

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91

Monday, August 17th 2009, 7:42pm

Hi,

Just wondering if anyone can advice me, i went for scan and bloods 2 weeks 4 days ago and i'm now waiting to recieve an appointment to go and see DR Fitzgerald for consultation about which protocol i'll be doing. How long does it normally take for the appointment to come through and then how long do u normally have to wait for the appointment itself? ?(

Thanks all xxxx
Lisa xx

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92

Monday, August 17th 2009, 8:38pm

Hi there

I'm starting at St Marys soon hopefully. AF started on Sat, tried calling yesterday and sat but no answer and got thro this morning. They called back this afternoon and we're going in on Weds morning to have a scan and blood test. I'm a bit worried though as they asked me to take a copy of my current/latest smear result. I only had one done on 7 Aug so those results wont come back for weeks yet so I'm taking my current one which was taken 18 Aug 2006 so it will be a day 'out of date' or over the 3 years. Will they be that strict? Will they stop me having t'ment this month? I'll be peeved if they do as this is the 1st I've been told about needing an up-to-date smear as if they'd mentioned it I would have brought mine forward and had it doen moenths ago. Hope they're ok about it. :innocent:

Good luck to everyone having t'ment at the mo

xxx

2 ectopic pregnancies - 2005 & 2009
beautiful daughter born Sept 2010 thanks to IVF
IVF#3 April/May 2012 - BFN
IVF#4 in Oct/Nov 2012



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93

Monday, August 17th 2009, 10:29pm

Thanks

2 ectopic pregnancies - 2005 & 2009
beautiful daughter born Sept 2010 thanks to IVF
IVF#3 April/May 2012 - BFN
IVF#4 in Oct/Nov 2012



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MJJ

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Posts: 4

Reg: Aug 20th 2009

Location: Manchester

Children: St Mary's

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94

Thursday, August 20th 2009, 11:41am

Brand new to St Mary's

Hi,


I'm really, really new to all this and already quite anxious to find out when and how things are going to happen!

Basically, we need IVF as my partner has had cancer treatment rendering him infertile. He has sperm frozen and we've always known this would be the method we'd have to use.

We've been to our doctor and she's referred us to St Marys and i've made an appointment over the phone. Only problem is, they couldn't give me any information! Will we receive a pack in the post or some further information before this appointment? Every day i'm thinking something will be in the mail and it's only been about a week since making the appointment!! Ha ha!

Anyway, if someone can help i'd really appreceiate it - we've literally had no tests yet, just one visit to docs xxx

Linzilou

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Reg: Aug 20th 2009

Location: Salford

Children: ST Mary's

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95

Wednesday, August 26th 2009, 10:47am

Hi

Hi Everyone

We are waiting to see my GP on friday and then hopefully will be referred to St Mary's for ICSI after DF has low count from last SA.

Can anyone tell me what happens after the referral is sent?

Thanks, Linzi xx
Linzi x

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96

Friday, August 28th 2009, 12:16am

RE: Hi

Hi Ladies

It appears no-one replied to your posts...it seems this thread has periods where there is no activity because its so specific.

I can only tell you what happened to me, I was referred by a consultant at another hospital so my experience might be different but basically a few weeks after being referred we got a pack through the post and an appointment to attend the IVF unit. The appt was for a month or so after we got the pack. When we went for the initial appt at St Mary's we had loads of bloods taken etc & met the consultant and once all blood tests were back we were then able to request treatment from my cycle. I had to go in for a couple of scans before my treatment started but all in all it took about four/five months from being referred to actually starting treatment but as I say I'd been under another consultant at Hope hospital before being put on the waiting list. It seems though that no matter what, people are seen really quickly at St Mary's. Hope this helps x

Susie70

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Posts: 54

Reg: Aug 17th 2009

Location: NW England

Children: 1 angel in heaven Dec 2009 and 1 dd Roisin born Nov 2010 - our little miracle!

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97

Sunday, August 30th 2009, 10:52pm

Hi,

I have my L&D a week Mon (7th Sept) then we are being referred to the IVF clinic. The whole length of our investigations have lasted since we were referred by our GP last November but we've had the screening, blood tests and so on now.

I'm hoping that the wait for the IVF appointment isn't too long but everyone tells me that once you are in the system it is quite quick. I hope both of you get your appointments soon and for what it's worth, I've found them really helpful and nice at St Mary's - the new hospital is great too!!

All the best in your treatment and keep in touch.

Susie xx


1st BFP: 5 Nov '09 mmc 10wks-Dec '09, 1 angel in heaven
2nd BFP: Mar '10 Roisin Susannah born 27 Nov '10

MJJ

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Children: St Mary's

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98

Tuesday, September 1st 2009, 8:59am

Thanks Lynne and Suzie for getting back to me!

I actualy expected a one to two year waiting list and was content with that but when I found out there's a chance of beginning treated within a couple of months I was over the moon!!!! :happy:

Patience is the key now I suppose - Something i'm not really blessed with!!!

Seriously though, i'm just really glad that we have been referred and that we are eligible for NHS funding as initially we thought that'd be a problem as other half has an 18 year old daughter! Our PCT were really good despite the fact that thier criteria states no treatment if any existing children! Fingers crossed they've not made a mistake!


I hope both of you are sucessfull with your treatments and thanks again for replying - it does rest your mind when someone can tell you what to expect!

lisa69

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99

Wednesday, September 2nd 2009, 8:48pm

:smile:Hi ladies,

I have my appointment on the 15th sep with Dr Fitzgerald, does anyone know what happens at this consultation and what the next step is after this.

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100

Friday, September 4th 2009, 12:22am

Hi Lisa

I had my appointment with Dr Fitzgerald and she was lovely. At the appointment she will explain the ins & outs of treatment, discuss with you what tests are needed & I went the same day & had loads of blood tests done. There are tons of consent forms she needs to go through with you and your partner too. Once the blood I had to have a scan on my next cycle and then once blood results are back (which is usually within 6 weeks) you can start to request treatment...well thats how it worked with me anyway.

Hope this helps xx

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