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taxihome

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Friday, October 29th 2010, 7:46pm

When Referral Comes Too Late for your Original 3 Tries

Hi All.

I have asked this in the over 40's thread but then realised would be best to post here.

I went in for fertility treatment at my local NHS in Jan 2010, well first appointment was actualy end of 09. I had to chase and chase after all my tests which took ages & some were pointless as we already had them prev and results were known. Some were not. Finaly after chasing I got reffered & have just started round 1 of ICSI. I am 39 & will be 40 in Jan. Obviously now my full 3 cycles that I am entitled too have gone down to 1 maybe 2. This seems so unfair when they have had a whole year to refer me. Has anyone ever heard of anyone being given the whole 3 tries despite going over the age? I just want to see if it is worth writing to my PCT if this cycle fails & I can not get no 2 in or if no 2 fails.

Sorry to bombard.

Thank you.

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kitty72

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Tuesday, January 25th 2011, 7:11pm

Hi there

I don't know about this but i have been advised (all be it by admin) that I won't get 3 goes as I will hit 40 before they get chance to do all 3 - may fit 2 in - although i don't know if they will change funding due to cuts and maybe will only be entitled to 1 chance only as some areas only provide that now! good luck!

taxihome

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Wednesday, January 26th 2011, 5:59pm

Hi There
Well I can appeal but my chances are so slim it is barely worth the effort apparently>
What I am going to do is send a letter off anyway. \Supposedly they are going to up the age but I guess if they do that they will cut the number of goes anyway.
I am happy to have had 2 goes so really I can not go complaining. The difference between PCT's and 1,2 or 3 cycles is that people who have 1 go can often keep going if cycle is cancelled before ec or et. The ones that have 3 cycles each cycle starts from the first injection, regardless of how far you do or dont get. I guess in some ways the whole thing ends up evening itself out. Sadly not for those areas that do not cover it though. :(

Good luck to all those waiting.

[zx071]
2 x man boys -MC,Ectopic IVF x 4 Natural BFP/Born sleeping 22/WksRIP LO
Jan/11:ICSI:BFP: bab21 [zx115] Our dream has finally come true
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This post has been edited 1 times, last edit by "taxihome" (Jan 26th 2011, 6:00pm)


Maria72

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Wednesday, January 26th 2011, 7:41pm

I think it depends on the PCT. In Suffolk /East Anglia you are entitled to 3 fresh goes (1 go = 1 e/c, so if they cancel before e/c it doesn't count) plus 3 FETs if you have any frozen after the 3 fresh tries BUT they are reviewing in April I think.

You want to check this out:

FERTILITY FUNDING FACTSHEETS

and this:

East of England NHS Trust - change of contract!

This post has been edited 1 times, last edit by "Maria72" (Jan 26th 2011, 7:43pm)


louise78

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Wednesday, January 26th 2011, 8:53pm

Blinking nora - 1 fresh cycle here ( up to ec) and any embryos from that cycle in fet. Varies so much doesn't it! Postcode and all that. I would write the letter th you have nothing to lose x
6x cycles of clomid bfn
2X iui bfn
1x ivf - identical triplets - miscarried triplet at 9 weeks, lost my other two beautiful boys at 23 weeks - passed away shortly after birth 17th June 2010.
4x FET 1 early loss
1 natural early loss.
2011 Nov immune cycle FET bfn
2012 Jan immune cycle ivf bfp baby7 Ds arrived safely 1/10/12 : D
2013 Aug immune cycle FET bfp confirmed miscarriage at 8 weeks
2014 Jan immune cycle bfn
2014 April immune cycle bfn.
2014 July fet bfp ❤️ seen at 7,9 and 11 weeks

Maria72

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Wednesday, January 26th 2011, 8:59pm

Yes it's a postcode lottery! We were lucky in east Anglia to try the full NICE recommendation of 3 cycles. I think the idea was to roll it over to the rest of the UK but now that local GPs will decide what's right for each area it will get even worse. I hope they roll it out to other places though!

louise78

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Wednesday, January 26th 2011, 9:06pm

How are Gps going to decide and will they have the knowledge ( without specialising in the field) what people need?
6x cycles of clomid bfn
2X iui bfn
1x ivf - identical triplets - miscarried triplet at 9 weeks, lost my other two beautiful boys at 23 weeks - passed away shortly after birth 17th June 2010.
4x FET 1 early loss
1 natural early loss.
2011 Nov immune cycle FET bfn
2012 Jan immune cycle ivf bfp baby7 Ds arrived safely 1/10/12 : D
2013 Aug immune cycle FET bfp confirmed miscarriage at 8 weeks
2014 Jan immune cycle bfn
2014 April immune cycle bfn.
2014 July fet bfp ❤️ seen at 7,9 and 11 weeks

Maria72

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8

Wednesday, January 26th 2011, 9:12pm

I don't know how it's going to work out but my understanding of it is that PCTs will go.

taxihome

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Wednesday, January 26th 2011, 10:52pm

It is all so crazy to be honest. I mean I was 32 when I originaly approached my NHS.
I have not heard anymore about the age being upped apart from the articles back in August 2010. They fear an ageism suit.

All I know is that I went to them again when I was 38 after being overlooked & I was told that as long as I left my fertility hospital & was reffered before my 40th birthday I would get 3 cycles but I was informed at the clinic it will only be up what they could do up to my 40th birthday. If the clinic had been open in December I would have got the full 3.
I dont like to appear ungrateful as I am lucky but I just hate being misinformed & then let down.

Hey I have a 23% chance of not needing another cycle as currently in the 2WW but I just know that if in the probability it doesnt work, I will feel cheated out of a final chance.
The NHS did fix my tubes, they cleared them of adhesions but the point of that when I am with a fella who needs ICSI seems well daft & a waste of money.

All I want are the right facts at the right time. Then there is no room for high expectations & feeling cheated out of an entitlement.
It was not like I reached 39 & thought hey I can get free IVF lets go for it. It has been 8 years of on & off visits.

Still I must stop moaning. I will write the letter & see where I go from there. If anyone has any tips I would appreciate it.

Thanks

[zx071]
2 x man boys -MC,Ectopic IVF x 4 Natural BFP/Born sleeping 22/WksRIP LO
Jan/11:ICSI:BFP: bab21 [zx115] Our dream has finally come true
MY DIARY

Eeyore

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Thursday, January 27th 2011, 1:40pm

Sadly every PCT make their own decision, even though the NICE guidelines are for three attempts at IVF for women between 23-39

Each PCT judges based on;

1. limit on BMI

2. whether or not the patient has children

3. number of previous cycles take

It is VERY unusual for a PCT to give 3 goes of IVF to a couple where the woman already has children, it is still the case that the majority give none at all and the few who do will only fund one cycle if the man is childless.


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Amylaura

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Friday, February 4th 2011, 2:34pm

Adhesions - to taxihome

Hi taxihome, can I ask where you ahd your tubes unblocked and what made them decide to try as as I am reading says they won't do it and little chance it works?!



I'm hoping you can offer me some help!



Amylaura :thumbsup:

taxihome

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Monday, February 7th 2011, 12:14am

Hi AmyLaura

Honey what happened with me is that where I am from anyway, The clinics ask that the tubes either be removed, clipped or repaired for IVF. The PCT also require definate proof that IVF is required so the hospital have to check this out.
I had a Lap done in 2002 but they couldnt even get through to see itnside due to the mess in there. In 2010 they re done the lap. They were able to get in & yes I was a mess, but they were able to repair me.
They cut away my adhesions. I had part of my bowel stuck to something or other as well as adhesions on one ovary & one tube. One tube was succesfully freed from adhesions. The other tube was all mangled from prev ectopic, but potenialy viable now. My chances of a natural pregnancy went up but not by a huge ammount.
The repair doesnt last forever as adhesions can grow back. It was my understanding that had they not been able to have fixed they would have clipped or removed. This can help IVF I think.
As DH has problems which require ICSI & as I had waited 8 years anyway so now age was a huge factor, they put us through for IVF. Obviously with DH's low morph & ICSI needed we still were covered for funding.
I think it just all comes down to wether the tubes can be corrected or not.

x

[zx071]
2 x man boys -MC,Ectopic IVF x 4 Natural BFP/Born sleeping 22/WksRIP LO
Jan/11:ICSI:BFP: bab21 [zx115] Our dream has finally come true
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Monday, February 20th 2012, 2:07pm

ivf

Yes it's a postcode lottery! We were lucky in east Anglia to try the full NICE recommendation of 3 cycles. I think the idea was to roll it over to the rest of the UK but now that local GPs will decide what's right for each area it will get even worse. I hope they roll it out to other places though!
i hope so just got 1st appointment referral to rfc belfast was 38 in nov, got my amh done and my dh is getting sa on wed hoping i then get a letter just to get on the list looks like 5/6 months away at best and 10/12 months lets hope when i get the confirmation letter waiting time up to a year that i have made it in time, northern ireland gets 1 attempt only so im praying i make it xx
:jilly: eptopic 2009
ttc natural
clomoide 2010
2012 waitig to start tx ivf
me 38 dh 30

taxihome

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Monday, February 20th 2012, 9:40pm

Good luck It might be me! Xx

[zx071]
2 x man boys -MC,Ectopic IVF x 4 Natural BFP/Born sleeping 22/WksRIP LO
Jan/11:ICSI:BFP: bab21 [zx115] Our dream has finally come true
MY DIARY




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