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  • "Jenine" started this thread

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Reg: Mar 2nd 2010

Children: Blessed with two miracles December 2011

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Saturday, October 9th 2010, 10:18am

Endometriosis ???

I am not sure where to post this but...

I can't stop researching about immune issues and i keep reading that endometriosis can cause an immune response that causes miscarriages due to the prostaglandins.

http://www.endo-resolved.com/infertility.html

I am now worried because i suffered with SEVERE period cramps only on day 1. SEVERE...where i had to go the ER, faint in class, and just pure pain where people thought i was dying! So yes very bad pain, but no doctor thought it could be endometriosis because it only occured on CD1. No pain during sex. No pain during urination or bowel movement. No heavy bleeding. Last 4-5 days and very regular.

I had a hysteroscopy and i know that is not enough to rule out endometriosis. My doctor here says i probably don't have it.

My question is: IF i do have it? Would i need surgery to remove it? Or since i am doing IVF i dont need to worry? What do they do when they find Endo?

Should i ask for a laproscopy before my next cycle?

Dr. Gorgy was not worried when i told him i had severe cramping with periods. I think i am going to call him and tell him all this.

Any advice would help...

Thanx girls...
ICSI 1-April 2010 BFN
ICSI 2-July 2010 BFN
ICSI 3-January 2011 Immune Cycle- BFN (Humira, LIT, Intralipids, IVIG, Clexane, Progesterone & Steroids)
ICSI 4- April 2011 Immune Cycle - Blessed with a :BFP:


  • "Jenine" started this thread

Posts: 1,392

Reg: Mar 2nd 2010

Children: Blessed with two miracles December 2011

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Saturday, October 9th 2010, 10:43am

Not sure what to do...Endometriosis???

I am not sure where to post this but...

I can't stop researching about immune issues and i keep reading that endometriosis can cause an immune response that causes miscarriages due to the prostaglandins.

http://www.endo-resolved.com/infertility.html

I am now worried because i suffered with SEVERE period cramps only on day 1 of period. SEVERE...where i had to go the ER, faint in class, and just pure pain where people thought i was dying! So yes very bad pain, but no doctor thought it could be endometriosis because it only occured on CD1. No pain during sex. No pain during urination or bowel movement. No heavy bleeding. Last 4-5 days and very regular. My only symptom is cramping and pain! I got my period at the age of 11. Severe pain started at 13. Where i would feel dizzy, nausea, severe pain, can't walk, can't move, would cry from the pain...over the counter medication was not enough...ibuprofen was not enough. My doc put me on Ponstan. I lived on ponstan and ibuprofen till i was 21 and i met a professor of nutrition and he told me i might have severe dysmenorrhea which is basically painfully periods for unknown reason. He put me on Omega 3, magnesium and B complex and it change my life! No pain! But i still would carry the ibuprofen and take it before exams or special event so i dont miss them. So my doctors said i cant have endometriosis. Now i always take ibuprofen a day before my period to help control the pain. It is not severe like before. But i am worried because my last pelvic exam cause me to have SEVERE pain, nause, i got cold, then hot...just felt i was gona die and it reminded me of my severe pain....so got me thinking maybe i have endometriosis?

I had a hysteroscopy and US and i know that is not enough to rule out endometriosis. My doctor here says i probably don't have it.

My question is: IF i do have it? Would i need surgery to remove it? Or since i am doing IVF i dont need to worry? What do they do when they find Endo?

Should i ask for a laproscopy before my next cycle?


Any advice would help...
ICSI 1-April 2010 BFN
ICSI 2-July 2010 BFN
ICSI 3-January 2011 Immune Cycle- BFN (Humira, LIT, Intralipids, IVIG, Clexane, Progesterone & Steroids)
ICSI 4- April 2011 Immune Cycle - Blessed with a :BFP:


BraveGirl

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  • "BraveGirl" is no longer a member of FZ

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Saturday, October 9th 2010, 10:59am

jenine my view is before your next IVF have a laproscopy and see if you have endo. If you do have it then have as much removed as possible. There is evidence to suggest that within 9 months of having endo removed your chances of conceiving increases.

Dr Beers also believes that even with endo removed it leaves a rasied chance of immune response ad so with endo removed and immune treatment your chances increase by 70% (from your starting position - it does not go UP to 70%).

I had my endo removed (I did not even know I had it as I had no symptoms) and I had BFP 7 months later with immune treatement.

Oh I meant to say that my laproscopy to remove both my tubes in case there was fluid in them, the endo was a complete surprise and my tubes had no fluid and were not removed!!! I dont see how your doctor can say you dont have endo without looking inside!!!

the hysteroscopy and US would not pick up endo, you need a laprsocopy. I would seriously fight for this before the next cycle. Plus after 2 failed cycles they should be suggesting it if you have never had one to rule out tubal infection and other things they can look for.
IVF 1 :BFP: baby5 in heaven 6 weeks
IVF 5 :BFP: Immune protocol Care Sheffield
Oscar Miles arrived 15 April 2011 weighing 6lbs 14oz
My Diary

This post has been edited 2 times, last edit by "BraveGirl" (Oct 9th 2010, 11:03am)


BraveGirl

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Saturday, October 9th 2010, 11:04am

I replied on other thread.

moderators - can you merge them?
IVF 1 :BFP: baby5 in heaven 6 weeks
IVF 5 :BFP: Immune protocol Care Sheffield
Oscar Miles arrived 15 April 2011 weighing 6lbs 14oz
My Diary

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Reg: Feb 16th 2009

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Saturday, October 9th 2010, 12:12pm

O Hun I can't offer advice, but would get it checked out. If only for peace of mind. You need to be as positive as you can be and not worrying about what ifs. Thinking of you. X


3 IUI and 5 IVF :BFN:
What's the future?
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High NK and high PAI-1
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Ros

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Saturday, October 9th 2010, 9:27pm

Hi Jenine, I'm sorry to hear about your very painful periods, they do sound horrid. I have to say that this doesn't mean you necessarily have endometriosis though so please don't assume that they are always connected. The other ladies are right that the only way to diagnose endo is through a laparoscopy, there is no other way to be sure. If I were you I would ask for one to be sure, I'm certainly glad I pushed for mine a few years ago, but at that point I wasn't going through IVF so it was just the start of my tx. If they did find any endo they may decide to remove it but that all depends on the amount and location of it (they remove it through a laparoscopy in most cases).
With regards to your immune concerns, I have never heard of endo causing immune issues and miscarriages despite seeing a few consultants about my endo. I do hope the pain eases soon for you and good luck with the IVF x

After 5 years of endo surgery, clomid, 2 x MM/C, 2 x ICSI cycles and 1 PGD cycle,
beautiful twin girls born 8th Feb 2010, we are so grateful

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Sunday, October 10th 2010, 3:44am

Hi there, I've posted this in other places, but I had years of terrible period pains like cramping to the point I couldn't stand up straight, numb pain in my legs,backache, etc. and pretty much only seemed to get it the first 24 hours, 48 at a push but just figured some people suffer, some don't. It was a combination of lack of pregnancy with no near misses and a colleague who had endo saying she thought I might have it prompted me to finally go see my GP who referred me and I had the laparoscopy. They told me I had stage four endo, my left tube was probably blocked as it was covered in so much scar tissue they couldn't see it, and everything else was pulled out of place (in fact when I saw the consultant he explained that for pain relief if I didn't want children it would be a hysterectomy and cancer surgeon/specialists would probably perform the surgery because everything was so out of place and stuck together). He also told me that it was pointless trying to remove the endo as there was so much of it, BUT I was a perfect candidate for ivf because they simply take that out of the equation. Long story short our first cycle worked and we now have a beautiful six month old daughter. So I agree with the some of the other ladies, push for the lap for your own peace of mind, at least you're armed with all the information then. Good luck!!!!!

xxx

  • "Jenine" started this thread

Posts: 1,392

Reg: Mar 2nd 2010

Children: Blessed with two miracles December 2011

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Sunday, October 10th 2010, 8:01am

I am just really worried about how invasive it is...how fast do u recover?

Sylvester: U went ahead with IVF without getting any of the endo removed?

Sorry if i am seem lost but why would i need the LAP if they wont remove the endo? Or should they?

This is my problem...i live in Dubai...had 2 failed cycles here then found out i had immune issues and will be flying to London to see Dr. Gorgy Oct 20 to start LIT treatment and HUMIRA (decrease immune system and prone to infections) and then Nov. 20 go back for another LIT.

So i wont be albe to do it oct 20- nov. 20 if i am on humira.

I already booked my flight and my appts and all.

How does the LAP change their treatment plan? Or do they just remove the endo, if i have any?

Dr. Gorgy is closed till Monday...i will call him and discuss all this with him and see what he says.

Thank you girls...i really appreciate all your help...

so confused...why can't anything be easy:(

xoxo
ICSI 1-April 2010 BFN
ICSI 2-July 2010 BFN
ICSI 3-January 2011 Immune Cycle- BFN (Humira, LIT, Intralipids, IVIG, Clexane, Progesterone & Steroids)
ICSI 4- April 2011 Immune Cycle - Blessed with a :BFP:


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Sunday, October 10th 2010, 3:51pm

Hi Jennie,



I didn't know they could/would remove any endo at the time of the lap 'til I went back to work and spoke to the girl who originally suggested I might have endo, because she seemed surprised when I told her they hadn't removed any. So when I saw the consultant later who'd performed the lap he said that there was so much of it, it would be 'scratching the surface' if they tried to treat it - I had two options, if I wanted children it would have to be IVF, if I wanted pain relief it was a hysterectomy (I had the lap when I was 34, and I suffered with period pain from pretty much 16/17). From what I remember him telling me, its not just that the endo appears on your reproductive organs, he said it chemically alters the environment making it virtually impossible to conceive naturally, which is why it can make you such a good candidate for the IVF, as they do all the hard work (in theory!!!!) for you. I can't help on your other issues unfortunately as I don't know a great deal about all the other factors that can affect fertility, but I would guess if you / fertility team know about your possible endo beforehand its just more information to help increase your chances? Hope this helps???? x

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