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  • "Sweetnatalie" started this thread
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Location: Great Yarmouth

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Sunday, June 5th 2011, 8:48pm

Where and what do i need?

Hi All

Sorry for being so blonde and asking the basic questions. I have not been on this site for so long as i took myself out of the whole cycle for a while.

A little background about me, I have had two natural M/C when i was 32 and 34 at the time. (with previous partner) I am now 41 and been with my lovely DH for 5 years unable to conceive. at the age of 39 we finally got an appointment with the local clinic and had one funded IVF. This ended with a " chemical pregnancy" which at the time thought was a M/C.
When we had our frosite put back i asked our consultant about immunology but he said that as i hadnt had 3 miscarriages they wouldnt even consider the testing. The frostie was a BFN and we have had a busy year of moving house and changing jobs etc. So now i am looking to start again, However i would love some tests to make sure that the whole journey isnt a waste of time (or money as this will not be funded)
Where can i get the tests done? and can someone tell me what tests i will need. I want to make sure there are no underlying problems

Thank you all for your help and support x x x
Me 42 DH 43

2 x Natural :BFP: resulting in M/c
1 x IVF (NHS) :BFP: Chemical Pregnancy
1 x FET (NHS) :BFN:

Sept 11 (Norway) 2 Embies on board (12 on ice) :BFP: MC at 5 weeks!!
Jan 2012: FET 1:BFP: MC + Ectopic?? at 6 weeks
Jul 2012: FET 2:BFN:
Sept 2012 FET3:BFN:
Nov 2012 FET4:BFP: - No heart beat at 8 weeks gutted. our Ivf journey is over!!

ruthie

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  • "ruthie" is no longer a member of FZ

Posts: 3,607

Reg: Aug 31st 2008

Location: Cornwall

Children: 3 angels looking after us.

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Sunday, June 5th 2011, 9:04pm

Hi Natalie, sorry to hear what a time you've had.

I always think the chemical pregnancy/miscarriage distinction is a bit of an artificial one. You were pregnant, then you weren't in both cases, so I think they are being a little unfair.

My understanding was that the NHS currently test after 2 m/c in ladies over 35, and you have had 2 m/c. In some ways that doesn't make sense as obv m/c is more common in older ladies, so they are more likely to have 2 or 3 m/c just due to bad luck, but I think the thinking is that once over 35, your fertility does start to decline, so they don't like to waste time.

I would be tempted to go back to your consultant, or even your GP, and ask them if they would consider doing the first batch of recurrent m/c tests. These include things like genetic testing of you and your DH, testing you for some clotting issues, and some auto immune issues. This is a common batch of tests and if you can find a sympathetic doctor who will do them, it's the place to start.

The next thing, if these all come back normal, would be the so called Level 2 tests. These will only be done by a private doctor who specialises in reproductive immunology. The main clinics that do this in the UK are ARGC, CARE, and Dr Gorgy. However, there are other clinics that are beginning to do some of these tests.

You could just go straight to an immune clinic and have all the tests done, but a full range of Level 2 tests can be about £12-1500 and the LEvel 1s would be extra, so I would be tempted to see if you can get the first lot done on the NHS.

There are a couple of threads on here with the Level 1 tests listed, but to be honest, every PCT will have it's own set of standard tests they run, which will be largely the same, so if you go through the NHS, you may as well just see what they do, and fill in any gaps later.

I've found that if you can find a sympathetic doc, they will often do a lot of this stuff for you. If you emphasise how gruelling this has all been emotionally, and how you can't bear to go through tx again worrying that something is wrong, I think they will be sympathetic.

Hope that helps, let me know if you need any more info.

xxx

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Sunday, June 5th 2011, 9:10pm

Lovely to see you around sweetie - I went looking for your diary, but couldn't find it. Ruthie, as always has given a great response, but I just wanted to let you know that I have been through these tests (not the level 1 tests, but the level 2 ones) with Dr Gorgy in London, so feel free to PM me if you have any questions etc. xxx

Maria72

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Sunday, June 5th 2011, 9:12pm

Hi Sweetnatalie and welcome back to :FZ:

I went to the ARGC in London to have my immune tests and I will cycle with them rather than Bourn Hall as they do not support reproductive immunology because it is not supported by medical trials, they just told me to use donor eggs.

I had the level 1 tests done at my GP at the start of my journey, but they showed nothing. However when I had the tests done at the ARGC they found quite a lot with the level 2 tests. There it cost about £800-900 (can't remember now). I think the downside is that you have to cycle with them to have the tests done. Alternatively there is Care with Dr Gorgy who will do the tests, but they are more expensive, however you do not have to cycle with them.

Check their websites:
ARGC :: Assisted Reproduction & Gynaecology Centre
IVF Treatment at CARE Fertility, the UK's largest independent infertility IVF treatment provider.
(external links not endorsed by FZ)

  • "Sweetnatalie" started this thread
  • United Kingdom

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Reg: Jul 27th 2009

Location: Great Yarmouth

Children: Hopefully!

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Sunday, June 5th 2011, 10:08pm

Wow...

Thank you so much ladies. Thank you Ruth for such a great answer and so much information. In relation to my GP he is amazing and i am sure if i go to him he would help out. So i may book an appointment to go and see him soon and see what he says. if not i will have a read up and pay for them,. I dont want to go through the whole cycle again and know that something could hinder it.

Grace and Maria, thank you so much for the welcome. It has been a amazing night, me and Dh were talking about adoption etc and whether we were going to try IVF or maybe start the adoption process, due to me now being 41 i dont want to waste time and it can be such a long journey, when it doesnt work its the starting again etc.

I have been crying tonight, not because of my situation but soooo pleased for the positives on here. There were people who were on our month that have pictures of their miracles and what a feeling. Seeing that there is a light at the end of the tunnel.

Its nice to be back to be honest. There are so many inspirational stories on here....

I now just have to decide which route to take. I think tests first and then see where we are would be a start. At least if they find something the cycle may go better! :smile:
Me 42 DH 43

2 x Natural :BFP: resulting in M/c
1 x IVF (NHS) :BFP: Chemical Pregnancy
1 x FET (NHS) :BFN:

Sept 11 (Norway) 2 Embies on board (12 on ice) :BFP: MC at 5 weeks!!
Jan 2012: FET 1:BFP: MC + Ectopic?? at 6 weeks
Jul 2012: FET 2:BFN:
Sept 2012 FET3:BFN:
Nov 2012 FET4:BFP: - No heart beat at 8 weeks gutted. our Ivf journey is over!!

ruthie

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  • "ruthie" is no longer a member of FZ

Posts: 3,607

Reg: Aug 31st 2008

Location: Cornwall

Children: 3 angels looking after us.

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Monday, June 6th 2011, 4:11am

That sounds really positive SN.

Just to clarify something, Dr Gorgy isn't at CARE. CARE have branches around the Midlands and do a lot of immune stuff.

Dr Gorgy used to work at ARGC and now works on his own in London. Some ladies go to him as CARE and ARGC insist on doing the cycle too, Dr G will just do immunes if you want to cycle elsewhere. I went to ARGC and was happy with them.

Xxxx




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