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  • "Louloulouisa" started this thread

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Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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Thursday, December 4th 2008, 7:56pm

ARGC immune tests & treatment COSTS

Hi Everyone

I'm New. :hello:

I have just had my 5th very early repeat implantation failure/recurrant miscarriages/chemical pregnancy last week, and hit rock bottom.

the first month I got a faint positive, but then came on - :sadface:

each time, It seems that I spend less and less time being in the early stages of pregnancy, - the first month i thought i was pregnant, i had the symptoms for about a week, and then as each month goes by i have the symptoms for less and less time. Which is not giving me the oppertunity to provide a BFP.

Doctor say's its normal - try again, he even said I had OCD over it! X(

But now I've found this site, I have renewed hope :D I have been reading some of your stories - hope you don't mind, they have given me back Hope. I now believe I must have immune issues, as I'm sure KT75 won't mind me saying I have started chatting to her, and she said that Dr Alan Beer writes "reacurrent miscariage/chem pregnancy suggest that earlier and earlier losses are a sign of immune issues."

So (after all this rambling!) my question is, does anyone know how much it will cost to be tested & treated at the ARGC in London?

I know it depends on what kind of immune issues I have, just started learning that there is levels 1-5, but can anyone give me a rough idea?

Thanks in advance

Lou xxx
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

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Thursday, December 4th 2008, 9:41pm

Welcome to :FZ: Lou

I am so very sorry for your losses.

I'm unable to help with your questions but I wanted to say hello. I hope you like it on here, we have very friendly and supportive members that are sure to make your TTC journey that little bit easier, I hope you feel right at home with us all soon.

Here are some links that you may find useful.

There is an abbreviations section HERE so you know what we're all going on about.

There is a TTC naturally section HERE where you can get to know others TTC naturally.

There is a secondary infertility/trying again section HERE where you can talk to others in a similar position to yourself.

There is a getting started on fertilityzone thread HERE this contains everything you need to know about getting started on FZ and a few guidelines too.

There is a how to search section HERE so you can get the maximum benefit from the forum.

If you have any questions about anything, just ask. :smile:

Wishing you all the luck in the world with your TTC journey, I hope you get your BFP soon!!

blowkiss


Angel baby April 07, Angel baby December 07, DD1 August 09, DD2 March 11, DD3 October 13

  • "Louloulouisa" started this thread

Posts: 1,174

Reg: Dec 1st 2008

Location: UK

Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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Thursday, December 4th 2008, 9:47pm

Ahhhh blowkiss what a lovely welcome, thanks Polly pocket. xxx
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

bubble

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Thursday, December 4th 2008, 9:59pm

Hi Lou and welcome :D

We have a number of members who are really clued up on immunology issues and I'm sure one of them will be along soon to help you out.

Wishing you the very best of luck on your journey

x

ttc since July 06. 8 cycles of clomid. BFP on cycle 5 (Dec 07) ended in m/c at 9.5 weeks. Second BFP on cycle 8 (May 08)




  • "Louloulouisa" started this thread

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Thursday, December 4th 2008, 10:02pm

Ahh thanks Bubbles blowkiss
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

  • "Louloulouisa" started this thread

Posts: 1,174

Reg: Dec 1st 2008

Location: UK

Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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Friday, December 5th 2008, 11:22am

Hi

I just thought I would post on here my findings, I just called the ARGC and they seem really really nice.

Initial consultation 150.00
Immune blood screening (Initial profile) 780.00

when I told the nurse about my problems, she suggested I may need IVIG. (although she couldn't promise over the phone & I would require a proper Initial consultation)

IVIG can cost around £1,186 - £1,695, (she said its possible that it could be higher a maximum of £2,304, but she has never had to charge that)

I asked if they could be any other costs, she said she really couldn't say for sure, depending on my "protocol" - (is that right?) i may need scans/drugs etc.

Anyone else had simular symptoms as me? had treatment? how did you get on? how much was the treatment in total?

thanks

Lou xxx
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

kar1

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Saturday, December 6th 2008, 6:13pm

you could buy the book

dr beer is your body baby friendly, this will give you a good idea on immune testing
TTC 12 years

2 early losses

lots of ops and tx

both tubes removed

5th fresh short protocol
:BFP:

Tyler May born 5/5/2010 by emergency c section. Tyler is our sunshine

Minerva

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Posts: 51

Reg: May 23rd 2008

Location: Midlands

Children: ARGC

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Saturday, December 6th 2008, 6:30pm

Hi Louloulouisa

I have recently completed a full immune cycle at the ARGC (Sadly ended in m/c) and it is hard to estimate the total cost. If I separate out travel expenses etc then our cycle cost approx £11-12K. And I don't think that is by any means unusual. Re the IVIg it's possible (if they decide you need it) that you may only have one round but they will re-test your immunes immediately after a +ve pregnancy (another £700 gone!) and you may need a further IVIg treatments to sustain the pregnancy. From my experience I would say it is the daily blood tests that ramp up the cost. If they happen to be testing multiple things (E2, FSH, LH & Prog) you could be looking at £120 (£30 per test) per day. Towards the end of stims you may be called back for further blood tests in the afternoon. I was on two occasions. I'm not saying this to deter you but there are an awful lot of hidden costs and I think it's aswell to be prepared. You don't pay for any scans during the stims but you do pay for the baseline & mid cycle scans & pregnancy ones (I think)

Hope that helps
Minerva
Me - 33, DH - 35 TTC 15mths, MF
ICSI April/May (Priory) - BFN
ICSI Sept/Oct (ARGC) - BFP, M/C at 5 weeks

  • "Louloulouisa" started this thread

Posts: 1,174

Reg: Dec 1st 2008

Location: UK

Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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Saturday, December 6th 2008, 8:13pm

Hi Minerva

so so sorry to hear about your m/c ;(

Oh My Gosh! 11k - 12k!!!!

do you mind me asking, what's been happening to you m/c wise? I find that I lose them earlier & earlier, do you have that? I'm so glad you told me, but Oh god 11k - 12k :shocked:

thanks for taking the time to reply, babydust to you xxx blowkiss
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

  • "Louloulouisa" started this thread

Posts: 1,174

Reg: Dec 1st 2008

Location: UK

Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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10

Sunday, December 7th 2008, 8:53am

Hi Kar1

sorry, I didn't see your post. Hi

I have just received his book in the post, and am trying to get my head round it all!

thanks for posting to me blowkiss
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

Minerva

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Location: Midlands

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Sunday, December 7th 2008, 10:46am

It was my first m/c but a devastating experience as failing at the ARGC is really tough because a) the £££ you've invested and b) because their m/c rate is so low. However, following a consultation there it seems that the immune protocol wasn't right for me and I will be having a different combination, at different times in my next cycle. I was prescribed Humira which caused an adverse reaction (opposite to what it's supposed to do!) and I'm frustrated because we weren't warned that 10% of people can react in a negative way. We now know to be much more assertive in future and whilst it's important to trust their clinical judgement it's equally impt to challenge it when/where necessary.

Good luck with whatever you decide to do :smile:

Minerva
Me - 33, DH - 35 TTC 15mths, MF
ICSI April/May (Priory) - BFN
ICSI Sept/Oct (ARGC) - BFP, M/C at 5 weeks

  • "Louloulouisa" started this thread

Posts: 1,174

Reg: Dec 1st 2008

Location: UK

Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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Sunday, December 7th 2008, 2:38pm

Hi Minerva

will you have to pay again? also I've heard a rumour that, If you have IVIG treatment at the ARGC you HAVE to have IVF? Did you have to have IVF with your IVIG treatment?

Thanks for your advice, I am desparately trying to read throuh Dr Alan Beer's book, to learn as much as possible.

I don't think I could afford 11k -12k, that is a lot of money. I'm beginning to fear that this is the end of the road :(

but we won't know untill i get my blood tested, and find out

Lou xxx
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

Minerva

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Posts: 51

Reg: May 23rd 2008

Location: Midlands

Children: ARGC

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Sunday, December 7th 2008, 4:34pm

Hi Lou

We have male factor infertility so we always knew that ICSI would be the only option. However, I do know that the ARGC also use immune treatments for patients undergoing IUI. I would imagine that the vast majority of patients are there for IVF/ICSI but they do treat all infertility so it's not restricted to IVF. I'm not sure you would be able to have IVIg alone without having a treatment cycle (of some sorts) but I would check with the clinic.

You might also find it helpful to visit the website of Beer's clinic - http://repro-med.net/. There are some very interesting medical reports re. immunological treatment for infertility. I think you can also conduct a 'self test' to see if you are likely to need intervention. Not sure it's wise to self diagnose though!

I don't want to scare you with those prices but if you do need IVF AND immune therapy you can expect to pay at least £10K, possibly more. At no point during our cycle there did anyone discuss potential/approximate costs, so forewarned is forearmed....

Minerva x

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Me - 33, DH - 35 TTC 15mths, MF
ICSI April/May (Priory) - BFN
ICSI Sept/Oct (ARGC) - BFP, M/C at 5 weeks

Posts: 2,643

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Monday, December 8th 2008, 10:43am

Hi Lou

I have several immune issues, in all categories except category 2 :sadface: see my signature.

I went direct to Alan Beer for our testing and it did cost more than going with a clinic, however we are not having treatment and trying naturally. I am not sure if you are having treatment or TTC naturally?

I found my miscarriages did get earlier as you mentioned. If you have immune issues your body will react more and more each time you are pregnant and will have more killing power next time around. I found that for my last pregnancy I didn't even really have any symptoms and lost that one at 7 weeks, previously it was 10 weeks, then 9 weeks then 8 weeks.

You can read alot of info on the above threads or ask away, I have alot of knowledge on immune issues.

In answer to your question about IVIG, you do not have to have IVF to have it. We are having our first IVIG in January prior to trying naturally and I will have the treatment at home. However you need a prescription from a UK doctor to get the drug from healthcare at home.

Hope this helps.

xx
TTC naturally, five miscarriages 2006-2009, Immune issues

BLONDIE'S IMMUNOLOGY DIARY

  • "Louloulouisa" started this thread

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Monday, December 8th 2008, 11:08am

Hi Blondie

I'm sorry to hear about all your miscarriages. :hugs:

I'm so glad that you have replied to my post, I've been reading through some of the other posts, and you seem like a bit of a guru on this subject, and I really appreciate you saying that I can ask you questions. - although you may regret it now, as I may keep on babbling on and on! :zipit:

we want to TTC naturally too, but not until we have have the ARGC blood tests first to see what exactly is wrong.

I'm still trying to learn all about it, I got Dr Beers book on friday, and have read a quarter of it :drunk: so you will have to forgive me if i say something stupid!

What is IVIG, I mean, I know what it stands for, but does that mean you have to give yourself injections??? - I'm probably being stupid! (you said you will have it at home)

I'm a bit worried about the whole getting prescriptions from my doctor, he hasn't exacty been sympathetic! maybe he will be more willing if I come back with proof of immune problems

Thank you so much for replying, good luck with your treatment

Lou xx blowkiss
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?

Posts: 2,643

Reg: Feb 28th 2007

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Tuesday, December 9th 2008, 4:14pm

Hi

IVIG is made up of 50,000 donor's blood, or the plasma of sorts from the blood (not entirely sure - the book will explain) but it is given to you via a drip over a period of 3-4 hours and can be done in a hospital under the care of your consultant or at home by a qualified nurse.

It will have to come from an immune specialist or clinic as your normal GP hospital will not prescribe it and unfortunately it is not available on the NHS. I believe ours is costing around £1300 a time. We had to see Paul Armstrong at the Portland Hospital to have LIT treatment and he agreed to give us our prescriptions for IVIG as he has knowledge of immune issues, if he hadn't have given them then we would have been stuck or would have had to try ARGC or CARE...

Once you have the immune tests you will be told what you need. My NK's are 22% and are only lowered by IVIG, this they find out when they do the NK's test. They mix your blood with IVIG to see what the levels come down to. Steroids can help with NK's but they haven't helped mine although they do still prescribe them.

Hope that helps.

xx
TTC naturally, five miscarriages 2006-2009, Immune issues

BLONDIE'S IMMUNOLOGY DIARY

Posts: 666

Reg: May 28th 2008

Location: Falkirk, Scotland

Children: one stepson ..& one miraculous wee boy!!!!!!!

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Tuesday, December 9th 2008, 8:57pm

Hi there Lou and welcome to FZ, so sorry for your losses hon, but you've come to the right place - the girls are great!

I've only just seen your post - bummer really coz I was gonna offer to send you my copy of Dr Beers book, I'm kinda done with it now ...I was found not to have high uNK's recently, so am still trying to find my answers I'm afraid.

I hope you find your answers hon

Vx


10 Losses:
Aug07@11wks
Oct07 Dec07 Mar08 & Apr08 - biochemical pregs
June08 @7wks (baby aspirin)
July08 & Aug08 - biochemical pregs
Oct08 @6wks (cyclogest)
Feb09 @6wks (cyclogest & baby aspirin)


...trying Traditional Chinese Medicine & accupuncture just now!



My Diary



  • "Louloulouisa" started this thread

Posts: 1,174

Reg: Dec 1st 2008

Location: UK

Children: (6 angels in heaven) 2 girls a previous relationship, and now a baby boy thanks to treatment

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18

Tuesday, December 9th 2008, 9:29pm

Hi Scotwife

Sorry to hear about your losses too :(

I'm so pleased that you posted me, tho, your post was the first post I found when I googled for my search and led me to join & post!

That is so so lovely of you, to think you would of sent me your book :hugs:

So have you had blood tests to check your immune system? I'm hopefully going to go and have mine tested at ARGC.

Everyone's so lovely on here :O :D

I hope you find your answers too

Lou xxx
Need reproductive immunology success stories please 2 help others :)

have u got immune issues?




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