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LIT

  • "fluffy" started this thread
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Reg: Feb 18th 2011

Location: Italy

Children: Our miracle baby is on it's way!

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Friday, April 1st 2011, 2:08pm

LIT

Can anyone give me any advise regarding LIT treatment? Anyone who's had it (either successfully or otherwise)?

I have low LAD and have been recommended to have LIT by Dr Gorgy. It is very expensive though and I'm wondering if we really need it or if Intralipids are enough. Will be doing Intralipids, Steroids and Clexane. DH and I are not a DQ Alpha match so we can use his blood.

Any ideas; positive or negative towards LIT would be appreciated - thanks. xx

AMH 8.4 (me=36). 6 cycles clomid. Immune issues.
1st IVF cycle April 11 - canx due to endo cyst.
2nd IVF cycle with immune meds May 11 :BFP: [zx076] seen 5wk5d, 8wk5d, 12wk
"There can be miracles when you believe"
My diary


Rii

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Reg: Mar 2nd 2010

Children: Blessed with two miracles December 2011

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Saturday, April 16th 2011, 12:36am

Hi fluffy,

I posted in Miriam's thread about LIT. If you have any more questions please feel free to PM me.

xoxo
ICSI 1-April 2010 BFN
ICSI 2-July 2010 BFN
ICSI 3-January 2011 Immune Cycle- BFN (Humira, LIT, Intralipids, IVIG, Clexane, Progesterone & Steroids)
ICSI 4- April 2011 Immune Cycle - Blessed with a :BFP:


Maria72

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Saturday, April 16th 2011, 10:01am

See if I can find a link....
Here it is Please help me interpret Level II results

  • "fluffy" started this thread
  • United Kingdom

Posts: 330

Reg: Feb 18th 2011

Location: Italy

Children: Our miracle baby is on it's way!

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4

Saturday, April 16th 2011, 10:38am

Thanks Rii. I've tried to PM you but for some reason your name doesn't come up in the list. I'd guessed that you were one of the only on here who have actually had LIT. Thanks for your feedback. I knew about the rash that it can give you, but I didn't know how much it hurts!! What was your LAD level before the LIT? I'm sorry to bring this up, but did Dr Gorgy give you a reason for why the immune tx didn't work with your last cycle? Will you be doing LIT again?

:xxx3:

AMH 8.4 (me=36). 6 cycles clomid. Immune issues.
1st IVF cycle April 11 - canx due to endo cyst.
2nd IVF cycle with immune meds May 11 :BFP: [zx076] seen 5wk5d, 8wk5d, 12wk
"There can be miracles when you believe"
My diary


Rii

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Posts: 1,392

Reg: Mar 2nd 2010

Children: Blessed with two miracles December 2011

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Saturday, April 16th 2011, 1:44pm

Not sure why you can't PM me but no worries i can answer your questions here. :)

Ya rash is a little itchy i kept my arms covered to avoid the itch and even put some plaster on it. DO NOT itch it will make it worse. And yes it does hurt....can't explain it but it is all worth it in the end...that is what i kept telling myself.

My LAD was Negative with T cells IgM 5.9
T cells IgG 10.1
B cells IgM 22.0
B cells IgG 9.6

After treatment it was Positive
T cells IgM 23.0
T cells IgG 99.9
B cells IgM 8.3
B cells IgG 99.9

I never got retested again for LAD. I am too scared to ask if i need it lol because i don't want to do the LIT again lol! But i don't think it is important because Dr. G did not mention.

I wish they can give us a reason for why a cycle does not work. It is a number's game. Immune drugs and treatment still does not guarantee a BFP but at least we do increase our chances by eliminating any obstacles. I have several immune issues so do not let my BFN discourage you. But if i needed LIT again i would do it.

Hope this helps....

:hugs:
ICSI 1-April 2010 BFN
ICSI 2-July 2010 BFN
ICSI 3-January 2011 Immune Cycle- BFN (Humira, LIT, Intralipids, IVIG, Clexane, Progesterone & Steroids)
ICSI 4- April 2011 Immune Cycle - Blessed with a :BFP:


Maria72

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Posts: 13,771

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Saturday, April 16th 2011, 8:40pm

I have created a new section where we can chat about all our tx.
It's here: IMMUNOLOGY CHATTER

If you want to move your diary in the immunology section please ask and I will do so.
:xxx:

  • "fluffy" started this thread
  • United Kingdom

Posts: 330

Reg: Feb 18th 2011

Location: Italy

Children: Our miracle baby is on it's way!

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7

Sunday, April 17th 2011, 10:49am

Thanks Rii :hugs:

AMH 8.4 (me=36). 6 cycles clomid. Immune issues.
1st IVF cycle April 11 - canx due to endo cyst.
2nd IVF cycle with immune meds May 11 :BFP: [zx076] seen 5wk5d, 8wk5d, 12wk
"There can be miracles when you believe"
My diary


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